Adapting a peer-led self-management program for breast cancer survivors in Switzerland using a co-creative approach

Schmidt, Franziska; Ribi, Karin; Haslbeck, Jörg; Urech, Corinne; Holm, Karin; Eicher, Manuela

doi:10.1016/j.pec.2020.03.028

Cited by 9 publications

(11 citation statements)

References 44 publications

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“…As participants in the present study identified the opportunity to talk to fellow bowel cancer survivors as an area of need, the use of group interaction with peers described as ‘beacons of information’ (Drury et al, 2020, p. 7) would provide a credible, trustworthy voice, with fellow cancer survivors providing examples of real people living and managing their lives post bowel cancer. As with breast cancer survivors, group sessions would be most effective if made up of individuals who have survived the same type of cancer (Schmidt et al, 2020), particularly as bowel dysfunction or ostomy management are taboo topics (Chelvanayagam, 2014). A group made up entirely of bowel cancer survivors is more likely to provide a non‐stigmatising environment for open discussions.…”

Section: Discussionmentioning

confidence: 99%

The occupational impact of bowel cancer: Survivors' voices and advancing the role of occupational therapy assessment and intervention

Martin

Hocking

Sandham

2021

Aus Occup Therapy J

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Introduction:The aim of this study was to investigate the occupational impact (i.e., how engagement in occupation is affected) of having had bowel cancer and the role of occupational therapy with bowel cancer survivors and their significant others.Methods: Two rounds of semi-structured interviews were carried out with individuals who had completed treatment for bowel cancer, with interviews designed to gain insight into their occupational experiences post treatment.Thematic analysis was utilised to construct themes and patterns founded on the perceptions of participants. Analysis involved concurrent data collection and analysis, constant comparative analysis, and iterative analysis.Findings: Eighteen participants were interviewed, with occupational impact evident across multiple aspects of everyday life. Four themes were identified:Changes in eating habits, changes in toileting habits, changes in relationships, and rethinking occupational choices.Conclusion: Findings of the occupational impact of having had bowel cancer reveal a possible role for occupational therapists with people affected by bowel cancer. Occupation focused assessments and self-management programmes are identified as a possible means of meeting the needs of this population, making use of the experiences of peers to provide a credible, relatable voice.

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Section: Discussionmentioning

confidence: 99%

The occupational impact of bowel cancer: Survivors' voices and advancing the role of occupational therapy assessment and intervention

Martin

Hocking

Sandham

2021

Aus Occup Therapy J

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“…There were sixteen cross-sectional studies [ 24 , 27 , 29 , 32 , 34 , 35 , 43 – 46 , 53 , 54 , 65 , 69 , 70 , 83 ], nine randomized control trials (RCT) [ 22 , 23 , 26 , 28 , 58 – 60 , 67 •, 82 ], nine reviews [ 25 , 31 ••, 38 ••, 52 , 66 , 71 •, 72 •, 77 , 86 ], nine cohort studies [ 30 , 36 , 39 , 42 , 48 , 57 ], five RCT protocols [ 40 , 41 •, 50 , 61 , 62 •], three case–control studies [ 49 , 55 , 68 ], two interviews [ 33 , 74 ], two retrospective studies [ 56 , 81 ], two longitudinal studies [ 63 , 84 •], two content analysis [ 73 , 75 ], two scoping reviews [ 80 , 85 ], one qualitative study [ 37 ], one validity study [ 51 ], one pilot study [ 64 ], one systematic review [ 78 •], and finally one narrative study [ 79 ] (see Table 1 for further details).…”

Section: Resultsmentioning

confidence: 99%

Breast Cancer Survivorship: the Role of Rehabilitation According to the International Classification of Functioning Disability and Health—a Scoping Review

et al. 2022

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Purpose of Review The population of breast cancer (BC) survivors is growing due to earlier diagnosis and effective combined treatments. A scoping review was performed to explore the role of rehabilitation in BC survivorship and the major issues in BC survivors with International Classification of Functioning Disability and Health (ICF) perspective. Recent Findings The authors searched PubMed from January 1, 2018, up until November 9, 2021. The 65 selected publications were analyzed with the Comprehensive ICF BC Core Set (CCS) perspective and assigned to the categories of the CCS components along with the 3 areas of health (physical, mental, and social health). The multidimensional aspects of BC survivor disability are evident, whereas the topics of the articles concern several categories of the ICF BC CCS and all 3 areas of health. However, the current ICF BC CCS does not include certain categories related to emerging issues of BC survivorship recurring in the papers. Summary Rehabilitation is crucial in BC survivorship management to give personalized answers to women beyond BC, and the ICF BC CCS remains an essential tool in rehabilitation assessment for BC survivors although it needs updating.

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Section: Discussionmentioning

confidence: 99%

“…In addition, professionals may also take advantage of the social support system for SM support, as a previous study on BCS peer-led self-management with the aid of both social and professional support systems is proved effective. 49 Medical compliance is also a major part of SM during AT. We found that patients under intravenous chemotherapy showed good compliance, not only because of fear and anxiety about cancer recurrence but also because of limited treatment sites and the short treatment period.…”

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confidence: 99%

Self-Management About Adjuvant Therapy in Breast Cancer Survivors: A Qualitative Study

Jia¹,

Hu²

2022

PPA

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Objective This study aims to describe the experience and connotations of self-management about adjuvant therapy (AT) in Chinese breast cancer survivors (BCS) and explore possible factors that affect their self-management level. Methods Semi-structured interviews were conducted in postoperative BCS undergoing AT using a qualitative description method. The conceptual structure and connotations were extracted after researchers collected and coded interview transcripts. Results After interviewing 29 patients, the conceptual framework of self-management in BCS during AT was optimized with three major themes: medical-related, emotion, and role management. Medical-related management includes AT-related adverse reactions; medical cooperation and knowledge acquisition; recovery and protection of affected limb; medical compliance; body image; sexual function and fertility; healthy lifestyle; catheter daily protection; and AT-related financial burdens. Emotion management includes recognition, prevention, and regulation of negative emotions. Role management consists of three aspects: family role, social role, and work role. Conclusion The conceptual structure and connotations formed in this study can help researchers to evaluate and intervene in the self-management ability of BCS during AT, so as to formulate the best model of care to improve their quality of life and clinical outcomes.

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Adapting a peer-led self-management program for breast cancer survivors in Switzerland using a co-creative approach

Cited by 9 publications

References 44 publications

The occupational impact of bowel cancer: Survivors' voices and advancing the role of occupational therapy assessment and intervention

The occupational impact of bowel cancer: Survivors' voices and advancing the role of occupational therapy assessment and intervention

Breast Cancer Survivorship: the Role of Rehabilitation According to the International Classification of Functioning Disability and Health—a Scoping Review

Self-Management About Adjuvant Therapy in Breast Cancer Survivors: A Qualitative Study

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