Adaptation, Content Validity and Reliability of the Autism Classification System of Functioning for Social Communication: From Toddlerhood to Adolescent-Aged Children with Autism

Rezze, Briano Di; Gentles, Stephen J.; Hidecker, Mary Jo Cooley; Zwaigenbaum, Lonnie; Rosenbaum, Peter; Duku, Eric; Georgiades, Stelios; Roncadin, Caroline; Fang, Hanna; Tajik-Parvinchi, Diana; Viveiros, Helena

doi:10.1007/s10803-022-05621-z

Cited by 5 publications

(5 citation statements)

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“…Participants will complete the self-administered parent/caregiver domain level version of the VABS-3 approximately every 6 months over the study period. A battery of theoretically driven correlates of adaptive functioning trajectories were selected following a review of the literature,20 34–36 consultations between the research and clinical teams, input from a family advisory group and findings from our team’s Pathways in ASD study,21 37–40 including: core autism symptoms and their functional impacts (Autism Impact Measure (AIM)),41 42 social communication capacity (Autism Classification System of Functioning: Social Communication (ACSF:SC)),43 44 daily activity participation (Young Children’s Participation and Environment Measure (YC-PEM) or Participation and Environment Measure—Children and Youth (PEM-CY)),45 46 behavioural and sensory needs (Behavioral Inflexibility Scale (BIS),47 Sensory Experiences Questionnaire-short form (SEQ)),48 socioeconomic status (Sociodemographic Questionnaire), service characteristics (Autism Services Questionnaire), diagnosis path (Canadian Health Survey on Children and Youth49 questions pertaining to pathways to diagnosis) and family experience (Autism Family Experience Questionnaire (AFEQ)) 50. Since this is a pragmatic study, consideration was given to ensure the completion time of questionnaires was kept brief, to minimise participant burden.…”

Section: Methodsmentioning

confidence: 99%

The Pediatric Autism Research Cohort (PARC) Study: protocol for a patient-oriented prospective study examining trajectories of functioning in children with autism

Kata,

McPhee,

Chen

et al. 2024

BMJ Open

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IntroductionThe developmentally variable nature of autism poses challenges in providing timely services tailored to a child’s needs. Despite a recent focus on longitudinal research, priority-setting initiatives with stakeholders highlighted the importance of studying a child’s day-to-day functioning and social determinants of health to inform clinical care. To address this, we are conducting a pragmatic multi-site, patient-oriented longitudinal investigation: thePediatric Autism Research Cohort(PARC) Study. In young children (<7 years of age) newly diagnosed with autism, we will: (1) examine variability in trajectories of adaptive functioning from the point of diagnosis into transition to school; and (2) identify factors associated with trajectories of adaptive functioning.Methods and analysisWe aim to recruit 1300 children under 7 years of age with a recent (within 12 months) diagnosis of autism from seven sites: six in Canada; one in Israel. Participants will be followed prospectively from diagnosis to age 8 years, with assessments at 6-month intervals. Parents/caregivers will complete questionnaires administered via a customized online research portal. Following each assessment timepoint, families will receive a research summary report describing their child’s progress on adaptive functioning and related domains. Analysis of the longitudinal data will map trajectories and examine child, family and service characteristics associated with chronogeneity (interindividual and intraindividual heterogeneity over time) and possible trajectory turning points around sensitive periods like the transition to school.Ethics and disseminationEthics approvals have been received by all sites. All parents/respondents will provide informed consent when enrolling in the study. Using an integrated knowledge translation approach, where stakeholders are directly engaged in the research process, thePARC Studywill identify factors associated with trajectories of functioning in children with autism. Resulting evidence will be shared with government policy makers to inform provincial and national programs. Findings will be disseminated at conferences and published in peer-reviewed journals.

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Section: Methodsmentioning

confidence: 99%

The Pediatric Autism Research Cohort (PARC) Study: protocol for a patient-oriented prospective study examining trajectories of functioning in children with autism

Kata,

McPhee,

Chen

et al. 2024

BMJ Open

Self Cite

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“…• Diagnosed with ASD according to medical report, and classified at support levels I or II by the Autism classification system of functioning: social communication ACSF:SC [36];…”

Section: Eligibility Criteriamentioning

confidence: 99%

“…Characteristics of the participants. Participants' age, sex, classification on the ACSF:SC [36], and the Abbreviated Sensory Profile 2 [37] will be collected after signing the informed consent and assent form. [36].…”

Section: Data Collectionmentioning

confidence: 99%

“…Participants' age, sex, classification on the ACSF:SC [36], and the Abbreviated Sensory Profile 2 [37] will be collected after signing the informed consent and assent form. [36]. Classification is divided into five levels that distinguish individuals' social communication skills according to social needs and goals.…”

Section: Data Collectionmentioning

confidence: 99%

“…Classification is divided into five levels that distinguish individuals' social communication skills according to social needs and goals. The ACSF:SC was properly translated for Brazilian children and young people with ASD and will be applied by a trained assessor [38].…”

Section: Data Collectionmentioning

confidence: 99%

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Sports Stars Brazil in children with autism spectrum disorder: A feasibility randomized controlled trial protocol

Fernandes,

Souto,

de Sousa Junior

et al. 2023

PLoS ONE

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Background Autism Spectrum Disorder (ASD) children have lower levels of participation in recreational and sporting activities when compared to their peers. Participation has been defined based on the Family of Participation-Related Constructs (fPRC) which defines participation as including both attendance and involvement, with sense of self, preferences and activity competence related to a child’s participation. Modified sports interventions such as Sports Stars can act on physical literacy and some of the fPRCs components. This study aims to assess the feasibility of the Sports Stars Brazil intervention for children with ASD. Methods This study will be conducted with 36 participants with ASD aged 6 to 12 years old following the CONSORT for pilot and feasibility recommendation. Participants will be randomly allocated into two groups. Intervention group will receive eight, weekly Sports Stars sessions. Each session will include of sports-focused gross motor activity training, confidence building, sports-education and teamwork development. Study assessments will occur at baseline, immediately post-intervention and 20-weeks post-randomization. First, we will assess process feasibility measures: recruitment, assessment completion, adherence, adverse events and satisfaction. Second, we will investigate the scientific feasibility of the intervention by estimating the effect size and variance at the level of achievement sports-related activity and physical activity participation goals (Goal Attainment Scaling), activity competence (Ignite Challenge, Test of Gross Motor Development-second edition, Physical Literacy Profile Questionnaire, Pediatric Disability Assessment Inventory–Computer Adaptive Test—PEDI-CAT—mobility, 10×5 Sprint Test and Muscle Power Sprint Test), sense of self (PEDI-CAT—responsibility), and overall participation at home, school and community, (Participation and Environment Measure for children and young people, PEM-CY). Discussion The results of this feasibility study will inform which components are critical to planning and preparing a future RCT study, aiming to ensure that the RCT will be feasible, rigorous and justifiable. Trial registration The trial was registered with the Brazilian Registry of Clinical Trials database (ID: RBR-9d5kyq4) on June 15, 2022.

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Modified sports interventions for children and adolescents with disabilities: A scoping review

de Sousa Junior,

Sousa,

de Lima

et al. 2024

Develop Med Child Neuro

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AimTo establish the scope of the literature on modified sports interventions for children and adolescents with disabilities.MethodFor this scoping review, articles were screened and the characteristics of studies were extracted. The modified sports interventions were described in terms of their structure, using the items of the Template for Intervention Description and Replication. Components of intervention treatment were described by using the language of the Rehabilitation Treatment Specification System. Results were analysed and validated by a group of professionals, using the Public and Patient Involvement strategy.ResultsTwelve studies were eligible for inclusion, investigating interventions for children with autism spectrum disorder, cerebral palsy, and other conditions. Most studies presented a moderate level of evidence. Active ingredients were repeated sports‐related motor training and introduction to the sport through a ‘learning by action’ mechanism. The intervention target was gross motor skills performance, and intervention aims (indirect outcomes) were physical activity participation and different body functions.InterpretationThe inclusion of stakeholders in this review helped to validate our findings about the characteristics and structure of modified sports interventions, to identify research gaps, and to provide a step process for clinical implementation. Future investigations are warranted of the effectiveness of modified sports investigations with better quality studies, including participation outcomes and studies with non‐ambulant children.

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Adaptation, Content Validity and Reliability of the Autism Classification System of Functioning for Social Communication: From Toddlerhood to Adolescent-Aged Children with Autism

Cited by 5 publications

References 37 publications

The Pediatric Autism Research Cohort (PARC) Study: protocol for a patient-oriented prospective study examining trajectories of functioning in children with autism

The Pediatric Autism Research Cohort (PARC) Study: protocol for a patient-oriented prospective study examining trajectories of functioning in children with autism

Sports Stars Brazil in children with autism spectrum disorder: A feasibility randomized controlled trial protocol

Modified sports interventions for children and adolescents with disabilities: A scoping review

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