Activity and participation in haemophiliacs: Item response modelling based on international classification of functioning, disability and health

Abstract

Background and objectives: There is scant research investigating the user-friendly functional assessment tool conceptualized by the International Classification of Functioning, Disability and Health (ICF) among persons with haemophilia (PWH). This study aims to accomplish two goals: (1) quantifying comprehensive functioning measures of haemophilia through Item Response Theory (IRT); (2) discussing patient-centred care based on the Wright map of personal ability and item difficulty. Methods: A cross-sectional study was carried out in 70 PWH (mean age, 33.09 ± 11.04) via convenience sampling. All patients completed the 45 ICF categories of haemophilicspecific activity and participation. Psychometric properties of the categories were examined using Mokken scale analysis and parametric item response modelling. Results: We extracted a unidimensional scale with 31 categories, and constructed a Rasch model with good fitness. The Cronbach's α of the scale was .9713, with the Guttman's λ 2 = .9730, Molenaar Sijtsma ρ = .9802, and latent class reliability coefficient = .9769, indicating great internal reliability. The estimated individual social competence by the Rasch model was highly related to the index score of the threelevel EuroQol five-dimensional questionnaire (EQ-5D-3L) (p < .001, r = .62), and had a moderate correlation (p < .001, r = .54) with the score of Haemophilia Activities List (HAL). Conclusions: The ICF scale of haemophilic activity and participation with 31 categories (HAPPY-ICF) has good construct validity and internal consistency. The person-item threshold distribution map might be helpful in research and clinical practices for patient-oriented care.

Development and validation of health‐oriented personal evaluation for the community‐dwelling older person based on the International Classification of Functioning, Disability and Health

“…Following the IRT modelling procedure employed in stroke ICF (Feng, Jiang, et al., 2022) and haemophilia ICF (Feng, Geng, et al., 2022), score = 8 or 9 are considered missing values. We eliminated categories with missing values ≥5% to mitigate data‐filling bias (Newgard & Haukoos, 2007).…”

“…However, considering the hectic clinical environment, it is inefficient for gerontological nurses and other health professionals to administrate several scales to screen individuals' dysfunction, let alone require more time to further understand the intricate interaction between dysfunctions. Thus, it is inevitable to encounter a trade‐off between the sufficiency and efficiency of assessment tools (Feng et al., 2023), which poses challenges to evaluating comprehensive health‐related functioning with a single measurement tool. Additionally, the utilization of various scales across different health settings and different healthcare professionals creates a barrier for gerontological nurses and other professionals to conduct seamless management of older persons' functional changes.…”

“…Recently, emerging studies have advocated processing ICF evaluation data with the item response theory (IRT) model, and generating an IRT‐derived ICF assessment scale that provides more information than simply calculating the sum of scores (Feng, Geng, et al., 2022; Feng, Jiang, et al., 2022; Gao et al., 2020; Guo et al., 2020; Li et al., 2018). First, the ‘person ability’ allows for the ranking of individual abilities within a specific population, facilitating the comparison of functional ability changes over time in the same person.…”

Disability and the social impact of hemophilia

“…To recognize people with disabilities their specific status as a social protection tool To consider early retirement due to disability in this population Current standards establish that being diagnosed with hemophilia is not an eligibility criterion in itself. It is rather the individual's ability to carry out their activities of daily living autonomously that is considered, as well as the need of continuous treatment and the annual rate of bleeding episodes that require medical intervention [13,14].…”

Simplified functioning assessment for low back pain: ICF-based item response theory modelling

“… 23 - 25 The pipeline from non-parametric IRT (npIRT) method to parametric IRT (pIRT) method offers a solution for generating a simplest plausible model with the fewest possible number of categories. 26 Mokken Scale Analysis (MSA) is a npIRT method prepares data and generates monotone homogeneity model (MHM) to meet three essential hypotheses for further pIRT modeling, including unidimensionality, local independence, and monotonicity. 27 The pIRT models usually refers to n-parameter logistic models (nPLMs, n = 1, 2, 3, and 4).…”