Active involvement of learning disabilities service users in the development and delivery of a teaching session to pre-registration nurses: Students' perspectives

Smith, Penny; Ooms, Ann; Marks-Maran, Di

doi:10.1016/j.nepr.2015.09.010

Cited by 13 publications

(7 citation statements)

References 35 publications

(25 reference statements)

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“…Our findings confirm reports in the literature that there are real benefits in involving service users in training programmes; it can give students insight into the experience of service users (Costello & Horne, ) and challenge assumptions (Schneebeli et al, ). Research data on involving people with intellectual disabilities in delivering education are limited, but there is some evidence that such involvement can have a deep and positive impact on students (Bollard, Lahiff, & Parkes, ; Smith et al., ).…”

Section: Discussionmentioning

confidence: 99%

“…Initiatives that included active involvement of people with intellectual disabilities in delivering training have been found to have a positive impact on students' confidence, attitudes and knowledge (Atkinson & Williams, 2011;Smith, Ooms, & Marks-Maran, 2016). communication about death and dying by support staff, and staff views on possible strategies for improvement.…”

Section: Staff Trainingmentioning

confidence: 99%

“…Initiatives that included active involvement of people with intellectual disabilities in delivering training have been found to have a positive impact on students’ confidence, attitudes and knowledge (Atkinson & Williams, ; Smith, Ooms, & Marks‐Maran, ).…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Communicating about death and dying: Developing training for staff working in services for people with intellectual disabilities

Tuffrey‐Wijne

Rose

Grant

et al. 2017

Research Intellect Disabil

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Section: Discussionmentioning

confidence: 99%

Section: Staff Trainingmentioning

confidence: 99%

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Communicating about death and dying: Developing training for staff working in services for people with intellectual disabilities

Tuffrey‐Wijne

Rose

Grant

et al. 2017

Research Intellect Disabil

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“…In a similar way as the projects of Bollard et al and Smith et al, this might improve student nurses understanding and knowledge of PD. [28,29] Moreover, professionals as well can receive training -in multidisciplinary groups -to experience (in)accessibility of care through the eyes of PD. A review of Hemm et al has shown the potential to develop on the job training, which can be deployed in different settings (home care as well as residential care).…”

Section: Methodsmentioning

confidence: 99%

Primary care nurses in a local Belgian setting: Responding to healthcare needs of people with disabilities

Storms

Claes

2017

JNEP

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Background: Given the worldwide evolution to deinstitutionalize care for people with a disability (PD), the importance of having care services, for instance as offered by primary care nurses (PCN), to deliver necessary care to PD can only be emphasized. European data (from 2014) show a relatively high percentage of PD in Belgium (16.2%) using home care services provided by primary health care providers (PCN, general practitioners. . . ). Moreover, satisfaction levels regarding these services are among the highest in Europe. The objective of this research was to gain insight into the needs of PD regarding nursing care, based on PCN's experiences. Methods: Between September and December 2015, a questionnaire -drawn up by a multidisciplinary team (4 general practitioners and 20 PCN) -was distributed electronically to 1547 PCN working in primary care in the Belgian region Limburg. Open-ended questions of this questionnaire were analyzed using techniques developed for qualitative data analysis. PCN were asked to report about (1) mental and behavioural problems, (2) medication policy, (3) swallowing problems, (4) monitoring of nutritional status and (5) any other needs arising in the care for PD. Results: Comments of 588 PCN were generated (response rate of 38%). Besides the (routine) tasks of PCN, the impact of PD's and informal caregivers' behaviour on PCN's working environment were mentioned, particularly regarding medication policy, swallowing problems and nutrional status monitoring. PCN's collaboration with PD and their informal caregivers is often reported about in relation to respectively PD's limited ability to communicate or to understand PCN and informal caregivers behaving in a counteracting way, not following through PCN's advice. Additionally, PCN report about consulting and activating other healthcare professionals in the interest of PD's. Overall, PCN mentioned tasks in all facets of PD's lives: from the expected nursing care and far beyond. Conclusions: Besides providing nursing care, PCN are also helping with different tasks related to daily living. This "beyond standard" -care enhances the likelihood of PD to keep on living in their homes for a longer period of time. PCN seem to play a crucial role in activating other healthcare professionals to meet the healthcare needs of PD. More extensive research should be carried out to gain insight in healthcare needs of PD and the challenges PCN come across in their care for this population. Findings can be used to align pre-qualification training and education of (future) PCN with the (unmet) needs of PD.

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“…An approach similar to Smith et al can be pursued: teaching students from the point of view of service users and their experiences in trying to get access to necessary health care might be an innovative and intriguing way to educate health care professionals. [43] Moreover, a review of Hemm et al [25] shows that it is feasible to design a training package that can be deployed in different settings and consequently for different profession groups. Therefore, it would be interesting to develop multidisciplinary, on the job training to tackle common, everyday challenges that professionals, working in residential facilities, as well as PCN, are confronted with in their care for DP.…”

Section: Recommendationsmentioning

confidence: 99%

Care, communication and educational needs of primary care nurses to treat disabled patients

Claes

Storms

Moermans

2016

JNEP

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Introduction: In the northern part of Belgium, 21,518 of 129,021 disabled patients (DP) were waiting to receive residential care. Due to waiting lists for DP, Belgian government promotes a shift towards primary care. This shift results in specific needs for primary care professionals (general practitioners, primary care nurses [PCN] and informal caregivers). The objective of this research was to detect nursing care, communication and educational needs of PCN to treat their DP and their informal caregivers. Methods: A questionnaire was constructed by a multidisciplinary team of primary care professionals (4 general practitioners and 20 PCN) in different consensus meetings. Disabilities are defined as physical and/or intellectual impairment. The questionnaire was sent electronically to participants. Analysis is performed using SPSS 22.0. Results: 1547 questionnaires were mailed, 617 PCN responded (response rate = 40%). PCN are delivering care to 16 patients (+/-10) of which 5 DP (+/-6). 408 PCN have contact with at least half of informal caregivers. Most PCN (n = 582) report overburdening of informal caregivers due to an overload of tasks (72%). Personal hygiene and administering medication are most frequent administered care. Communication with DP and primary health care professionals is evaluated as very good. Most reported educational needs are dealing with behavioral problems (84%), functional loss (84%) and acquired brain injury (74%). There is no significant difference in educational needs of PCN nursing exclusively at home versus at least in residential care facilities. Conclusion: PCN prefer education on dealing with behavioral problems, which corresponds to previous studies. An educational program can be designed to ensure PCN have necessary skills to ensure high quality care for DP and a reduced overburdening of informal caregivers.

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Active involvement of learning disabilities service users in the development and delivery of a teaching session to pre-registration nurses: Students' perspectives

Cited by 13 publications

References 35 publications

Communicating about death and dying: Developing training for staff working in services for people with intellectual disabilities

Communicating about death and dying: Developing training for staff working in services for people with intellectual disabilities

Primary care nurses in a local Belgian setting: Responding to healthcare needs of people with disabilities

Care, communication and educational needs of primary care nurses to treat disabled patients

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