Achieving advance care planning in diverse, underserved populations

Wicks, Mona; Alejandro, Jose; Bertrand, D.; Boyd, Carol J.; Coleman, Christopher Lance; Haozous, Emily A.; Meade, Cathy D.; Meek, Paula

doi:10.1016/j.outlook.2018.04.001

Cited by 10 publications

(7 citation statements)

References 11 publications

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“…In sum, the current ACP models have not been proven effective in improving patient outcomes or aligning treatments to patient preferences; this lack of evidence was even more pronounced within vulnerable populations. Recognizing this, the American Academy of Nursing developed an ACP policy brief in 2018 highlighting obvious gaps related to ACP needs of ethnic minority, under-resourced, veterans, and lesbian, gay, bisexual, transgender, and queer (LGBTQ) Americans, in addition to persons with disabilities and residing in geographically isolated regions (Wicks et al, 2018). ACP models must be adaptable to address the unique needs of diverse populations.…”

Section: Discussionmentioning

confidence: 99%

“…The need to magnify ACP endeavors, nurses' ubiquitous involvement with patients dealing with serious illness (Singer, Goebel, Kim, Sydney, & Lorenz, 2016), and the advocacy focus of nursing has caused national nursing organizations to encourage nurses to increase our national ACP efforts; both the American Nurses Association and the Hospice & Palliative Nurses Association (HPNA) endorse that nurses lead in the promotion and facilitation of ACP to advocate for patient-and family-centered care (American Nurses Association Professional Issues (American Nurses Association Professional Issues Panel 2017; Hospice and Palliative Nurses Association, 2017). The American Academy of Nursing recognizes the importance of nurses at the local, state, territorial, and national level to bridge disparities in ACP (ANA Center for Ethics & Human Rights, 2016; Wicks et al, 2018). A report commissioned by the Robert Wood Johnson Foundation as background for the National Academy of Medicine committee on the Future of Nursing 2020À2030 (National Academy of Sciences, Engineering, and Medicine, 2021) has called for nurses to utilize their history, size, and well-earned trust to tackle the unmet healthcare needs of this century (American Association of Colleges of Nursing, 2019a;Pittman, 2019).…”

Section: Introductionmentioning

confidence: 99%

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A scoping review of nurse-led advance care planning

et al. 2022

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

A scoping review of nurse-led advance care planning

et al. 2022

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“…To make matters worse, difficulties in ACP completions put vulnerable populations at risk. It has been shown for years that underserved populations, including older people living alone or in poor living condition are less likely to discuss or carry out ACP, which may result in these individuals receiving end‐of‐life care that is unwanted or not aligned with their values 51–54 …”

Section: Discussionmentioning

confidence: 99%

Implementation of advance care planning amid the COVID‐19 crisis: A narrative review and synthesis

Hirakawa

Saif‐Ur‐Rahman

Aita

et al. 2021

Geriatrics Gerontology Int

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Advance care planning is considered an important issue in end‐of‐life care for older adults. The ongoing COVID‐19 pandemic has interrupted the healthcare system and end‐of‐life care tremendously. This review aimed to explore available articles on advance care planning amid the pandemic and analyze qualitatively. PubMed and Google Scholar were searched on February 2021 using the relevant keywords. Retrieved articles were screened applying inclusion criteria. Any article describing advance care planning during the COVID‐19 era was included. A qualitative content analysis was conducted. In total, 20 articles incorporating 5542 participants from five countries were included. Among the articles, eight were primary studies and the rest were perspective papers or secondary analysis. From the qualitative content analysis six major themes emerged namely palliative care, lack of coordination among acute care, hospital palliative care, and long‐term care, community‐based advance care planning, real‐time dissemination of scientific information on the regional pandemic situation, online system and legislation. The COVID‐19 pandemic had decreased the uptake of advance care planning. Findings of the review suggested simplification of the procedure regarding advance care planning, implementation of community‐based advance care planning and utilization of online resources to enhance the process. Geriatr Gerontol Int 2021; 21: 779–787.

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“… 44 Compassionate Communities are asked to think critically about how experiences of trauma from past, present and future contexts are considered and supported within conversations about death and dying, advanced care planning, goals, wishes and belief activities and experiences of grief and loss. 47 , 48 …”

Section: Discussionmentioning

confidence: 99%

Centering sexual and gender diversity within Compassionate Communities: insights from a community network of LGBTQ2S+ older adults

et al. 2021

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Background and Rationale: The Compassionate Communities movement emphasizes the importance of illness, disability, dying, caregiving, and grief across the lifespan and highlights the communal responsibility of caring for one another. There is a need to recognize and incorporate the needs of diverse communities within this movement and research on dying, caregiving and grief. An important axis of this diversity is related to individuals’ sexual orientation and gender identity. Methods: As part of the early phases of Healthy End of Life Project Ottawa, a Compassionate Communities, community-based, participatory action research project, we held focus groups with older members of lesbian, gay, bisexual, transgender, queer, and two-spirit communities. Nine older lesbian, gay, bisexual, transgender, queer, and two-spirit people participated in the focus groups (mean age = 72 years). Data were analysed using an inductive, reflexive thematic approach. Results: Through an iterative analysis process, we identified themes related to lifecourse experiences of trauma, the need for safety within care contexts, the importance of relationships and connection, as well as participants’ ability to ask for and receive help. A core tenet of Compassionate Communities involves responding to the needs of diverse communities with respect to aging, end-of-life, and grief. Our findings emphasize the importance of incorporating the voices of diverse sexual and gender identities and promoting health equity within Compassionate Community initiatives.

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Achieving advance care planning in diverse, underserved populations

Cited by 10 publications

References 11 publications

A scoping review of nurse-led advance care planning

A scoping review of nurse-led advance care planning

Implementation of advance care planning amid the COVID‐19 crisis: A narrative review and synthesis

Centering sexual and gender diversity within Compassionate Communities: insights from a community network of LGBTQ2S+ older adults

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