Accomplishing Care at Home for People With Dementia: Using Observational                 Methodology

Briggs, Kate; Askham, Janet; Norman, Ian; Redfern, Sally

doi:10.1177/1049732302239604

Cited by 24 publications

(20 citation statements)

References 15 publications

(20 reference statements)

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“…While interviews rely on the participants' ability to recall, retell and reflect upon their experiences (Patton, 1987), the method of accumulating both participant and non-participant observations adds a dimension that has been acknowledged to be particularly important in this population (Briggs, Askham, Norman, & Redfern, 2003;Hubbard et al, 2003;Nygård & Borell, 1998;Nygård & Starkhammar, 2003;Nygård & Ö hman, 2002). Qualitative observations have also been recommended as the best way of generating knowledge on usage-centered design (Kanis, 1997), and in particular on how to improve the design of environments for people with dementia (Lawton, 2001).…”

Section: Study Limitationsmentioning

confidence: 98%

The use of everyday technology by people with dementia living alone: Mapping out the difficulties

Nygård

Starkhammar

2007

Aging & Mental Health

156

133

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While the technological development available to society is taking quantum leaps, we have little knowledge of how people with mild dementia manage to cope with familiar technology at home, such as television and electronic household machines, or new technology, such as remote controls, cell phones and computers. As this technology represents a potential problem area, the aim of this qualitative, exploratory study was to identify and characterize difficulties with and hindrances to using everyday technology, as they appeared in data, for persons with early stage dementia. Eight participants with dementia were included in an extensive data collection consisting of repeated interviews and observations made in the home; the data were analyzed adopting a constant comparative approach. The results exhibit a taxonomy of difficulties in four domains, encompassing conditions that interfere with the use of the technology, deficiencies in knowledge and in the communication between users and their technology, and limitations in the use of instructions. Typically, difficulties appeared in complex combinations. They arose when familiar technology was being used, and not only when new technology was to be used. This raised concerns about the need these people have for support in home and in society. Further research is needed to validate the findings.

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Section: Study Limitationsmentioning

confidence: 98%

The use of everyday technology by people with dementia living alone: Mapping out the difficulties

Nygård

Starkhammar

2007

Aging & Mental Health

156

133

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“…Briggs et al . (32) concluded that observations in the homes of people with dementia enable the researcher to access phenomena that are obscured, such as non-verbal cues. In our studies of the difficulties that people with dementia encounter in everyday life, and of the strategies they use in response, observations provided invaluable data as many of the difficulties and response strategies were shown explicitly while actually performing (36 Á41).…”

Section: Accessing Unknown Dimensionsmentioning

confidence: 98%

“…From their experiences of collecting combined data in the homes of people afflicted with dementia and their families, Briggs et al . (32) pointed out some of these dilemmas: being asked about information from medical records, and not being able to observe certain care-giving situations of a private nature. On the whole, most observational studies in the field of dementia seem to have involved people in the moderate to severe stages of the disease and their caregivers.…”

Section: The Contribution Of Observationmentioning

confidence: 98%

“…Most studies that have included people with dementia as informants have done so by using the ethnographic approach, with the aim being to understand the complexity of a situation in a particular context (e.g. 16,31,32). Some investigations have included other informants to support the person with dementia in interviews (e.g.…”

Section: Challenges In Collecting Data From People With Dementiamentioning

confidence: 99%

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How can we get access to the experiences of people with dementia?

Nygård

2006

Scandinavian Journal of Occupational Therapy

165

173

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This paper suggests and discusses a methodological approach that aims to facilitate the inclusion of people with dementia in research where the ambition is to better understand their experiences. People with dementia have commonly not been included as informants in research as their cognitive deficits have been regarded as a hindrance. Moreover, in the qualitative research tradition, most inquiries rely on data obtained from interviews, thereby requiring communication and verbal skills, which are skills that are affected early in the cause of dementia. Consequently, the considerably under-researched area of how dementia is experienced and managed from the perspective of those afflicted has long been put aside. This paper suggests that a combination of qualitative observations and adapted interviews may make it possible for people with dementia to participate as research informants. Issues concerned with creating a relationship with informants with dementia and helping them to elicit their experiences are elaborated and discussed. Some suggestions are made concerning how the context can be used for this intent, and how the observations and interviews can be adapted to the informants with dementia.

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“…During the observations, the author and the research assistant took notes by hand. A standardised observational recording schedule was not developed for the purposes of this study, because the aim was to provide a picture of the real-life naturalistic setting (Briggs et al 2003) and to maintain flexibility in recording unexpected topics. The research assistant wrote down the conversation between the gynaecologist and the patient in as much detail as possible, while the author made notes about other activities during the visit.…”

Section: Methodsmentioning

confidence: 99%

Pregnancy prevention, reproductive health risk and morality: a perspective from public-sector women's clinics in St. Petersburg, Russia

Larivaara

2010

Critical Public Health

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The use of reliable contraception in Russia remains lower and rates of induced abortion higher than in Western Europe, even though reliable contraception has been accessible for nearly two decades now. Due to the organisation of women's health services in Russian cities, gynaecologists can have a major influence on women's contraceptive choices, but little is known about their attitudes and practices in terms of contraception promotion. This study draws on qualitative observation and interview data of gynaecologists in public-sector women's clinics in St. Petersburg, Russia's second largest city in order to investigate their perceptions of various birth control methods and contraception counselling. Also in focus are clinical counselling practices. The results reveal that gynaecologists in St. Petersburg had up-to-date knowledge of the latest contraception methods and that they were willing to promote their use. They took an active role in counselling, although the coverage was not full. The depth of counselling varied considerably and counselling practices were mainly paternalistic. Yet, in about a third of the observed cases, patient preferences were incorporated into clinical decision-making. The gynaecologists perceived reliable contraception essentially as a means of fostering future fertility and avoiding harmful health consequences of induced abortions. Using reliable contraception was equated with being a responsible and morally respectable woman. The results suggest that links between health, risk and morality are vividly present in contraception counselling in St. Petersburg, and that reliable contraception has become a powerful source of new moral demands for individual women to foster their reproductive function.

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Accomplishing Care at Home for People With Dementia: Using Observational Methodology

Cited by 24 publications

References 15 publications

The use of everyday technology by people with dementia living alone: Mapping out the difficulties

The use of everyday technology by people with dementia living alone: Mapping out the difficulties

How can we get access to the experiences of people with dementia?

Pregnancy prevention, reproductive health risk and morality: a perspective from public-sector women's clinics in St. Petersburg, Russia

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