Access to Dental Visits and Correlates of Preventive Dental Care in Children with Autism Spectrum Disorder

Fenning, Rachel M.; Steinberg-Epstein, Robin; Butter, Eric; Chan, James; McKinnon-Bermingham, Kelly; Hammersmith, Kimberly J.; Moffitt, Jacquelyn; Shui, Amy; Coury, Daniel L.; Wang, Paul P.; Kuhlthau, Karen

doi:10.1007/s10803-020-04420-8

Cited by 13 publications

(8 citation statements)

References 25 publications

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“…Overall, the findings of the studies [ 56 , 57 , 58 , 59 ] successfully revealed strategies to optimize the care of autistic individuals in medical settings: pre-visit planning, anticipating, and reducing sources of distress, facilitating a patient- and family-centered multidisciplinary approach, employing environmental interventions, and using psychopharmacologic treatments. A growing body of literature is devoted to the management of specific needs such as dental or pre-intervention care [ 60 , 61 , 62 ]. Haydon and colleagues [ 63 ] provided reasonable adjustment in any healthcare service to improve the challenges of autistic people.…”

Section: Resultsmentioning

confidence: 99%

Building Bricks of Integrated Care Pathway for Autism Spectrum Disorder: A Systematic Review

Fulceri

Gila

Caruso

et al. 2023

IJMS

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An integrated plan within a defined care pathway for the diagnosis, continuative interventions, and periodic redefinition of care of autistic people is essential for better outcomes. Challenges include delivering services across all domains or life stages and effective coordination between health/social care providers and services. Further, in the ‘real world’, service provision varies greatly, and in many settings is significantly weighted towards diagnosis and children’s services rather than treatment and support or adult care. This study aims to identify existing care pathways for Autism Spectrum Disorder (ASD) from referral to care management after diagnosis. The study reviewed the international literature in PubMed and PsycInfo databases and collected information on care for autistic individuals from the Autism Spectrum Disorders in Europe (ASDEU) project partners. The study found that published data mainly focused on specific components of care pathways rather than an integrated and coordinated plan of care and legislative indications. They should be aimed at facilitating access to the services for support and the inclusiveness of autistic individuals. Given the need for care addressing the complex and heterogeneous nature of ASD, effective coordination between different health/social care providers and services is essential. It is also suggested that research priority should be given to the identification of an integrated care pathway ‘model’ centered around case management, individualization, facilitation, support, continuous training and updating, and quality management.

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Section: Resultsmentioning

confidence: 99%

Building Bricks of Integrated Care Pathway for Autism Spectrum Disorder: A Systematic Review

Fulceri

Gila

Caruso

et al. 2023

IJMS

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“… 46 Parents/carers may have to help their autistic children with a range of daily living tasks and can be overwhelmed when meeting their children's needs, such that OH care falls low on the priority list. 41 , 46 Sensory sensitivities, 11 , 25 , 26 , 28 , 31 , 34 , 36 , 37 , 40 , 41 , 42 , 43 , 44 , 45 , 46 , 47 , 48 cognitive and physical challenges 33 , 49 , 50 and the degree/level of required support and adjustment 49 were all identified as barriers to dental care access. Children may also experience fear and/or dental anxiety.…”

Section: Resultsmentioning

confidence: 99%

Factors influencing oral health behaviours, access and delivery of dental care for autistic children and adolescents: A mixed‐methods systematic review

Erwin

Paisi

Neill

et al. 2022

Health Expectations

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“…However, provision of appropriate and timely access to dental services remains a critical need for children with ASD, which may be remedied in part through adoption of comprehensive care coordination. 17 Poor oral hygiene is posited to underlie oral health problems in children with ASD. 6,8 Although mediation results were non-significant, confidence intervals included potentially substantial effects for child behavior problems, suggesting the possibility that improved behavior management may reflect a core treatment mechanism.…”

Section: Discussionmentioning

confidence: 99%

“…11 Multiple factors may impede dental care for children with ASD, including child ASD symptoms, comorbid intellectual disability (ID), communication difficulties, and challenging behaviors. 1,[15][16][17] with low income and racial or ethnic minority status may compound difficulties obtaining dental care. 1,15 Dental interventions for children with ASD have predominantly focused on improving compliance with dental office procedures.…”

mentioning

confidence: 99%

Parent Training for Dental Care in Underserved Children With Autism: A Randomized Controlled Trial

Fenning

Butter²,

Macklin

et al. 2022

Pediatrics

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OBJECTIVES Children with autism spectrum disorder (ASD) have difficulty participating in dental care and experience significant unmet dental needs. We examined the efficacy of parent training (PT) for improving oral hygiene and oral health in underserved children with ASD. METHODS Families of Medicaid-eligible children with ASD (ages 3 to 13; 85% male, 62% with intellectual disability) reporting difficulty with dental care participated in a 6-month randomized controlled trial comparing PT (n = 60) to a psychoeducational Toolkit (n = 59). Primary outcomes were parent-reported frequency of twice-daily tooth brushing and dentist-rated visual plaque. Secondary outcomes included parent-reported child behavior problems during home oral hygiene and dentist-rated caries. Dentists were blind to intervention assignment. Analyses were intent-to-treat. RESULTS Retention was high at post-treatment (3 months; 93%) and at 6-month follow-up (90%). Compared to the Toolkit, PT increased twice-daily tooth brushing at 3 months (78% PT vs. 55% Toolkit, P<.001) and 6 months (78% PT vs. 62% Toolkit, P=.002), and reduced plaque at 3 months (-0.19, 95% CI, -0.36 to -0.02, P=.03). PT decreased child problem behaviors at 3 (-0.90, 95% CI, -1.52 to -0.28, P=.005) and 6 months (-0.77, 95% CI, -1.39 to -0.14, P=.02) relative to the Toolkit. Children receiving PT also developed comparatively fewer caries over 3 months (ratio of rate ratios = 0.73, 95% CI, 0.54 to 0.99, P=.04). CONCLUSIONS Parent training represents a promising approach for improving oral hygiene and oral health in underserved children with ASD at risk for dental problems.

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Access to Dental Visits and Correlates of Preventive Dental Care in Children with Autism Spectrum Disorder

Cited by 13 publications

References 25 publications

Building Bricks of Integrated Care Pathway for Autism Spectrum Disorder: A Systematic Review

Building Bricks of Integrated Care Pathway for Autism Spectrum Disorder: A Systematic Review

Factors influencing oral health behaviours, access and delivery of dental care for autistic children and adolescents: A mixed‐methods systematic review

Parent Training for Dental Care in Underserved Children With Autism: A Randomized Controlled Trial

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