Access to Care for Youth with Special Health Care Needs in the Transition to Adulthood

Lotstein, Debra; Inkelas, Moira; Hays, Ron D.; Halfon, Neal; Brook, Robert H.

doi:10.1016/j.jadohealth.2007.12.013

Cited by 111 publications

(72 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Eighteen percent of youth aged 12-17 in the USA are defined as having a special health-care need, meaning they have a chronic physical, medical, emotional, or developmental condition that requires a more intensive use of health-care and related services. Emerging adults with chronic conditions are at risk for a number of problems during transition to adulthood, including experiencing gaps in needed medical and related services and gaps in health insurance (Lotstein et al 2008, Reiss et al 2005). Below we review the impact of several specific chronic conditions on the growth trajectory during emerging adulthood.…”

Section: Trajectories During Emerging Adulthood For Emerging Adults Wmentioning

confidence: 99%

Emerging Adulthood as a Critical Stage in the Life Course

Wood

Crapnell

Lau

et al. 2017

Handbook of Life Course Health Development

330

276

View full text Add to dashboard Cite

Emerging adulthood, viewed through the lens of life course health development, has the potential to be a very positive developmental stage with postindustrial societies giving adolescents and emerging adults a greater opportunity for choice and exploration but also greater challenges with greater educational and social role requirements. The loss of supports and structures offered by schools, families, and child- and family-oriented health and social services means that the emerging adult must rely more on his/her own resources in a less structured environment. This increased agency in the context of less structure is occurring as the human brain is still developing higher-level capacities such as executive functioning. The person-context interactions during EA are many and complex, leading to multiple different pathways through emerging adulthood. Those with sufficient economic and adult supports as well as personal resources and maturity will be more likely to choose well and embark on a positive trajectory during EA. Those lacking these resources, or those with physical and mental health or intellectual disabilities, may struggle during this period and experience a negative trajectory in the spheres of education, vocation, relationships, and health status. The life course health science of EA requires more detailed and deeper analysis of the relationship between family, peers, and societal supports and personal internal resources in order to help promote successful developmental trajectories during EA.

show abstract

Section: Trajectories During Emerging Adulthood For Emerging Adults Wmentioning

confidence: 99%

Emerging Adulthood as a Critical Stage in the Life Course

Wood

Crapnell

Lau

et al. 2017

Handbook of Life Course Health Development

330

276

View full text Add to dashboard Cite

show abstract

“…[1][2][3][4][5][6][7][8] The health care transition (HCT) to adult medical care is an aspect of this process that remains a particular problem for YSHCN. 2,5,6,8 Although research shows that YSHCN encounter high rates of unmet needs in terms of HCT preparation, 5,8 they also experience significant gaps in access to care, delayed care, and lack of insurance coverage during HCT. 2,6 Substantial challenges in identifying adult primary care providers (PCPs) or adult specialists to whom they can transition have also been documented.…”

mentioning

confidence: 99%

“…2,5,6,8 Although research shows that YSHCN encounter high rates of unmet needs in terms of HCT preparation, 5,8 they also experience significant gaps in access to care, delayed care, and lack of insurance coverage during HCT. 2,6 Substantial challenges in identifying adult primary care providers (PCPs) or adult specialists to whom they can transition have also been documented. 9,10 The literature indicates that these transition processes may be especially difficult for youth whose special health care needs involve mental health, developmental disabilities, or intellectual disability.…”

mentioning

confidence: 99%

Health Care Transition Services for Youth With Autism Spectrum Disorders: Perspectives of Caregivers

et al. 2016

View full text Add to dashboard Cite

BACKGROUND AND OBJECTIVE: This paper seeks to describe the experience of youth with autism spectrum disorder (ASD) in making the health care transition (HCT) to adult care. METHODS:We surveyed 183 parents and guardians of youth with ASD, assessing the extent to which youth and families experienced and desired HCT services, their satisfaction with services, and obstacles to transition. Descriptive statistics were used to examine HCT measures and Fisher's exact and t tests assessed whether demographic or health measures were associated with service receipt. Any measures with a P value <.05 were included in a logistic regression model, with service receipt as the dependent variable. RESULTS:The receipt of transition services was low overall, with rates for individual services ranging from 3% to 33% and only 60% of the sample receiving any transition service. Despite these low rates, a majority of respondents reported wanting services (73.3%-91.6%), and satisfaction for received services was high (89%-100%). Regression analyses showed depression to be the only variable significantly associated with service receipt. Youth who were identified by their caregivers as having depression experienced a higher rate of transition service receipt than those not identified as having depression. CONCLUSIONS:Findings suggest that there is a great need to address the provision of HCT services for youth with ASD. Although families who received HCT services were generally satisfied, overall rates of service receipt were quite low, and those who were not provided with services generally desired them.

show abstract

“…8 These barriers can lead to unmet health care needs. [9][10][11] In Ohio, for example, most children living in households earning less than 200 percent of the federal poverty level are eligible to receive Medicaid insurance without meeting specific disability or other very-low-income eligibility requirements until their nineteenth birthday. 12 For those young people covered under a parent's job-based health insurance, the nineteenth birthday is also a time when many become ineligible for the coverage they have had.…”

mentioning

confidence: 99%

Ohio Study Shows That Insurance Coverage Is Critical For Children With Special Health Care Needs As They Transition To Adulthood

Goudie

Carle

2011

Health Affairs

View full text Add to dashboard Cite

Nearly 30 percent of young adults with special health care needs in Ohio lack health insurance, compared to 5 percent of the state's children with special health care needs. As children with such needs become too old for Medicaid or insurance through their parents' employer, they face great challenges in obtaining insurance. Lack of insurance is highly predictive of unmet needs, which in turn are predictive of costly hospital-based encounters. Young adults with special health care needs who are uninsured are more than twice as likely as their peers with insurance to forgo filling prescriptions and getting care and to have problems getting care. Even after insurance status is accounted for, young adults with special health care needs are more likely than children with such needs to not fill prescriptions because of cost and to delay or forgo needed care. This study demonstrates that continuous and adequate health insurance is vital to the continued wellbeing of children with special health care needs as they transition to young adulthood.

show abstract

Access to Care for Youth with Special Health Care Needs in the Transition to Adulthood

Cited by 111 publications

References 27 publications

Emerging Adulthood as a Critical Stage in the Life Course

Emerging Adulthood as a Critical Stage in the Life Course

Health Care Transition Services for Youth With Autism Spectrum Disorders: Perspectives of Caregivers

Ohio Study Shows That Insurance Coverage Is Critical For Children With Special Health Care Needs As They Transition To Adulthood

Contact Info

Product

Resources

About