Access to and Satisfaction With School and Community Health Services for US Children With ASD

Montes, Guillermo; Halterman, Jill S.; Magyar, Caroline I.

doi:10.1542/peds.2009-1255l

Cited by 101 publications

(76 citation statements)

References 19 publications

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“…8,9 Caregivers of children with ASD who are from racial or ethnic minority groups experience even greater difficulty than nonminority caregivers obtaining care. [10][11][12][13][14] Authors of these studies finding racial or ethnic differences in type and quality of care suggest that these differences may not result solely from health care system or provider factors (eg, availability of providers, sensitivity of providers) but also from parents' help-seeking behaviors. [15][16][17] Perceived need for a service precedes help-seeking behaviors.…”

Section: Discussionmentioning

confidence: 99%

Differences in Perceived Need for Medical, Therapeutic, and Family Support Services Among Children With ASD

2016

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OBJECTIVE: Identifying racial and ethnic differences in perceived need for treatment among families of children with autism spectrum disorder (ASD) will improve understanding of disparities in care seeking. We described racial and ethnic differences in perceived need for services that children with ASD and their families frequently use. METHODS:We conducted bivariate analyses of racial and ethnic categories and perceived need for 6 common services used by children with ASD as found in the 2005 to 2006 (n = 2123) and the 2009 to 2010 (n = 3055) National Survey of Children With Special Health Care Needs data sets. Multivariate logistic regressions within concatenated data sets were conducted to examine associations between racial and ethnic category and perceived service needs while controlling for predisposing, enabling, and child factors. RESULTS:Compared with caregivers of white non-Hispanic children with ASD, caregivers of Hispanic children reported less need for prescription medications in adjusted multivariate analyses. Caregivers of black non-Hispanic children with ASD reported less need for prescription medications and for child and family mental health services than caregivers of white non-Hispanic children. Both English-speaking Hispanic caregivers and black nonHispanic caregivers reported greater need for occupational, speech, and physical therapy than white non-Hispanic caregivers. No racial or ethnic differences were found in perceived need for specialty medical care or respite care. CONCLUSIONS:Caregivers of children with ASD from different racial and ethnic backgrounds may differentially perceive need for different types of care. Their perceptions may in turn affect how they prioritize and seek care, independent of their child's specific needs. Dr Benevides conceptualized and designed the study, analyzed the data, and drafted the initial manuscript; Dr Carretta contributed to the study design, data management, data analysis, and interpretation of the fi ndings and critically reviewed and revised the manuscript; Dr Mandell contributed to the study design and interpretation of the fi ndings and critically reviewed and revised the manuscript; and all authors approved the fi nal manuscript as submitted. [2][3][4] However, caregivers of children with ASD have reported that obtaining appropriate and timely care is often difficult and costly, 5 and many are dissatisfied with the process of obtaining care. 6,7 Caregivers of children with ASD report more unmet needs for a variety of services than caregivers of children with other emotional, developmental, or behavioral difficulties. 8,9 Caregivers of children with ASD who are from racial or ethnic minority groups experience even greater difficulty than nonminority caregivers obtaining care. [10][11][12][13][14] Authors of these studies finding racial or ethnic differences in type and quality of care suggest that these differences may not result solely from health care system or provider factors (eg, availability of providers, sensitivity of provide...

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Section: Discussionmentioning

confidence: 99%

Differences in Perceived Need for Medical, Therapeutic, and Family Support Services Among Children With ASD

2016

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“…Families participating in the National Survey of Children with Special Health Care Needs whose children had ASD reported 3.39 times more difficulty getting therapeutic services than other CSHCN and 2.65 more dissatisfaction with those services (Montes et al 2009). The major barriers described by families related to information transfer and communication between providers.…”

Section: Parent Satisfaction and The Medical Homementioning

confidence: 99%

Autism and Pediatric Practice: Toward a Medical Home

Hyman

Johnson

2012

J Autism Dev Disord

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The pediatrician sees a child for 11 well child visits by their third birthday. The provision of continuous primary care supports development of trust with parents, provides opportunity for screening and surveillance of autism spectrum disorders (ASD), allows monitoring the progress of children requiring therapy, and a framework to support and educate families. Families of children with ASD are less likely to report that they receive care in a Medical Home, a practice providing coordinated, accessible, continuous, culturally competent care. They report less access to specialty and family focused care compared to other children with special health care needs. It is a major challenge to identify and effect the solutions necessary to bring Medical Home care to all children with ASD.

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“…Families of children with ASD consistently report challenges with intervention and service delivery, including difficulty obtaining services (Kohler 1999;Sperry et al 1999), limited availability and accessibility of services (Kohler 1999;Little 2003; Montes et al 2009; Vohra et al 2014), and dissatisfaction with quality of services (Montes et al 2009). Kohler (1999) surveyed parents of children with ASD and found all families identified at least one issue with service delivery ranging from delays in accessing intervention to challenges with payment for services received.…”

Section: Introductionmentioning

confidence: 99%

“…Vohra et al (2014) analyzed data from the 2009-2010 National Survey of Children with Special Health Care Needs and concluded parents of children with ASD were significantly more likely to indicate limited collaboration and decision making, problems accessing services, and lack of service availability than parents of children with other developmental disabilities or mental health conditions. Parents of children with ASD not only reported greater difficulty accessing services, but also greater dissatisfaction with both school and community related services than parents of children with other developmental disabilities (Montes et al 2009). …”

Section: Introductionmentioning

confidence: 99%

Service Delivery Experiences and Intervention Needs of Military Families with Children with ASD

Davis

Finke

Hickerson

2016

J Autism Dev Disord

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Abstract:The purpose of this study was to describe the experiences of military families with children with autism spectrum disorder (ASD) specifically as it relates to relocation. Online survey methodology was used to gather information from military spouses with children with ASD. The finalized dataset included 189 cases. Descriptive statistics and frequency analyses were used to examine participant demographics and service delivery questions. Results indicated the larger sample of military spouses largely confirmed the experiences reported qualitatively in previous studies and contributed information that was previously unknown about variables associated with the access, availability, quality, and frequency of intervention services for military families with children with ASD.

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Access to and Satisfaction With School and Community Health Services for US Children With ASD

Abstract: Parents of children with ASDs reported less access to and more dissatisfaction with school and community health services than parents of other CSHCN. An increased supply of appropriate services with qualified providers for children with ASDs is needed in the United States.

Cited by 101 publications

References 19 publications

Differences in Perceived Need for Medical, Therapeutic, and Family Support Services Among Children With ASD

Differences in Perceived Need for Medical, Therapeutic, and Family Support Services Among Children With ASD

Autism and Pediatric Practice: Toward a Medical Home

Service Delivery Experiences and Intervention Needs of Military Families with Children with ASD

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