Acceptability of dementia screening in primary care patients

Holsinger, Tracey; Boustani, Malaz; Abbot, David; Williams, John W

doi:10.1002/gps.2536

Cited by 41 publications

(52 citation statements)

References 27 publications

(33 reference statements)

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“…The scale that explicitly measured acceptance of Alzheimer's disease screening showed good internal consistency (Cronbach's α = 0.93), which is again in line with other studies (Boustani et al, 2008;Holsinger et al, 2011).…”

Section: Discussionsupporting

confidence: 82%

“…This is somewhat lower than in other studies, which had been conducted in the USA: For example, Fowler et al (2012) reported that 89.7% of the participating primary care patients agreed to dementia screening after having completed the PRISM-PC. Moreover, in a study of Holsinger et al (2011) 81% of primary care patients stated that they wanted to know if they developed dementia. However, as it has been shown before (Justiss et al, 2009), patients' attitudes of dementia screening might differ across different countries.…”

Section: Discussionmentioning

confidence: 96%

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Acceptance of and attitudes towards Alzheimer's disease screening in elderly German adults

Braun

Reiner

Tegeler

et al. 2013

Int. Psychogeriatr.

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This study suggests that acceptance can reliably be assessed with the section "Acceptance of Alzheimer's disease screenings" of the German PRISM-PC questionnaire. Furthermore, the majority of elderly German adults would like to be screened for Alzheimer's disease regularly, which might be an effective starting point in order to implement routine dementia screenings. As the sample is a convenience sample of (relatively) healthy older adults, generalizability of these results is limited.

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Section: Discussionsupporting

confidence: 82%

Section: Discussionmentioning

confidence: 96%

Acceptance of and attitudes towards Alzheimer's disease screening in elderly German adults

Braun

Reiner

Tegeler

et al. 2013

Int. Psychogeriatr.

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“…A much higher acceptance rate was reported for primary care patients in the US; 81% of patients aged 50 years or older indicated that they would want to be screened to determine whether they are developing dementia [15]. Furthermore, the acceptance rate in the latter study increased to 86% after exposure to the possible risks and benefits of a screening.…”

Section: Discussionmentioning

confidence: 94%

Attitudes of the German General Population toward Early Diagnosis of Dementia – Results of a Representative Telephone Survey

et al. 2012

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BackgroundEarly detection of dementia has clearly improved. Even though none of the currently available treatments for the most common form of dementia, Alzheimer’s dementia, promises a cure, early diagnosis provides several benefits for patients, caregivers, and health care systems. This study aimed to describe attitudes toward early diagnosis of dementia in the German general population.MethodsA representative telephone survey of the German population aged 18+ years (n = 1,002) was conducted in 2011.ResultsThe majority of respondents (69%) would be willing to be examined for early diagnosis of dementia. Almost two thirds reported that they would prefer their general practitioner (GP) as the first source of professional help. More than half of the respondents (55%) stated their belief that dementia could be prevented. Respondents mostly indicated psychosocial prevention options.ConclusionsOur findings suggest that the general population in Germany is very open to early diagnosis of dementia; however, this seems connected with large expectations on the effectiveness of prevention options. Dementia awareness campaigns may be employed to carefully inform the public about the prevention options currently available and their efficacy. To exploit GPs’ potential as a gatekeeper for early detection of dementia, their ability to identify patients with antecedent and mild stages of the disease must be improved.

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“…Where data is available [22, 26, 28, 30, 33, 34] it seemed that caregivers and the general public believe there are a number of benefits to screening for dementia, including treatment and financial benefits. However, in one study [35] nearly half of the patients who screened positive for cognitive impairment refused a diagnostic evaluation.

“I’m over 50 with no children.

…”

Section: Resultsmentioning

confidence: 99%

Attitudes and preferences towards screening for dementia: a systematic review of the literature

et al. 2015

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BackgroundPopulation screening might provide a mechanism to enable early detection of dementia. Yet the potential benefits, harms or acceptability of such a large-scale intervention are not well understood. This research aims to examine the attitudes and preferences of the general public, health care professionals, people with dementia and their carers towards population screening for dementia.MethodsA systematic review of the international literature was undertaken. A search of fifteen bibliographic databases was conducted (up to 12 July 2012; no language restriction) using terms related to dementia, screening, specific screening tools, case finding, and attitudes and preferences; genetic screening and biomarkers were excluded. All study designs were included except opinion-based papers. Included papers were doubly quality assessed and thematically analysed using NVivo.Results29,910 papers were identified of which 29 met the inclusion criteria. We identified seventeen themes relating to the 3 phases of the screening process (pre-, in- and post-screen) – none emerged as more of a facilitator than a barrier to the acceptance of dementia screening. Seven themes emerged in relation to the patient, carer and general population: existing health state; lifestyle and life view; awareness of dementia; role of clinician; communication; benefit; and role of the family. Ten themes emerged in relation to the clinician and healthcare professional: patient’s existing health and comorbidities; awareness of dementia; confidence; duration of patient contact; suitability of screening tool; cost; disclosure; time; treatment and prognosis; and stigma.ConclusionsAs for all screening programmes, screening for dementia raises complex issues around preference and choice for clinicians and the public, and it is unclear what specific factors promote or reduce screening acceptance the most. Overall, the level of evidence is low, few large scale studies have been undertaken and none were conducted in representative samples, all affecting the generalizability of identified themes across healthcare contexts. Nevertheless, our findings suggest that population screening for dementia may not be acceptable to either the general public or health care professionals, and highlight where focused efforts are needed to gain insights into dementia specific issues.Electronic supplementary materialThe online version of this article (doi:10.1186/s12877-015-0064-6) contains supplementary material, which is available to authorized users.

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Acceptability of dementia screening in primary care patients

Abstract: Primary care patients in two different health care systems indicated they would like to be screened for dementia. The SAPH was easy to use and contains cohesive domains.

Cited by 41 publications

References 27 publications

Acceptance of and attitudes towards Alzheimer's disease screening in elderly German adults

Acceptance of and attitudes towards Alzheimer's disease screening in elderly German adults

Attitudes of the German General Population toward Early Diagnosis of Dementia – Results of a Representative Telephone Survey

Attitudes and preferences towards screening for dementia: a systematic review of the literature

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