Abstract PS9-60: Insomnia is the most disturbing symptom during breast cancer treatment: Results from a Brazilian cohort using a patient-reported outcomes: PRO tool - Tummi App

Abstract

Background: PRO have been shown to enhance our ability to communicate with patients and to control their symptoms. There are data that suggest a positive impact on survival when there is active participation of the patient in the reporting of symptoms. However, PRO data are not commonly collected in routine cancer care due to challenges like cost and due to the obsolete technology of many existing electronic health records. Methods: in an effort to bridge the unmet needs of PRO collection and integration into routine cancer care, we developed a symptom monitoring and management system that was launched as a free mobile app in August, 2018. Tummi app is designed for reporting 28 symptoms based on the National Cancer Institute’s Common Terminology Criteria for Adverse Events. Symptoms are reported in a 3-point scale (mild, moderate, severe) and patient reported an overall well-being scale represented by emojis. Tummi has the ability to record symptoms, summarize the reporting in physical printout, and automatically store and analyze the input symptoms into graphical interpretations. Results: since august 2018, 281 patients with the diagnosis of invasive breast cancer, during their treatment, downloaded and enjoyed the app. The most common side effect registered was back pain. When assessing the most intense symptoms reported by patients (grade 3), insomnia appears as the most remembered, followed by headache. Regarding general well-being reports, patients totaled 4501 records. Of these, at 62.40% of the time the patients were well, while at 33.16% they were average and at 4.44% they felt bad. Conclusions: in this group of patients evaluated by the Tummi App, insomnia is the most disturbing symptom. Although it appears in the literature as quite prevalent in this scenario, we see that its approach to day-by-day oncology clinics is far from ideal. We believe that the monitoring by a PRO tool can lead to a greater effort to improve this symptom that has such an impact on the quality of life of our patients. Citation Format: Alessandra Menezes Morelle, Fernando Castilho Venero, Rafael DalPonte Ferreira, Rommel FabricioPereirada Silva, Pedro Tofani Sant'Anna. Insomnia is the most disturbing symptom during breast cancer treatment: Results from a Brazilian cohort using a patient-reported outcomes: PRO tool - Tummi App [abstract]. In: Proceedings of the 2020 San Antonio Breast Cancer Virtual Symposium; 2020 Dec 8-11; San Antonio, TX. Philadelphia (PA): AACR; Cancer Res 2021;81(4 Suppl):Abstract nr PS9-60.