Abstract P871: Community and Academic Partner Creation of a Community-Informed, Behavior Theory-Based Music Video to Encourage Stroke Preparedness During the Covid-19 Pandemic

Abstract

Background: Black Americans comprise 14% of Michigan’s population, but 30% of the COVID-19 cases and 40% of deaths. The accumulating national quantitative data on decreased presentation and increased pre-hospital delay during the pandemic confirmed our Flint, MI community partners’ impression of a decline in stroke presentations. Thus, we set out to understand the community’s perception of seeking acute stroke care during the pandemic which will inform the development and dissemination of public health messaging in a predominantly Black American community. Method: To honor social distancing orders, we conducted semi-structured interviews based on the Theory of Planned Behavior via HIPAA-approved teleconferencing with community members. Due to the clinical and public health implications of the pandemic, we employed a rapid assessment approach to streamline qualitative data analysis. Results were used to inform the creation of a music video. Lyrics were written by the academic team, set to a soundtrack and sung by a community partner. The music video theme was conceptualized by the academic team and performed by both academic and community partners. Results: We reached thematic saturation after completing 15 semi-structured interviews with Flint, MI community members. Mean duration of interviews was 40 minutes. Eighty percent of participants were Black; median age was 50; 74% were women and 47% reported some college or above. There was an unfavorable attitude towards seeking emergent stroke care via ambulance and at the hospital, due to concerns for viral transmission at the hospital, hospital capacity and ability to triage, and quality of care. Community and academic partners co-created a music video with verses addressing the community-identified barriers: “ stroke is an emergency all the time, even with COVID-19 / get to the hospital as soon as symptoms start, it’s so important to do your part, be Stroke Ready” (https://youtu.be/lKefAiUM2W0) The video reached over 1,200 users on our community-academic partner Stroke Ready Facebook page. Conclusion: We found that community members’ attitudes and perceived behavioral control to seek emergent stroke care were impacted during the COVID-19 pandemic. We addressed these barriers in an academic-community partner created music video. Academic and community partnerships facilitated a timely, innovative response to seeking acute stroke care in the setting of the COVID-19 pandemic.

Community- and Patient-Partner Engagement in Women’s Cardiovascular Disease Research: A Rapid Review of the Evidence

“…In addition, 12 published manuscripts were identified from a specific citation search; these were included as a compendium to the original record identified in the search (ie, full-text papers to support conference abstracts). In total, 35 records 62 , 63 , 67 , 68 , 69 , 70 , 71 , 72 , 73 , 74 , 75 , 76 , 77 , 78 , 79 , 80 , 81 , 82 , 83 , 84 , 85 , 86 , 87 , 88 , 89 , 90 , 91 , 92 , 93 , 94 , 95 , 96 , 97 , 98 were included in the final review.

Figure 1 Preferred Reporting Items for Systematic Reviews and Meta-Analyses ( PRISMA) 2020 flow diagram.

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“…The 35 records represent data from 474 community and patient partners 62 , 63 , 67 , 68 , 70 , 71 , 73 , 74 , 75 , 76 , 77 , 78 , 80 , 81 , 82 , 83 , 84 , 85 , 86 , 87 , 89 , 90 , 91 , 96 , 97 , 98 , 99 who completed studies, including a total of 417 (88%) female partners. Of the 35 papers, the majority originated in the US (n = 16; 46%), 68 , 71 , 72 , 73 , 76 , 77 , 79 , 81 , 83 , 84 , 87 , 90 , 93 , 94 , 95 , 96 Canada ( n = 7; 20%), 62 , 63 , 69 , 70 , 74 , 75 , 98 and the UK (n = 6; 17%). 67 , 80 , 82 , 85 , 92 , 97 The remaining papers originated in Ireland (n = 1; 2%), 78 Sweden (n = 1; 2%), 86 Turkey (n = 1; 2%), 88 Germany (n = 1; 2%), 89 Denmark (n = 1; 2%), 91 and Greece (n = 1; 2%).…”

“… 67 , 80 , 82 , 85 , 92 , 97 The remaining papers originated in Ireland (n = 1; 2%), 78 Sweden (n = 1; 2%), 86 Turkey (n = 1; 2%), 88 Germany (n = 1; 2%), 89 Denmark (n = 1; 2%), 91 and Greece (n = 1; 2%). 99 Patient engagement focused on women with cerebrovascular disease and stroke (n = 19; 54.2%), 63 , 67 , 68 , 76 , 78 , 79 , 82 , 83 , 85 , 86 , 87 , 89 , 90 , 93 , 94 , 95 , 96 , 97 , 99 heart disease and myocardial infarction (n = 10; 28.6%), 62 , 63 , 73 , 74 , 76 , 80 , 84 , 91 , 94 , 98 and CVD and heart failure (n = 10; 28.6%). 69 , 70 , 71 , 72 , 75 , 77 , 81 , 83 , 88 , 92 Four were randomized controlled trials (RCTs), 69 , 84 .…”

“… 93 (2020) Illinois, USA NR Community members and stroke survivors with CG on a CAB, stakeholders for recruitment Focus groups NR NR NR NR Ischemic stroke Conceptual Design/Planning Empirical Dissemination Involve Involve Collaborate Involve Robles et al. 94 (2021) Michigan, USA Interviews (n = 15) Community members who engaged as partners (NR) Interviews NR NR NR NR Acute stroke and MI Conceptual Design/Planning Empirical Analytic Dissemination Collaborate Collaborate Collaborate Collaborate Collaborate Schwertfeger et al. 95 (2024) USA Stroke camps led by PWS, CG, music therapist, and nurse but no.…”

“…Fourteen studies utilized a participatory action research and/or community-based participatory research approach. 68 , 71 , 72 , 73 , 74 , 76 , 83 , 84 , 87 , 89 , 90 , 93 , 94 , 96 The majority of these were undertaken in the US from 2013 to 2022, 68 , 71 , 72 , 73 , 76 , 83 , 84 , 87 , 90 , 93 , 94 , 96 one was conducted in Canada in 2007, 74 and one was conducted in Germany in 2009. 89 Race and ethnicity was primarily reported as African American, 68 , 71 , 73 , 76 , 96 , Black, 83 , 90 African Canadian, 74 South Asian, 84 other non-White (Chinese American, Hispanic, Korean-American, Latino) 73 , 90 and White 73 populations.…”