Ableism: the undiagnosed malady afflicting medicine

Janz, Heidi L.

doi:10.1503/cmaj.180903

Cited by 40 publications

(35 citation statements)

References 10 publications

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“…In addition, there is the need for a shift in focus from ‘surveillance to identify’ to ‘surveillance to optimize’ [ 25 ] with the intervention [ 28 , 29 , 30 ]. In doing so, the NICU and neonatal follow-up community will continue to understand NICU practice and impact on outcomes through the data collected, but we will also see a shift in perspective from one of looking for what is ‘wrong’ and celebrating all that is and can be ‘right’ [ 25 , 43 ]. We will also see a shift from identifying what systems are not working [ 16 , 17 , 23 , 24 ] to a system of parents empowered, educated, and capable of supporting their own children.…”

Section: Discussionmentioning

confidence: 99%

The E-Nurture Project: A Hybrid Virtual Neonatal Follow Up Model for 2021

et al. 2021

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Neonatal follow-up has long focused on a model of surveillance and identification of short-term outcomes. This model has long become outdated, with evidence documenting the need for longer follow-up with known school-based challenges and significant gaps in knowledge by educators. This article reviews the history of neonatal follow-up and demonstrates a novel approach to neonatal follow-up, built largely with a hybrid virtual platform, which then became essential with the declaration of the pandemic in 2020.

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Section: Discussionmentioning

confidence: 99%

The E-Nurture Project: A Hybrid Virtual Neonatal Follow Up Model for 2021

et al. 2021

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“…system." 7 The reason, as Janz correctly identifies, is based in medicine's presumption that "not normal" is the same as "unhealthy." I wish to include ill physicians in Janz's formulation, for the same oppressive forces medicine wields against its subjects, it also wields against itself.…”

Section: Ally Flemingmentioning

confidence: 99%

Ableism in the medical profession

Neilson

2020

CMAJ

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“… 2 Indeed, in narratives shared by individuals with disabilities, a common theme is discriminatory and dehumanizing health care-related experiences. 3 – 5 …”

Section: Introductionmentioning

confidence: 99%

“…2 Indeed, in narratives shared by individuals with disabilities, a common theme is discriminatory and dehumanizing health care-related experiences. [3][4][5] By offering future physicians opportunities to engage critically with issues related to disability and to consider strategies to improve care for this population, medical education can play a role in addressing our health care system's failures to adequately serve patients with disabilities. Foundational to the understanding of disability is the concept of ableism, which is a dominant worldview that can lead to bias.…”

Section: Introductionmentioning

confidence: 99%

Disability and Ableism in Medicine: A Curriculum for Medical Students

2021

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Introduction: Individuals with disabilities (approximately 20% of the population) experience discrimination and health disparities. Medical school must equip students with expertise to care for patients with disabilities and to identify ableism. Yet, few schools provide curricula that offer a sociopolitical lens for understanding this topic. We developed a disability and ableism curriculum to address this gap. Methods: We developed a mandatory 2-hour session for first-year medical students at University of California San Francisco. Activities included: privilege awareness, student-led discussions, and intervention brainstorming for overcoming health care barriers/biases. The session was evaluated through pre/postsurveys, as well as a follow-up survey 1 year later. Results: In feedback collected during 2018 and 2019, students described the session as meaningful and relevant. Faculty facilitators reported that the session provoked powerful student-centered learning, leadership, and widespread participation. On average the students rated the session 4.6 on a 5-point scale. Pre-and postsession data analysis indicated significant increases in students' self-reported understanding of ableism (p < .001) and confidence in assessing barriers to care for patients with disability (p < .001). One year later, students reported that the session had influenced their conceptualization of providing care to patients with disabilities. Discussion: Through innovative and participatory activities, this small-group session introduced students to important topics such as ableism, the social model of disability, disability history and culture, and health disparities. Our work suggested that creating curricula to equip students with structural frameworks for understanding disability-a topic underrepresented in medical curricula-stimulated student interest and commitment.

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Ableism: the undiagnosed malady afflicting medicine

Cited by 40 publications

References 10 publications

The E-Nurture Project: A Hybrid Virtual Neonatal Follow Up Model for 2021

The E-Nurture Project: A Hybrid Virtual Neonatal Follow Up Model for 2021

Ableism in the medical profession

Disability and Ableism in Medicine: A Curriculum for Medical Students

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