A woman's experience: living with an implantable cardioverter defibrillator

Conelius, Jaclyn

doi:10.1016/j.apnr.2014.11.002

Cited by 15 publications

(34 citation statements)

References 28 publications

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“…In the initial post-ICD implantation period, participants experienced feelings of anxiety, fear, depression, helplessness, anger, insecurity, and uncertainty [14, 17, 18, 20, 23, 30, 38, 42–44]. These negative emotions described in the qualitative interviews concurred with quantitative findings on poorer psychological well-being in the early phase [24, 28, 36, 45].…”

Section: Resultssupporting

confidence: 57%

“…The participants were also fearful of fatal arrhythmic deaths, shock encounters in public due to embarrassment and uncertainty of available support [14, 17, 20, 26, 44], exposure to electromagnetic interference [14, 17, 20, 23, 38], ‘cellular phone phobia’ [38, 44], ICD recalls [20], as well as driving restrictions if arrhythmias or shocks were detected [12]. There was also apprehension over resuming sexual activity as the majority feared of shocks hurting their partners [18, 20, 23, 43].…”

Section: Resultsmentioning

confidence: 99%

“…Nevertheless, they were relieved that the device functioned and had no qualms over its necessity [18, 30]. In contrast, participants without shock encounters ruminate possible future shocks [14, 17, 18, 20, 42] and at times, they continued to doubt the device [14, 18, 26]. Similar to non-shock participants, those with phantom shocks also became less trusting of the ICD as they were alarmed and confused over their reactions to future shocks [37].…”

Section: Resultsmentioning

confidence: 99%

“…ICD implantation influenced one’s body image perception [17, 20, 38]. Starrenburg et al [35] found that females were associated with poorer device-related acceptance than males due to body image concerns.…”

Section: Resultsmentioning

confidence: 99%

“…Moreover, according to Vazquez et al [25], younger women tend to experience more image concerns than middle-aged and older women. Moreover, participants were conscious of the physical protrusion, arm movements, and lying down due to the awareness of the ICD in their chest [17, 42]. Some participants, however, were dissatisfied with having foreign objects inserted as it made them feel being kept alive by machines [14].…”

Section: Resultsmentioning

confidence: 99%

See 4 more Smart Citations

Perceptions and experiences of patients living with implantable cardioverter defibrillators: a systematic review and meta-synthesis

Ooi

Dong

et al. 2016

Health Qual Life Outcomes

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BackgroundSudden cardiac deaths have become a growing major public health concern that affects the world. Despite the various etiologies, life-threatening cardiac arrhythmias attribute the main cause of sudden cardiac deaths. Therefore in certain groups of high-risk patients, the Implantable Cardioverter Defibrillator (ICD) has been recommended as either a secondary or primary prophylactic method of prevention.ObjectiveTo summarise the perceptions of ICD recipients and provide an overview of their experiences with regards to the quality of life, coping strategies, and learning needs.MethodsA systematic search was conducted using CINAHL, MEDLINE, PsycINFO, Scopus, Cochrane Library, and Web of Science. Primary research articles published from January 2005 to January 2016 that met the inclusion criteria were selected and assessed for methodological quality.ResultsThirty-nine articles consisting of 16 qualitative studies, 22 quantitative studies, and 1 mixed methods study were included for the meta-synthesis. Findings extracted from these studies were grouped into eight subthemes with ‘living the ICD experience: a constant process of redefining oneself’ emerging as an over-arching theme.ConclusionThis review provides insight into the perspectives and experiences of ICD recipients. Current evidence highlights the need for healthcare professionals to improve future care standards and develop a patient-centric holistic program that meets the specific needs of ICD recipients. Moreover, future studies are required to address the research gaps identified and also explore the perceptions of patients living with ICD in the Asian context.

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Section: Resultssupporting

confidence: 57%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 3 more Smart Citations

Perceptions and experiences of patients living with implantable cardioverter defibrillators: a systematic review and meta-synthesis

Ooi

Dong

et al. 2016

Health Qual Life Outcomes

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“Hosting” an implantable cardioverter defibrillator: A phenomenological inquiry

Garrino¹,

Borraccino²,

Peraudo³

et al. 2017

Research in Nursing & Health

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Implantable cardioverter defibrillators (ICDs) can reduce unexpected cardiac mortality, but they also have a dramatic impact on a patient's quality of life. We aimed to explore ICD recipients' experiences in order to foster improvements in the quality of care.Analyses were done using a descriptive phenomenological method, based on qualitative interview data from a purposive sample of 20 ICD recipients. Four main themes emerged: living with fear; relying on technology; knowing about the ICD and how to live with it; and coping with the effects of the ICD on daily life. ICD recipients lived in a constant state of fear due to the presence of the device and the uncertainty related to the potential electrical shocks it could deliver. This fear was compounded by changes that severely affected the quality of their daily life. ICD recipients felt they were always on the brink of death, and that although they received sufficient technical information they did not feel they received meaningful information to help them accept, live with, and cope with the device. Emotional information and support, rather than technical information, must be provided to ICD recipients to give them the ability to cope with the everyday threats they perceive because of the device. Qualitative evidence may help professionals tackle known threats to patients' quality of life and increase the quality of care. K E Y W O R D Simplantable cardioverter defibrillator, patients' lived experience, phenomenological approach, qualitative methodology

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Perceptions of Singaporean patients living with implantable cardioverter defibrillators: an exploratory qualitative study

Ooi

Seah

et al. 2018

Heart & Lung

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A woman's experience: living with an implantable cardioverter defibrillator

Cited by 15 publications

References 28 publications

Perceptions and experiences of patients living with implantable cardioverter defibrillators: a systematic review and meta-synthesis

Perceptions and experiences of patients living with implantable cardioverter defibrillators: a systematic review and meta-synthesis

“Hosting” an implantable cardioverter defibrillator: A phenomenological inquiry

Perceptions of Singaporean patients living with implantable cardioverter defibrillators: an exploratory qualitative study

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