A trajetória da infância à adolescência com implante coclear: vivência de mães

Abstract

The family is always a major important factor in the habilitation process of the child with cochlear implant. The development of language depends on the parental involvement in the habilitation process and requires a continuous commitment, so that the child with hearing impairment may be benefited by the cochlear implant. The family has been assuming a significant overload during the process, causing repercussions in the family life and the needs and interests. Within this context, this study aimed to understand the experience of mothers in the trajectory of infancy to adolescence of their children with cochlear implants, aiming to identify the meanings and feelings assigned by them in this experience. The study was qualitative and the method comprised phenomenological investigation, which consists of apprehension of the phenomenon as it is manifested to the person experiencing it. The interviews were applied to 12 mothers of the first children submitted to surgery in the cochlear implant program of the Center for Audiological Research of the Hospital for Rehabilitation of Craniofacial Anomalies, University of São Paulo. The reports, mediated by a guiding question and submitted to the phenomenological analysis process, revealed the following thematic categories: the subjective resonance of diagnosis; knowing the cochlear implants and making decisions; the experience of anxiety in the surgery; the birth of hearing; experience the daily life in the habilitation process; the experience of critical moments in the habilitation process; family relationships; the school age: a new stage of coping; the process of adolescing experienced with overprotection and new challenges; the support of the psychologist, staff and others; temporality and life projects. The theoretical reference of Romero was used, which led us to understand the experience of these mothers, based on the affectivity, which is the way through which they are subjectively affected in their relationship with the world and, in that relationship, they showed how they link themselves and the meaning they assign to what comes to them, revealing the meaning of their existence with a child with cochlear implant.

Vivências de mães de crianças usuárias de implante coclear: percurso entre assistência à saúde e escolarização

“…Na literatura são escassos os estudos que apresentam vivências de mães de usuários de IC, especialmente relacionados ao percurso para a realização do implante envolvendo a infância, questionando o trajeto para a realização do IC até o momento final (Yamanada, 2012).…”

“…A motivação para este estudo, com mães de crianças usuárias de IC como participantes, se deu pelo fato de que é imprescindível conhecer a vivência daquela que acompanha a criança em seu processo, pois a sua habilitação/reabilitação depende especialmente de quem cuida (Yamanada, 2012).…”