A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study (Preprint)

Abstract

BACKGROUND Latinx family caregivers of individuals with dementia face many barriers to caregiver support access. Interventions to alleviate these barriers are urgently needed. OBJECTIVE This study aimed to describe the development of <i>CuidaTEXT</i>, a tailored SMS text messaging intervention to support Latinx family caregivers of individuals with dementia. METHODS <i>CuidaTEXT</i> is informed by the stress process framework and social cognitive theory. We developed and refined <i>CuidaTEXT</i> using a mixed methods approach that included thematic analysis and descriptive statistics. We followed 6 user-centered design stages, namely, the selection of design principles, software vendor collaboration, evidence-based foundation, caregiver and research and clinical advisory board guidance, sketching and prototyping, and usability testing of the prototype of <i>CuidaTEXT</i> among 5 Latinx caregivers. RESULTS <i>CuidaTEXT</i> is a bilingual 6-month-long SMS text messaging–based intervention tailored to caregiver needs that includes 1-3 daily automatic messages (n=244) about logistics, dementia education, self-care, social support, end of life, care of the person with dementia, behavioral symptoms, and problem-solving strategies; 783 keyword-driven text messages for further help with the aforementioned topics; live chat interaction with a coach for further help; and a 19-page reference booklet summarizing the purpose and functions of the intervention. The 5 Latinx caregivers who used the prototype of <i>CuidaTEXT</i> scored an average of 97 out of 100 on the System Usability Scale. CONCLUSIONS <i>CuidaTEXT</i>’s prototype demonstrated high usability among Latinx caregivers. <i>CuidaTEXT</i>’s feasibility is ready to be tested.