A systematic review on the implementation of eHealth interventions for informal caregivers of people with dementia

Christie, Hannah Liane; Bartels, Sara Laureen; Boots, Lizzy; Tange, Huibert; Verhey, Frans R.J.; Vugt, Marjolein E. de

doi:10.1016/j.invent.2018.07.002

Cited by 114 publications

(125 citation statements)

References 70 publications

(47 reference statements)

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“…Another issue that emerged from the three cases concerned the availability of information about activities, organising these in a shared calendar and the use of technology to assist coordination within and among organisations. Uryan, Matusitz, and Breen (2012) showed that digital systems can enhance interorganisational relationships or networks, but this technology must be user friendly, and all information should be kept in one place (Christie et al, 2018).…”

Section: Discussionmentioning

confidence: 99%

Communication and information exchange between primary healthcare employees and volunteers – Challenges, needs and possibilities for technology support

Fredriksen

Martínez

Moe

et al. 2020

Health Soc Care Community

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In light of the challenges posed by an ageing population and tighter public budgets, governments worldwide are seeking innovative ways of improving health service delivery. Volunteers can contribute to such improvement, but this requires effective coordination and communication between volunteers and healthcare employees. In this case study, conducted in two Norwegian municipalities during September–October 2017, the aim was to understand how collaboration and coordination is carried out between several stakeholders: volunteers, volunteer family members of healthcare service users and healthcare employees. Our results show that daily cooperation was largely unsystematic, and stakeholders employed various informal communication procedures. Recruitment of volunteers was based on word of mouth and was coordinated by telephone and email. All processes were paper based, including contracting and confidential agreements. This unsystematic approach resulted in uncoordinated activities characterised by time‐consuming processes, with no quality assurance. We concluded that stakeholders would benefit from a technology solution that supports more systematic processes of recruitment, management and monitoring. This article outlines the challenges and needs for information exchange and communication between stakeholders. Furthermore, it describes possible functionality in a digital system that can address these needs, and hence improve coordination, quality of services and resource use.

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Section: Discussionmentioning

confidence: 99%

Communication and information exchange between primary healthcare employees and volunteers – Challenges, needs and possibilities for technology support

Fredriksen

Martínez

Moe

et al. 2020

Health Soc Care Community

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“…Further development of the prototype for a future trial will require emphasis on functionality, tailoring abilities and implementation, including organisational determinants of use, how carers would access and learn about the website and the wider context in which the prototype may later work. This has been neglected in previous online-based interventions aimed at family caregivers of people with dementia [51]. This intervention addresses many of the concerns of limited services available for family caregivers of people with dementia in end of life care phases, and concerns that end of life care policy simply focuses on the last days of life [13].…”

Section: Lessons Learnt For Developmentmentioning

confidence: 99%

Designing and developing a co-produced theoretical and evidence-based online support for family caregivers of people with dementia at the end of life

et al. 2019

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Background: Caring for someone with dementia can be physically and emotionally difficult. Acting as a caregiver can make it difficult to access sources of support, particularly in the later stages of dementia. This paper reports the development and presents the targets (subject areas) and components of a prototype website to support family caregivers of a person with dementia towards the end of life. Methods: Adopting an iterative approach and co-production methods the development process consisted of four stages: Stage1-Synthesis of data: three sources of data (interviews, systematic review and theory) were synthesised using tabulation, to identify the targets of the prototype; Stage2-Identifying intervention targets and components: a research development group (health practitioners, a family caregiver and academic experts) met to discuss the development, using a modified nominal group process, refining the synthesis from stage 1; Stage3-Developing the intervention prototype: an outline of the prototype was developed based on stage 1 and 2; and Stage4-User testing: interviews with caregivers testing the prototype website. Results: Qualitative interviews with caregivers identified four targets for the intervention: 1) feeling prepared and equipped; 2) feeling connected and supported; 3) valuing themselves as a caregiver and as an individual; 4) maintaining control of the caring situation and being the coordinator of care. The systematic review provided evidence on how and what components could address these targets, including providing information, peer support, contact with professionals, and psychological support. Theory helped to narrow the focus within each of these targets. Active discussion with the research development group and end users provided an outline of the prototype website. The prototype website presented addresses these targets with written information, videos from other caregivers, and peer and professional support sections. The subject areas covered included expectations at the end of life, support with day-today caring, care planning, and communication. Conclusions: This paper provides a detailed account of the development process of a prototype website for caregiver support. The transparent methodology and key lessons learnt from developing the prototype should help those who are developing similar interventions, across complex, progressive conditions and not just limited to dementia.

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“…The main resistance for its establishment is given by the three protagonists of the assistance: patients and caregivers, professionals, and mainly the managers of the health administration [40].…”

Section: Social Sanitary Assistance Management Toolsmentioning

confidence: 99%

Healthcare Models in Alzheimer’s Disease

Garzón-Maldonado¹,

Torres²

2019

Redirecting Alzheimer Strategy - Tracing Memory Loss to Self Pathology

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Alzheimer's disease is currently a health care problem and in the future, when we have effective treatments, it will become a public health priority. Health systems should adapt to this situation. New technologies are tools that can improve healthcare and lower costs. The mobile phone with call o video call conference is going to suppose a radical change in the control of these patients. The telephone assistance to patient or relatives is very satisfactory for both due to the rapidity in the response to their problem and the comfort with which they are attended to. Also the health system reduces the costs of face-to-face consultation. In addition, this telemedicine could be applied for cognitive stimulation, with specific programs for each patient and for the follow-up of patients in their homes, delaying their entry into residences. The objective is to turn the patients and their caregiver into cotherapists together with the nurse and the physician, in the follow-up of Alzheimer's disease.

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A systematic review on the implementation of eHealth interventions for informal caregivers of people with dementia

Cited by 114 publications

References 70 publications

Communication and information exchange between primary healthcare employees and volunteers – Challenges, needs and possibilities for technology support

Communication and information exchange between primary healthcare employees and volunteers – Challenges, needs and possibilities for technology support

Designing and developing a co-produced theoretical and evidence-based online support for family caregivers of people with dementia at the end of life

Healthcare Models in Alzheimer’s Disease

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