A Systematic Review of Unmet Information and Psychosocial Support Needs of Adults Diagnosed with Thyroid Cancer

Hyun, Yong Gyu; Alhashemi, Ahmad; Fazelzad, Rouhi; Goldberg, Alyse S.; Goldstein, David P.; Sawka, Anna M.

doi:10.1089/thy.2016.0039

Cited by 37 publications

(45 citation statements)

References 57 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Unlike most reports from western countries, in which highest unmet needs were mostly related to psychological domain [ 10 , 19 ], the present study revealed that the unmet needs were highest in the health system information domain and the highest mean scores were also observed in the information domain in both groups. Similar findings were also reported in other Asian countries.…”

Section: Discussioncontrasting

confidence: 99%

“…‘Unmet need’ regarding healthcare services refers to the gap between a person’s desire or need for those services and the actual experience of receiving them [ 6 ]. During the last decade, numerous studies tried to quantify the need for supportive care among cancer survivors [ 7 – 9 ], providing a better understanding of patients’ unmet needs pertaining to focus and coverage of current services and related concerns [ 10 ]. Based on this understanding, the existing supportive care system was targeted appropriately to ensure that the available healthcare resources could elicit optimized responses to the needs of the growing population of cancer survivors.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Distribution and Determinants of Unmet Need for Supportive Care Among Women with Breast Cancer in China

Wang

et al. 2018

Med Sci Monit

View full text Add to dashboard Cite

BackgroundThe aim of this study was to determine the need for supportive care among women suffering from breast cancer in China and to identify its potential determinants to inform the development of effective and efficient healthcare services across different settings.Material/MethodsIn a tertiary-care hospital in Weifang, China, between July 2015 and January 2016, all women attending the Breast Cancer Clinic for regular physical examinations after treatment for breast cancer were consecutively recruited. The 34-item Supportive Care Needs Survey tool (Chinese version) (SCNS-SF34-C) was used to assess the unmet needs among participants.ResultsAmong 264 recruited patients, based on at least single-item endorsement, 60.2% had moderate to high level of need for supportive care, while only 13.3% expressed no need. Lack of information regarding health systems was the most common domain with moderate to high unmet needs, more so among rural patients (8 vs. 5 out of 10). In each information-related domain, huge unmet need was observed among all patients irrespective of urban or rural residence. Both overall and individual information-related domain-specific unmet needs were significantly higher among rural patients as opposed to their urban counterparts. Multiple regression analyses revealed a significant rural-urban variation of unmet needs. Moreover, education and post-diagnosis time duration were negatively associated with unmet needs while stage of cancer was positively associated with these unmet needs.ConclusionsThere is a huge burden of unmet needs for information on the healthcare system among breast cancer survivors in China. Rural residence, less education, advanced stage of cancer, and shorter duration since diagnosis were the identified determinants requiring targeted intervention.

show abstract

Section: Discussioncontrasting

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Distribution and Determinants of Unmet Need for Supportive Care Among Women with Breast Cancer in China

Wang

et al. 2018

Med Sci Monit

View full text Add to dashboard Cite

show abstract

“…For instance, although existing theoretical frameworks employed in the HISB cancer context [ 29 , 47 - 49 ] describe a cost-benefit relationship in terms of whether an individual will search for additional information, they do not provide guidance in terms of how to structure interventions for those affected by cancer to minimize the cost and maximize the benefit of information seeking. A theoretical framework that addresses this gap in the literature is thought to be valuable for developing interventions that address the informational needs of those living with cancer [ 1 , 4 , 11 , 12 , 14 , 15 , 35 , 38 , 48 ]. Such a framework would be capable of informing the development of interventions that support individuals in planning their lives around the short- and long-term consequences of cancer, including the receipt of treatment and altered life expectancy [ 22 , 50 ].…”

Section: Introductionmentioning

confidence: 99%

Information Access and Use by Patients With Cancer and Their Friends and Family: Development of a Grounded Theory

Thiessen¹,

Sinclair²,

Tang³

et al. 2020

J Med Internet Res

View full text Add to dashboard Cite

Background Information has been identified as a commonly unmet supportive care need for those living with cancer (ie, patients and their friends and family). The information needed to help individuals plan their lives around the consequences of cancer, such as the receipt of health care, is an example of an important informational need. A suitable theory to guide the development of interventions designed to meet this informational need has not been identified by the authors. Objective The aim of this study is to generate a grounded theory capable of guiding the development of interventions designed to assist those living with cancer in meeting their informational needs. Methods Classic grounded theory was used to analyze data collected through digitally recorded one-on-one audio interviews with 31 patients with cancer and 29 friends and family members. These interviews focused on how the participants had accessed and used information to plan their lives and what barriers they faced in obtaining and using this information. Results The theory that emerged consisted of 4 variables: personal projects, cancer as a source of disruption to personal projects, information as the process of accessing and interpreting cancer-related data (CRD) to inform action, and CRD quality as defined by accessibility, credibility, applicability, and framing. CRD quality as a moderator of personal project disruption by cancer is the core concept of this theory. Conclusions Informational resources providing accessible, credible, applicable, and positively framed CRD are likely key to meeting the information needs of those affected by cancer. Web-based informational resources delivering high-quality CRD focused on assisting individuals living with cancer in maintaining and planning their personal projects are predicted to improve quality of life. Research is needed to develop and integrate resources informed by this theoretical framework into clinical practice.

show abstract

“…In our study, the nurses discovered that they could use the video function to identify nonverbal expressions of pain and worry. The nurses could use that information to meet the patients' needs for information and psychosocial support through closer follow-up [1][2][3][4][5].…”

Section: Influences Of Vc On Follow-up Carementioning

confidence: 99%

Oncology nurses’ experiences with the implementation and trial of video communication in the follow-up of cancer patients in primary care: a pilot study in Norway

Rygg

Brataas

Nordtug

2019

Preprint

View full text Add to dashboard Cite

Background: Cancer survival has increased significantly over the last decade. An increasing number of patients require long-term health care. There is a need for new models of effective follow-up in primary cancer care.Objective: The aim was to provide knowledge about oncology nurses’ (ONs’) experiences and perceptions of the use of video communication (VC) to follow up with patients living at home.Methods: This was a descriptive, qualitative study of ONs’ experiences with implementing and trying VC. Data were gathered after a 3-month trial. Individual interviews were content analyzed.Results: Four female ONs participated. The study provides knowledge about the introduction of VC and its influences on follow-up care.Conclusions: With the provision of technical support and training during the introduction of VC and with the protection of patient safety, VC seems to be an effective addition to the traditional follow-up of cancer patients living at home. The findings indicate that VC can be used in primary cancer care. Our findings have practical consequences for nursing leaders considering VC in patient follow-up. Additional research is necessary.

show abstract

A Systematic Review of Unmet Information and Psychosocial Support Needs of Adults Diagnosed with Thyroid Cancer

Cited by 37 publications

References 57 publications

Distribution and Determinants of Unmet Need for Supportive Care Among Women with Breast Cancer in China

Distribution and Determinants of Unmet Need for Supportive Care Among Women with Breast Cancer in China

Information Access and Use by Patients With Cancer and Their Friends and Family: Development of a Grounded Theory

Oncology nurses’ experiences with the implementation and trial of video communication in the follow-up of cancer patients in primary care: a pilot study in Norway

Contact Info

Product

Resources

About