A systematic review of specialty dementia care units in long‐term care settings

Orth, Jessica; Flowers, Devon; Betz, Gail; Cagle, John G.

doi:10.1002/gps.5907

Cited by 4 publications

(1 citation statement)

References 130 publications

(247 reference statements)

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“…In later stages, when patients must rely on others, it causes pressure and burdens on caregivers, and the assistance of professional caregivers in long-term care institutions is required. Due to the complexity of behavioral care issues with dementia, the concept of dementia specialty care units (DSCUs) has become a strategy for the management of dementia care [ 6 ]. DSCUs are designed to reduce inappropriate antipsychotic use, pressure injuries, feeding tubes, physical restraints, and hospitalization [ 7 ].…”

Section: Introductionmentioning

confidence: 99%

The symbiotic experiences of residents with and without dementia co-living in Taiwan’s long-term care facilities: a phenomenological study

Fang,

Liu,

Huang

2024

BMC Geriatr

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Background In Taiwan, residents with and without dementia mostly co-live in long-term care facilities. The behavioral and psychiatric symptoms of dementia residents often pose challenges for others living together. This study explored the symbiotic experiences of residents without dementia co-living with those with dementia in long-term care facilities in Taiwan to present their experiences of living together. Methods This was a cross-sectional descriptive study with a phenomenological design. Semi-structured face-to-face interviews were conducted with 30 residents without dementia from three long-term care institutions in Taiwan. Colaizzi’s data processing steps were used for analysis. Results The analysis of interview transcripts revealed that the experiences of residents who lived with those with dementia were that of a “symbiosis.” Three core themes were found: “the impact of co-living,” “facing difficulties and coping,” and “companionship and reciprocity.” This study showed that residents without dementia may be affected by the behavioral and psychiatric symptoms of residents with dementia when co-living in long-term care facilities. However, there are also positive and mutually beneficial interactions between them. By helping people with dementia in their daily lives, residents without dementia feel happy and accomplished and their self-worth is enhanced. Furthermore, residents with dementia have more opportunities for social engagement and co-living interactions. Conclusion These results can guide long-term care facilities without special care dementia units to support residents without dementia, reduce the interference of the behavioral and psychiatric symptoms of residents with dementia, and promote mutual benefits. However, these findings warrant further investigation.

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Section: Introductionmentioning

confidence: 99%

The symbiotic experiences of residents with and without dementia co-living in Taiwan’s long-term care facilities: a phenomenological study

Fang,

Liu,

Huang

2024

BMC Geriatr

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Psychotropic, Anticonvulsant, and Opioid Use in Assisted Living Residents Before and During the COVID-19 Pandemic

Maxwell,

Dampf,

Alkabbani

et al. 2024

Journal of the American Medical Directors Association

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Sentiment Dynamics Among Informal Caregivers in Online Alzheimer’s Communities: A Systematic Analysis of Emotional Support and Interaction Patterns (Preprint)

Ni,

Song,

Chen

et al. 2024

Preprint

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BACKGROUND Alzheimer's disease and related dementias (ADRD) is a growing global health challenge. ADRD places significant physical, emotional, and financial burdens on informal caregivers and negatively affects their well-being, particularly their mental well-being. Online social media platforms have emerged as valuable sources of peer support for these caregivers. However, there has been limited investigation into how online peer support might influence their mental well-being. OBJECTIVE We examine the dynamics of sentiment, one major indicator of mental well-being, among ADRD informal caregivers in online communities, specifically how their sentiment changes as they participate in caregiving experience discussions within two ADRD online communities. METHODS We collected data from two large online ADRD caregiving communities, ALZConnected and TalkingPoint, covering November 2011 to August 2022, and March 2003 to November 2022, respectively. Using the Valence Aware Dictionary for Sentiment Reasoning (VADER) and Linguistic Inquiry and Word Count (LIWC), we calculated the sentiment scores for each post and evaluated how the initial sentiment of a topic initiator evolves within a discussion thread. Structured topic modeling and regression analysis were used to identify the primary topics that were consistently associated with sentiment changes within these threads. We investigated longitudinal sentiment trends to identify patterns of sentimental stability or enhancement due to prolonged engagement in online communities by plotting linear interpolation lines of the sentiment values of each individual user. RESULTS The ALZConnected dataset was composed of 532,992 posts, consisting of 57,641 topic threads and 475,351 comments. The TalkingPoint dataset was composed of 846,344 posts, consisting of 81,068 topic threads and 765,276 comments. Our research revealed that topic initiators experienced a notable increase in positive sentiment as they engaged in subsequent discussions within their threads, with a significant uptick in positivity in the short term. This phenomenon is part of a broader trend of steadily rising positive sentiment among ADRD caregivers across both communities. Using structured topic modeling, we cataloged a diverse range of topics that included both emotional aspects, such as family emotions (5.4%), and practical concerns, like diagnosis and treatment (6.9%), and everyday care practices (4.5%). We observed that sentiment scores were positively aligned with discussions about family and daily routines life (coefficient is 3.53, p<0.0001), while topics related to illness (coefficient is -1.37, p<0.0001) and caregiving facilities (coefficient is -1.98, p<0.0001) tended to correlate with lower sentiment scores. This This evidence highlights the significant impact that both the time of participation and the posting content have on the sentiment changes of caregivers. CONCLUSIONS Our study identifies sentiment changes among informal ADRD caregivers through their interactions in two extensive online communities. These findings emphasize the importance of early emotional support within a topic thread and demonstrate a predominantly positive sentiment in these communities over time. These findings further highlight the value of online peer support and its potential to enhance emotional well-being of informal ADRD caregivers.

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A systematic review of specialty dementia care units in long‐term care settings

Cited by 4 publications

References 130 publications

The symbiotic experiences of residents with and without dementia co-living in Taiwan’s long-term care facilities: a phenomenological study

The symbiotic experiences of residents with and without dementia co-living in Taiwan’s long-term care facilities: a phenomenological study

Psychotropic, Anticonvulsant, and Opioid Use in Assisted Living Residents Before and During the COVID-19 Pandemic

Sentiment Dynamics Among Informal Caregivers in Online Alzheimer’s Communities: A Systematic Analysis of Emotional Support and Interaction Patterns (Preprint)

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