A systematic review of outcome measures utilised to assess self-management in clinical trials in patients with chronic pain

Banerjee, Anirban; Hendrick, Paul; Bhattacharjee, Purba; Blake, Holly

doi:10.1016/j.pec.2017.12.002

Cited by 29 publications

(24 citation statements)

References 83 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In a recent systematic review, HeiQ was seen as an appropriate scale to measure change in self‐management (Banerjee, Hendrick, Bhattacharjee, & Blake, ). However, in the present study only three heiQ subscales, emotional distress, skill and technique acquisition and health service navigation, showed good feasibility and responsiveness.…”

Section: Discussionmentioning

confidence: 99%

“…Both subscales had low values of missing data, good internal consistency and few questions with ceiling effects. ASES is widely used in research within rheumatology and is found to have acceptable internal consistency and construct validity in two systematic reviews, but there is a lack of research on responsiveness (Banerjee et al, ; Miles, Pincus, Carnes, Taylor, & Underwood, ). In this study, we applied a recently validated Norwegian version of the ASES‐11 with a five‐point descriptive scaling that has not yet been tested for responsiveness (Garratt et al, ).…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Outcomes in patient education programmes for people with rheumatic diseases: Results from a Delphi process and a study of feasibility and responsiveness

Røe

Grønning

Eriksson

et al. 2020

Musculoskeletal Care

View full text Add to dashboard Cite

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Outcomes in patient education programmes for people with rheumatic diseases: Results from a Delphi process and a study of feasibility and responsiveness

Røe

Grønning

Eriksson

et al. 2020

Musculoskeletal Care

View full text Add to dashboard Cite

show abstract

“…There is no generally agreed instrument designed to measure self-management. However, a very recent review identified 14 different proxy measures in 25 RCTs for self-management of which self-efficacy was the most common [ 145 ], although self-efficacy and self-management are different constructs.…”

Section: Discussionmentioning

confidence: 99%

GLA:D® Back group-based patient education integrated with exercises to support self-management of back pain - development, theories and scientific evidence -

Kjær

Kongsted

Hansen

et al. 2018

BMC Musculoskelet Disord

View full text Add to dashboard Cite

BackgroundClinical guidelines recommend that people with back pain be given information and education about their back pain, advice to remain active and at work, and exercises to improve mobility and physical activity. Guidelines, however, rarely describe how this is best delivered. The aim of this paper is to present the development, theories, and underlying evidence for ‘GLA:D Back’ - a group education and exercise program that translates guideline recommendations into a clinician-delivered program for the promotion of self-management in people with persistent/recurrent back pain.MethodsGLA:D Back, which included a rationale and objectives for the program, theory and evidence for the interventions, and program materials, was developed using an iterative process. The content of patient education and exercise programs tested in randomised trials was extracted and a multidisciplinary team of expert researchers and clinicians prioritised common elements hypothesised to improve back pain beliefs and management skills. The program was tested on eight people with persistent back pain in a university clinic and 152 patients from nine primary care physiotherapy and chiropractic clinics. Following feedback from the clinicians and patients involved, the working version of the program was created.ResultsEducational components included pain mechanisms, pain modulation, active coping strategies, imaging, physical activity, and exercise that emphasised a balance between the sum of demands and the individual’s capacity. These were operationalised in PowerPoint presentations with supporting text to aid clinicians in delivering two one-hour patient education lectures.The exercise program included 16 supervised one-hour sessions over 8 weeks, each comprising a warm-up section and eight types of exercises for general flexibility and strengthening of six different muscle groups at four levels of difficulty. The aims of the exercises were to improve overall back fitness and, at the same time, encourage patients to explore variations in movement by incorporating education content into the exercise sessions.ConclusionFrom current best evidence about prognostic factors in back pain and effective treatments for back pain, research and clinical experts developed a ready-to-use structured program - GLA:D® Back - to support self-management for people with persistent/recurrent back pain.Electronic supplementary materialThe online version of this article (10.1186/s12891-018-2334-x) contains supplementary material, which is available to authorized users.

show abstract

“…After duplicate removals, 102 articles were screened from titles and abstracts. Fourteen full texts were selected 13–26. Eight literature reviews were excluded and six were included (see articles in table 1).…”

Section: Methodsmentioning

confidence: 99%

Patient-reported outcome measures for hip-related pain: a review of the available evidence and a consensus statement from the International Hip-related Pain Research Network, Zurich 2018

et al. 2020

View full text Add to dashboard Cite

Hip-related pain is a well-recognised complaint among active young and middle-aged active adults. People experiencing hip-related disorders commonly report pain and reduced functional capacity, including difficulties in executing activities of daily living. Patient-reported outcome measures (PROMs) are essential to accurately examine and compare the effects of different treatments on disability in those with hip pain. In November 2018, 38 researchers and clinicians working in the field of hip-related pain met in Zurich, Switzerland for the first International Hip-related Pain Research Network meeting. Prior to the meeting, evidence summaries were developed relating to four prioritised themes. This paper discusses the available evidence and consensus process from which recommendations were made regarding the appropriate use of PROMs to assess disability in young and middle-aged active adults with hip-related pain. Our process to gain consensus had five steps: (1) systematic review of systematic reviews; (2) preliminary discussion within the working group; (3) update of the more recent high-quality systematic review and examination of the psychometric properties of PROMs according to established guidelines; (4) formulation of the recommendations considering the limitations of the PROMs derived from the examination of their quality; and (5) voting and consensus. Out of 102 articles retrieved, 6 systematic reviews were selected and assessed for quality according to AMSTAR 2 (A MeaSurement Tool to Assess systematic Reviews). Two showed moderate quality. We then updated the most recent review. The updated literature search resulted in 10 additional studies that were included in the qualitative synthesis. The recommendations based on evidence summary and PROMs limitations were presented at the consensus meeting. The group makes the following recommendations: (1) the Hip and Groin Outcome Score (HAGOS) and the International Hip Outcome Tool (iHOT) instruments (long and reduced versions) are the most appropriate PROMs to use in young and middle-aged active adults with hip-related pain; (2) more research is needed into the utility of the HAGOS and the iHOT instruments in a non-surgical treatment context; and (3) generic quality of life measures such as the EuroQoL-5 Dimension Questionnaire and the Short Form Health Survey-36 may add value for researchers and clinicians in this field. We conclude that as none of the instruments shows acceptable quality across various psychometric properties, more methods studies are needed to further evaluate the validity of these PROMS—the HAGOS and iHOT—as well as the other (currently not recommended) PROMS.

show abstract

A systematic review of outcome measures utilised to assess self-management in clinical trials in patients with chronic pain

Abstract: Multi-constructs measures (CPCI, heiQ) are suitable for assessing self-management.

Cited by 29 publications

References 83 publications

Outcomes in patient education programmes for people with rheumatic diseases: Results from a Delphi process and a study of feasibility and responsiveness

Outcomes in patient education programmes for people with rheumatic diseases: Results from a Delphi process and a study of feasibility and responsiveness

GLA:D® Back group-based patient education integrated with exercises to support self-management of back pain - development, theories and scientific evidence -

Patient-reported outcome measures for hip-related pain: a review of the available evidence and a consensus statement from the International Hip-related Pain Research Network, Zurich 2018

Contact Info

Product

Resources

About