A Systematic Review of Internet-based Self-Management Interventions for Youth with Health Conditions

Stinson, Jennifer; Wilson, Rita; Gill, Natasha; Yamada, Janet; Holt, Jessica

doi:10.1093/jpepsy/jsn115

Cited by 223 publications

(231 citation statements)

References 33 publications

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“…Conflicting evidence regarding HRQL outcomes may have resulted from limited post-treatment follow-up (less than six months) and using nonspecific disease measures. The article concluded there was preliminary evidence that self-management interventions delivered via the Internet improved selected outcomes in certain chronic childhood illnesses (87).…”

Section: Innovative Approaches To Disease Self-management In Jiamentioning

confidence: 99%

Assessment and Management of Pain in Juvenile Idiopathic Arthritis

et al. 2014

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Section: Innovative Approaches To Disease Self-management In Jiamentioning

confidence: 99%

Assessment and Management of Pain in Juvenile Idiopathic Arthritis

et al. 2014

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“…In contrast, there have been randomised clinical trials in patients with specific diseases like asthma, depression, or diabetes. [30][31][32] The primary outcome of these trials was most often quality of life or clinical improvement. In some of these, hospitalisations and emergency department visits were studied but with inconsistent results.…”

Section: Discussionmentioning

confidence: 99%

“…In some of these, hospitalisations and emergency department visits were studied but with inconsistent results. 30 Some randomised clinical trials aimed to assess the effectiveness of information leaflets on minor symptoms in children. A recent trial among children who already consulted primary care showed that an interactive booklet about childhood respiratory tract infections led to a reduction in antibiotic prescribing and reconsultations.…”

Section: Discussionmentioning

confidence: 99%

E-health and consultation rates for respiratory illnesses in infants: a randomised clinical trial in primary care

et al. 2015

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“…Likewise, a DCD online module was developed and posted on a childhood disability research centre website; preliminary results highlighted improvement in self-perceived knowledge and skills but no information was available with regards to change in behaviours 20 . In childhood disability in general, a systematic review of internet-based self-management interventions for youth with chronic health conditions found conflicting evidence regarding the interventions' ability to improve disease-specific knowledge and quality of life 21 . Authors of this review concluded that we are just beginning to understand how internet-based resources could improve outcomes for children with disabilities.…”

mentioning

confidence: 99%

“…A few other studies of the use of web-based information with other chronic conditions of childhood were found in a systematic review 21 . Results indicated most interventions involved the provision of direct services through the internet (e.g., monitoring) and evaluated disease-specific outcomes related specifically to the child's condition (e.g., pain).…”

mentioning

confidence: 99%

Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder

Camden

Foley

Anaby

et al. 2016

Disability and Health Journal

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Background : Developmental coordination disorder (DCD) is a prevalent neurodevelopmental disorder. Best practices include raising parents' awareness and building capacity but few interventions incorporating these best practices are documented. Objective : To examine whether an evidence-based online module can increase the perceived knowledge and skills of parents of children with DCD, and lead to behavioural changes when managing their child's health condition. Methods : A mixed-methods, before-after-follow-up design guided by the theory of planned behaviour was employed. Data about the knowledge, skills and behaviours of parents of children with DCD were collected using questionnaires prior to completing the module, immediately after, and three months later. One-way repeated measures ANOVAs and thematic analyses were performed on data as appropriate. Results : Fifty-eight participants completed all questionnaires. There was a significant effect of time on self-reported knowledge [F(2.00,114.00)=16.37, p=0.00] and skills [F(1.81,103.03)=51.37, p=0.00] with higher post-and follow-up scores than pre-intervention scores. Thirty-seven (65%) participants reported an intention to change behaviour post-intervention; 29 (50%) participants had tried recommended strategies at follow-up. Three themes emerged to describe parents' behavioural change: sharing information, trialing strategies and changing attitudes. Factors influencing parents' ability to implement these behavioural changes included clear recommendations, time, and 'right' attitude. Perceived outcomes associated with the parental behavioural changes involved improvement in well-being for the children at school, at home, and for the family as a whole. Conclusions : The online module increased parents' self-reported knowledge and skills in DCD management. Future research should explore its impacts on children's outcomes long-term. Enclosed please find the research article entitled "Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder"-for consideration by Disability and Health Journal. The article consists of a mixed-method, before-after trial with a threemonth follow-up. In this trial, parents of children with Developmental Coordination Disorder (DCD) completed an online evidence-based module providing information and strategies to manage this prevalent and potentially disabling chronic health condition. This manuscript will be of interest to your journal as the families of children with motor delays, or "suspected DCD", typically visit physicians and many other health care professionals to find out "what is wrong with their child". Previous papers have suggested that providing evidence-based information to families is a key strategy in equipping families to support their children with DCD. However, no specific intervention has been tested so far to evaluate the impact of providing information to families. This study evaluated whether an evidence-based online module could inc...

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A Systematic Review of Internet-based Self-Management Interventions for Youth with Health Conditions

Abstract: There are the beginnings of an evidence base that self-management interventions delivered via the internet improve selected outcomes in certain childhood illnesses.

Cited by 223 publications

References 33 publications

Assessment and Management of Pain in Juvenile Idiopathic Arthritis

Assessment and Management of Pain in Juvenile Idiopathic Arthritis

E-health and consultation rates for respiratory illnesses in infants: a randomised clinical trial in primary care

Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder

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