A systematic mixed studies review of women's experiences of perineal trauma sustained during childbirth

Crookall, Rebecca; Fowler, Gillian; Wood, Caroline; Slade, Pauline

doi:10.1111/jan.13724

Cited by 28 publications

(18 citation statements)

References 54 publications

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“…Health care providers seemingly strived for normalization of women's symptoms, as described in the category "Burdened by normality". A similar theme, "Normalization and feeling dismissed", was identi ed in a systematic mixed study review of women's experiences of perineal trauma sustained during childbirth [16]. One of the studies included in the review [8] explored the disconnect between expectations and reality for women in the postpartum period under the theme "The fractured fairytale".…”

Section: Discussionmentioning

confidence: 99%

RETRACTED: “From Hell to Healed” – A Qualitative Study on Women’s Experience of Recovery, Relationships and Sexuality after Severe Obstetric Perineal Injury

Huber

Tunón

Lindqvist

2020

Preprint

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Background: Few studies have investigated women’s experiences of daily life after childbirth complicated by obstetric anal sphincter injury (OASI). The aim of the present study was to explore experiences related to recovery, sexual function, relationships and coping strategies among women affected by OASI. Methods: In-depth interviews were conducted using a purposive sample of 11 women affected by OASI. Women were interviewed 1-2 years after their first childbirth. Inductive qualitative content analysis was applied.Results: The theme “From hell to healed” illustrates women’s experiences of recovery, relationships and sexual function after OASI. Three categories addressing women’s perceptions emerged: “Challenged to the core”, “At the mercy of the care provider” and “For better or for worse”. Support from partners and family and comprehensive care were important elements for the experiences of coping and healing from OASI. Elements that negatively influenced women’s experiences were the pain and physical symptoms of pelvic floor dysfunction, normalization of symptoms by heath care providers, and unrealistic expectations about how this period in life should be experienced.Conclusions: OASI greatly affects women’s experiences of their first years with their newborn child, relationships, social context and sexuality. For some women, OASI negatively affects everyday life for a long period after childbirth. However, others heal and cope quite quickly. Health care professionals need to identify and pay attention to women with persisting problems after OASI so that they can be directed to the right level of care.

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Section: Discussionmentioning

confidence: 99%

RETRACTED: “From Hell to Healed” – A Qualitative Study on Women’s Experience of Recovery, Relationships and Sexuality after Severe Obstetric Perineal Injury

Huber

Tunón

Lindqvist

2020

Preprint

View full text Add to dashboard Cite

show abstract

“…This opinion is consistent with a systematic mixed studies review about perineal trauma which reported on the theme 'normalization and feeling dismissed', which means women's health problems are regarded as a normal consequence of childbirth and that their questions were left unanswered by health professionals. 51 Some studies reported women felt frustrated and abandoned because they were 'dismissed by health care providers'. 52 53 The study also raised the interplay between physical injury and pain, the societal expectations that this was normal, and the women's personal anxieties about the anticipated damage to their genitalia and anticipated pain with sex.…”

Section: Discussionmentioning

confidence: 99%

“…This opinion is consistent with a systematic mixed studies review about perineal trauma which reported on the theme ‘normalization and feeling dismissed’, which means women’s health problems are regarded as a normal consequence of childbirth and that their questions were left unanswered by health professionals. 51 Some studies reported women felt frustrated and abandoned because they were ‘dismissed by health care providers’. 52 53 …”

Section: Discussionmentioning

confidence: 99%

Women’s experience of episiotomy: a qualitative study from China

Jiang

Qian

et al. 2020

BMJ Open

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ObjectiveTo describe women’s experience of episiotomy in urban China.DesignThis is a semistructured, indepth interview with women after episiotomy. We analysed transcriptions using thematic analysis in Chinese. Emerging themes were debated in English to finalise interpretation.SettingTwo community health centres and four hospitals in Shanghai, China.ParticipantsPurposive sampling of 30 postpartum women who had experienced episiotomy; 25 were primiparous and 4 had deliveries by forceps. We interviewed health providers to complement the data.ResultsWe identified four main themes: (1) women’s views of the procedure vary considerably; (2) pain interferes with daily life for weeks; (3) long-term anxiety is a consequence for some, described as a ‘psychological shadow’; and (4) societal norms assume women will not complain.ConclusionWomen receive little information in advance about episiotomy, yet the procedure has a wide range of physical and psychological consequences. This includes long-term anxiety about the damage done to them as women.

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“…Transcripts were then analyzed with inductive and deductive qualitative content analysis, 44 a commonly used method of qualitative data analysis. [45][46][47] Three independent coders analyzed the transcripts. One coder had not been involved previously in the study.…”

Section: Discussionmentioning

confidence: 99%

Earning the Trust of African American Communities to Increase Representation in Dementia Research

et al. 2020

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Black/African American populations are underrepresented as participants in dementia research. A major barrier to participation of African American older adults in dementia research is a tendency to distrust research institutions owing to both historical and contemporary racism. Building on the Ford framework, the objective of our study was to examine factors that influence participation in dementia research among African American older adults and caregivers, with an emphasis on understanding factors related to trust. Data were collected during January 2019 and March 2020 from 10 focus groups with African American older adults (n=91), 5 focus groups with caregivers (n=44), and interviews with administrators of community-based organizations (n=11), and meetings with our Community Advisory Board. Inductive/deductive content analysis was used to identify themes. The results identified an overall tension between distrust of researchers and a compelling desire to engage in dementia research. This overarching theme was supported by six themes that provided insights about the multiple layers of distrust, as well as expectations about the appropriate conduct of researchers and academic institutions. Strong commitment to the community was identified as a priority. The findings suggest that a paradigm shift is needed to increase the representation of African Americans in dementia research. In this new paradigm, earning the trust of African American communities becomes a systemic endeavor, with academic, state, and national institutions deeply committed to earning the trust of African American communities and guiding researchers in this endeavor. The findings also generated actionable recommendations to help improve representation of African American older adults in dementia research.Ethn Dis. 2020;30(Suppl 2):719-734; doi:10.18865/ed.30.S2.719

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A systematic mixed studies review of women's experiences of perineal trauma sustained during childbirth

Cited by 28 publications

References 54 publications

RETRACTED: “From Hell to Healed” – A Qualitative Study on Women’s Experience of Recovery, Relationships and Sexuality after Severe Obstetric Perineal Injury

RETRACTED: “From Hell to Healed” – A Qualitative Study on Women’s Experience of Recovery, Relationships and Sexuality after Severe Obstetric Perineal Injury

Women’s experience of episiotomy: a qualitative study from China

Earning the Trust of African American Communities to Increase Representation in Dementia Research

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