A systematic literature review on user centered design and participatory design with older people

Duque, Ezequiel Mendes; Fonseca, Guilherme; Vieira, H. B.; Gontijo, Gustavo; Ishitani, Lucila

doi:10.1145/3357155.3358471

Cited by 50 publications

(27 citation statements)

References 51 publications

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“…From a perspective of stroke survivor as consumer, this issue is likely one of the most important considerations for future sEMG system design and function. Interestingly, a lack of meaningful outcomes is a frequently cited reason for rehabilitation technology abandonment, however, user-centered, participatory design and implementation strategies are still not widely used in the development of such technologies, especially with older adults ( 48 – 51 ). It is important to consider, however, that sEMG systems may be less like traditional rehabilitation technologies but more closely resemble other wearable biomedical sensors that are engrained in routine clinical care, such as those that monitor heart rhythm (EKG) or brain activity (EEG).…”

Section: Discussionmentioning

confidence: 99%

“It's All Sort of Cool and Interesting…but What Do I Do With It?” A Qualitative Study of Stroke Survivors' Perceptions of Surface Electromyography

et al. 2020

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Background: Stroke is one of the most common neurologic injuries worldwide. Over decades, evidence-based neurorehabilitation research and advancements in wireless, wearable sensor design have supported the deployment of technologies to facilitate recovery after stroke. Surface electromyography (sEMG) is one such technology, however, clinical application remains limited. To understand this translational practice gap and improve clinical uptake, it is essential to include stakeholder voices in an analysis of neurorehabilitation practice, the acceptability of current sEMG technologies, and facilitators and barriers to sEMG use in the clinic and the community. The purpose of this study was to foreground the perspectives of stroke survivors to gain a better understanding of their experiences in neurorehabilitation, the technologies they have used during their recovery, and their opinions of lab-designed and commercially-available sEMG systems. Methods: A qualitative, phenomenological study was completed. In-depth, semi-structured interviews were conducted with eight stroke survivors (age range 49-78 years, 6 months to 12 years post-stroke) and two caregivers from a large metropolitan region. A demonstration of four sEMG systems was provided to gather perceptions of sensor design, features and function, and user interface. Interviews were audio-recorded, transcribed verbatim, and coded for analysis using constant comparison until data saturation was reached. Results: Three themes emerged from the data: (1) "Surface EMG has potential….but…" highlights the recognition of sEMG as a valuable tool but reveals a lack of understanding and need for clear meaning from the data; (2) "Tracking incremental progress over days or years is important" highlights the persistence of hope and potential benefit of sEMG in detecting small changes that may inform neurorehabilitation practice and policy; and (3) "Neurorehabilitation technology is cumbersome" highlights the tension between optimizing therapy time and trying new technologies, managing cost, logistics and setup , and desired technology features. Feldner et al. Stroke Survivor Perceptions of sEMG Conclusion: Further translation of sEMG technology for neurorehabilitation holds promise for stroke survivors, but sEMG system design and user interface needs refinement. The process of using sEMG technology and products must be simple and provide meaningful insight to recovery. Including stroke survivors directly in translational efforts is essential to improve uptake in clinical environments.

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Section: Discussionmentioning

confidence: 99%

“It's All Sort of Cool and Interesting…but What Do I Do With It?” A Qualitative Study of Stroke Survivors' Perceptions of Surface Electromyography

et al. 2020

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“…people reluctant to engage with technology, and this is probably one of the primary causes that prevent older people becoming loyal users of technological solutions [38,39].…”

Section: Overview Of the Capacity Technological Ecosystemmentioning

confidence: 99%

“…The design of those technologies to be used by older persons must be done according to their characteristics. Methodologies such as user-centered design (UCD) [ 37 ] and participatory design (PD) are a good alternative to develop right solutions for a specific audience [ 33 , 38 ], since they help designers better understand the environment of use. Older people are usually excluded from product design activities since they are stigmatized as people reluctant to engage with technology, and this is probably one of the primary causes that prevent older people becoming loyal users of technological solutions [ 38 , 39 ].…”

Section: Introductionmentioning

confidence: 99%

Usability, User Experience, and Acceptance Evaluation of CAPACITY: A Technological Ecosystem for Remote Follow-Up of Frailty

Pérez‐Rodríguez

Villalba-Mora

Valdés-Aragonés

et al. 2021

Sensors

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Frailty predisposes older persons to adverse events, and information and communication technologies can play a crucial role to prevent them. CAPACITY provides a means to remotely monitor variables with high predictive power for adverse events, enabling preventative personalized early interventions. This study aims at evaluating the usability, user experience, and acceptance of a novel mobile system to prevent disability. Usability was assessed using the system usability scale (SUS); user experience using the user experience questionnaire (UEQ); and acceptance with the technology acceptance model (TAM) and a customized quantitative questionnaire. Data were collected at baseline (recruitment), and after three and six months of use. Forty-six participants used CAPACITY for six months; nine dropped out, leaving a final sample of 37 subjects. SUS reached a maximum averaged value of 83.68 after six months of use; no statistically significant values have been found to demonstrate that usability improves with use, probably because of a ceiling effect. UEQ, obtained averages scores higher or very close to 2 in all categories. TAM reached a maximum of 51.54 points, showing an improvement trend. Results indicate the success of the participatory methodology, and support user centered design as a key methodology to design technologies for frail older persons. Involving potential end users and giving them voice during the design stage maximizes usability and acceptance.

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“…For instance, understanding the desires, needs, and abilities of older adults with cognitive impairment can be extremely complex, dynamic, and unpredictable considering the physical and cognitive challenges faced by this population [ 10 ]. While there is a general agreement on the importance of having a multistakeholder co-design approach to design, implicit complexities such as different viewpoints (eg, people from different sectors or schools of thought), conflicts of interest (eg, intellectual property of the designed solutions), and access to end users that are willing to participate in the design process limit widespread adoption [ 11 ].…”

Section: Introductionmentioning

confidence: 99%

Immersive Virtual Reality Exergames for Persons Living With Dementia: User-Centered Design Study as a Multistakeholder Team During the COVID-19 Pandemic

Muñoz¹,

Mehrabi²,

Li³

et al. 2022

JMIR Serious Games

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Background Advancements in supporting personalized health care and well-being using virtual reality (VR) have created opportunities to use immersive games to support a healthy lifestyle for persons living with dementia and mild cognitive impairment (MCI). Collaboratively designing exercise video games (exergames) as a multistakeholder team is fundamental to creating games that are attractive, effective, and accessible. Objective This research extensively explores the use of human-centered design methods that involve persons living with dementia in long-term care facilitates, exercise professionals, content developers, game designers, and researchers in the creation of VR exergames targeting physical activity promotion for persons living with dementia/MCI. Methods Conceptualization, collaborative design, and playtesting activities were carried out to design VR exergames to engage persons living with dementia in exercises to promote upper limb flexibility, strength, and aerobic endurance. We involved a total of 7 persons living with dementia/MCI, 5 exercise professionals, 5 community-dwelling older adults, a VR company for content creation, and a multidisciplinary research team with game designers, engineers, and kinesiology experts. Results An immersive VR exergame called Seas the Day was jointly designed and developed and it is freely available to be played in state-of-the-art VR headsets (Oculus Quest 1, 2). A model for the triadic interaction (health care institution, industry partner, academia) is also presented to illustrate how different stakeholders contribute to the design of VR exergames that consider/complement complex needs, preferences, and motivators of an underrepresented group of end users. Conclusions This study provides evidence that a collaborative multistakeholder design results in more tailored and context-aware VR games for persons living with dementia. The insights and lessons learned from this research can be used by others to co-design games, including remote engagement techniques that were used during the COVID-19 pandemic.

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A systematic literature review on user centered design and participatory design with older people

Cited by 50 publications

References 51 publications

“It's All Sort of Cool and Interesting…but What Do I Do With It?” A Qualitative Study of Stroke Survivors' Perceptions of Surface Electromyography

“It's All Sort of Cool and Interesting…but What Do I Do With It?” A Qualitative Study of Stroke Survivors' Perceptions of Surface Electromyography

Usability, User Experience, and Acceptance Evaluation of CAPACITY: A Technological Ecosystem for Remote Follow-Up of Frailty

Immersive Virtual Reality Exergames for Persons Living With Dementia: User-Centered Design Study as a Multistakeholder Team During the COVID-19 Pandemic

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