A survey of the services provided by children’s hospices in the United Kingdom

Mash, Elisabeth; Lloyd‐Williams, Mari

doi:10.1007/s00520-006-0123-9

Cited by 7 publications

(5 citation statements)

References 12 publications

(17 reference statements)

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“…This was one more than was found by an earlier survey 15. Our survey did not ask about volunteer involvement specifically with older teenagers and young adults, so we do not know the extent of volunteering with this group.…”

Section: Discussionmentioning

confidence: 80%

“…This was one more than was found by an earlier survey. 15 Our survey did not ask about volunteer involvement specifically with older teenagers and young adults, so we do not know the extent of volunteering with this group. However, young people prefer facilities separate from those for children 12 and can suffer significant social isolation.…”

Section: Young Peoplementioning

confidence: 99%

“…14 While we assumed that voluntarymanaged hospices involved volunteers, we contacted NHS palliative care services to check whether they involved volunteers. We did not specify an upper age limit since some hospices provide services for young adults, 15 reflecting the needs of the increasing number of children surviving into and past adolescence. 1 We developed a web-based 21-item questionnaire mostly of closed questions using SurveyMonkey (SurveyMonkey.com, Palo Alto, California, USA), an internet data-collection service.…”

Section: Introductionmentioning

confidence: 99%

“…1 We developed a web-based 21-item questionnaire mostly of closed questions using SurveyMonkey (SurveyMonkey.com, Palo Alto, California, USA), an internet data-collection service. Questions covered service characteristics (questions 2-9), involvement and number of volunteers (questions 10-12), their role in care services by client group (affected children/ young people, siblings, parents/carers, bereaved families) (13,(15)(16)(17)(18), use of professional skills (14), and activities undertaken in hospices and families' homes (19)(20). The survey also asked respondents to state in a free-text box if there were other areas (not covered in the closed questions) where volunteers are deployed with direct contact with children and families (21).…”

Section: Introductionmentioning

confidence: 99%

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Volunteer activity in specialist paediatric palliative care: a national survey

Burbeck

Low

Sampson

et al. 2013

BMJ Support Palliat Care

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ObjectiveTo assess the involvement of volunteers with direct patient/family contact in UK palliative care services for children and young people.MethodCross-sectional survey using a web-based questionnaire.SettingUK specialist paediatric palliative care services.ParticipantsVolunteer managers/coordinators from all UK hospice providers (n=37) and one National Health Service palliative care service involving volunteers (covering 53 services in total).Main outcomesService characteristics, number of volunteers, extent of volunteer involvement in care services, use of volunteers’ professional skills and volunteer activities by setting.ResultsA total of 21 providers covering 31 hospices/palliative care services responded (30 evaluable responses). Referral age limit was 16–19 years in 23 services and 23–35 years in seven services; three services were Hospice at Home or home care only. Per service, there was a median of 25 volunteers with direct patient/family contact. Services providing only home care involved fewer volunteers than hospices with beds. Volunteers entirely ran some services, notably complementary therapy and pastoral/faith-based care. Complementary therapists, school teachers and spiritual care workers most commonly volunteered their professional skills. Volunteers undertook a wide range of activities including emotional support and recreational activities with children and siblings.ConclusionsThis is the most detailed national survey of volunteer activity in palliative care services for children and young people to date. It highlights the range and depth of volunteers’ contribution to specialist paediatric palliative care services and will help to provide a basis for future research, which could inform expansion of volunteers’ roles.

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Section: Discussionmentioning

confidence: 80%

Section: Young Peoplementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Volunteer activity in specialist paediatric palliative care: a national survey

Burbeck

Low

Sampson

et al. 2013

BMJ Support Palliat Care

View full text Add to dashboard Cite

show abstract

“…In 1967 the world's first modern hospice, St. Christopher's, opened in London (23). The first children's hospices were built 15 years later, and today there are about 40 in the United Kingdom (24). Pediatric palliative care has evolved over the past three decades, shifting from in-patient hospital and hospice care to home and community care, which studies have suggested could reduce costs and improve quality of life (25).…”

Section: United Kingdommentioning

confidence: 99%