A study of patients' experiences of side-effects associated with chemotherapy: pilot stage report

Sitzia, John; Hughes, Jayne; Sobrido, L.

doi:10.1016/0020-7489(95)00022-8

Cited by 30 publications

(22 citation statements)

References 36 publications

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“…The status of chemotherapy-induced alopecia (CIA), however, remains unchanged, even though efforts in prevention and treatment have been ongoing for several decades. Several surveys conducted in the 1980s and 1990s found that cancer patients consider hair loss to be the first, second, or third most troubling side effect of chemotherapy [8,11,15,44]. Similar results were obtained in a more recently reported survey of 100 patients receiving chemotherapy in an outpatient medical oncology clinic, most of whom had breast cancer [3].…”

supporting

confidence: 77%

Chemotherapy-induced alopecia: psychosocial impact and therapeutic approaches

Hesketh

Batchelor²,

Golant

et al. 2004

Support Care Cancer

125

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Despite advances in the treatment of many side effects associated with chemotherapy, alopecia remains an issue that is difficult to resolve. Chemotherapy-induced alopecia (CIA) is a condition that can have profound psychosocial and quality-of-life consequences, resulting in anxiety, depression, a negative body image, lowered self-esteem, and a reduced sense of well-being. Patients who fear CIA may sometimes select regimens with less favorable outcomes or may refuse treatment. When supporting patients with CIA, health care providers should use an individualized approach with a focus placed on the actual moment of hair loss. Education, support groups, and self-care strategies are important components of any management approach. No treatment modality for preventing CIA has been clearly shown to be effective. Recent evidence suggests that new scalp hypothermic regimens may be safe and effective. There remains a critical need for effective new approaches to this problem.

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supporting

confidence: 77%

Chemotherapy-induced alopecia: psychosocial impact and therapeutic approaches

Hesketh

Batchelor²,

Golant

et al. 2004

Support Care Cancer

125

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“…In contrast, while hair loss was recognised by most as a side-effect of chemotherapy (90%), only 60% indicated that information about hair loss was important. This is interesting as hair loss has been reported to be one of the most troublesome and distressing side-effects of chemotherapy [4,23]. Given the social and body image issues associated with hair loss, it is quite possible that the importance placed upon hair loss varies with demographic characteristics of the sample such as age and gender.…”

Section: Discussionmentioning

confidence: 97%

“…Physical effects include nausea, fatigue, and hair loss [23]. A recent study indicated that physical effects from chemotherapy constitute 54% of patients' most distressing concerns [6].…”

Section: Introductionmentioning

confidence: 98%

Development and evaluation of an audiovisual information resource to promote self-management of chemotherapy side-effects

Carey

Jefford

Schofield

et al. 2006

Support Care Cancer

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Based on a theoretical framework, we developed an audiovisual resource to promote self-management of eight common chemotherapy side-effects. A patient needs analysis identified content domains, best evidence for preparing patients for threatening medical procedures and a systematic review of effective self-care strategies informed script content. Patients and health professionals were invited to complete a written evaluation of the video. A 25-min video was produced. Fifty health professionals and 37 patients completed the evaluation. All considered the video informative and easy to understand. The majority believed the video would reduce anxiety and help patients prepare for chemotherapy. Underpinned by a robust theoretical framework, we have developed an evidence-based resource that is perceived by both patients and health professionals as likely to enhance preparedness for chemotherapy.

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“…Other debilitating side effects from treatment include nausea and vomiting, night sweats, physical weakness, weight changes, sleep disturbances, depression, constipation, diarrhea, and a dry mouth (Lianqi et al, 2009;Sitzia, Hughes, & Sobrido, 1995). Self-management practices can be used to ameliorate these problems and may help cancer survivors to realign their normal lives, by guiding them through this uncertain process.…”

Section: Cancer Normality and Self-managementmentioning

confidence: 97%

The Role of Self-Management Practices as Mechanisms for Re-Establishing Normality in Cancer Survivors

2016

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This article explores the relationship between cancer survivors' use of self-management practices and their search for normality. Using Frank's illness narratives and other theoretical literature on normality in chronic illness, it draws on findings from a qualitative study to explore different ways cancer survivors use self-management practices to re-establish normality in their lives post-cancer. The findings suggest that "normality" represents different things to cancer survivors. We suggest that normality in survivorship is not a static concept but is fluid, and at certain times, cancer survivors may display some or all of these different versions of normality. The findings show that self-management practices can help cancer survivors experiment with different health and lifestyle processes to help support their "normal" daily lifestyle activities, quality of life, and well-being.

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A study of patients' experiences of side-effects associated with chemotherapy: pilot stage report

Cited by 30 publications

References 36 publications

Chemotherapy-induced alopecia: psychosocial impact and therapeutic approaches

Chemotherapy-induced alopecia: psychosocial impact and therapeutic approaches

Development and evaluation of an audiovisual information resource to promote self-management of chemotherapy side-effects

The Role of Self-Management Practices as Mechanisms for Re-Establishing Normality in Cancer Survivors

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