A Standard Set of Value-Based Patient-Centered Outcomes for Breast Cancer

Ong, Wee Loon; Schouwenburg, Maartje G.; Bommel, A.C.M. van; Stowell, Caleb; Allison, Kim H.; Benn, Karen; Browne, John; Cooter, Rodney D.; Delaney, Geoff P.; Duhoux, François; Ganz, Patricia A.; Hancock, Patricia; Jagsi, Reshma; Knaul, Felícia Marie; Knip, Anne M.; Koppert, Linetta B.; Kuerer, Henry Mark; McLaughin, Sarah; Mureau, Marc A.M.; Partridge, Ann H.; Reid, Dereesa Purtell; Sheeran, Lisa; Smith, Thomas J.; Stoutjesdijk, Mark J.; Peeters, M; Wengström, Yvonne; Yip, Cheng Har; Saunders, Christobel

doi:10.1001/jamaoncol.2016.4851

Cited by 178 publications

(87 citation statements)

References 53 publications

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“…In addition, the BREAST-Q Satisfaction with Breasts scales is recommended in the International Consortium for Health Outcomes Measurement (ICHOM) standard order set for breast cancer patients. 20 …”

Section: Discussionmentioning

confidence: 99%

BREAST-Q Measurement of the Patient Perspective in Oncoplastic Breast Surgery: A Systematic Review

Liu

Branford

Mehigan

2018

Plastic and Reconstructive Surgery - Global Open

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Section: Discussionmentioning

confidence: 99%

BREAST-Q Measurement of the Patient Perspective in Oncoplastic Breast Surgery: A Systematic Review

Liu

Branford

Mehigan

2018

Plastic and Reconstructive Surgery - Global Open

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“…A number of standardized outcome measurement sets have been created using this approach. 46 – 48 Currently, an ICHOM-led program to standardize the outcome measurements in pediatric facial palsy care is underway. 49…”

Section: Multidisciplinary Collaboration In Outcome Measurementmentioning

confidence: 99%

Facial palsy: what can the multidisciplinary team do?

Butler¹,

Grobbelaar²

2017

JMDH

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The functional and psychosocial impact of facial paralysis on the patient is significant. In response, a broad spectrum of treatment options exist and are provided by a multitude of health care practitioners. The cause and duration of the facial weakness can vary widely and the optimal care pathway varies. To optimize patient outcome, those involved in the care of patients with facial palsy should collaborate within comprehensive multidisciplinary teams (MDTs). At an international level, those involved in the care of patients with facial paralysis should aim to create standardized guidelines on which outcome domains matter most to patients to aid the identification of high quality care. This review summarizes the causes and treatment options for facial paralysis and discusses the subsequent importance of multidisciplinary care in the management of patients with this condition. Further discussion is given to the extended role of the MDT in determining what constitutes quality in facial palsy care to aid the creation of accepted care pathways and delineate best practice.

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“…This study supports the need to develop a COS for HD to ensure that study results can be compared and combined in the future. Next step will be a consensus study with both patients and healthcare professionals using the Delphi methodology [22]. With this review study, we have derived potentially relevant outcome domains for the development of such COS for HD (47).…”

Section: Discussionmentioning

confidence: 99%

“…Also Core Outcome Measures in Effectiveness Trials (COMET) [21] and the International Consortium for Health Outcomes Measurement (ICHOM) [22, 23] initiatives developed a guideline for developing a COS.…”

Section: Introductionmentioning

confidence: 99%

“…Since 1992, the Outcome Measures in Rheumatology (OMERACT) group developed many core outcome sets (COSs) according to a framework and methodology (i.e., the OMERACT Filter) for the identification and validation of core outcome measurement sets for use in clinical trials for any health condition [ 20 ]. Also Core Outcome Measures in Effectiveness Trials (COMET) [ 21 ] and the International Consortium for Health Outcomes Measurement (ICHOM) [ 22 , 23 ] initiatives developed a guideline for developing a COS.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Towards a core outcome set for hemorrhoidal disease—a systematic review of outcomes reported in literature

Tol

Zwietering

Kleijnen

et al. 2018

Int J Colorectal Dis

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PurposePreviously published literature regarding treatment of hemorrhoidal disease (HD) revealed a lack of uniform defined outcomes. These differences between outcomes among studies limit transparency and lead to incomparability of results. The aim of this study was to systematically list the types of outcomes used in HD studies. This list will be used to develop a core outcome set.MethodsWe searched Medline (Pubmed), Embase (OVID), and Cochrane for interventional studies for adult patients with HD. Two authors independently identified and reviewed eligible studies. This resulted in a list of outcomes reported by each clinical trial. All outcomes were categorized using the conceptual framework OMERACT filter 2.0.ResultsA total of 34 randomized controlled trials and prospective observational studies were included in this study. A total of 59 different types of outcomes were identified. On average, 5.8 different outcomes (range 2–8) were used per study. The outcomes were structured into three core areas and10 ten domains. The most commonly reported core area was pathophysiological manifestations including the domain symptoms, complications, and recurrence. The most frequently reported outcomes were pain (91%), blood loss (94%), prolapse (71%), and incontinence (56%). There was a high variation in definitions of the common outcomes. And often there was no definition at all.ConclusionThis study shows a substantial heterogeneity in the types of outcomes in HD studies. We provided an overview of the types of outcomes reported in HD studies and identified a list of potentially relevant outcomes required for the development of a COS.Electronic supplementary materialThe online version of this article (10.1007/s00384-018-3046-2) contains supplementary material, which is available to authorized users.

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A Standard Set of Value-Based Patient-Centered Outcomes for Breast Cancer

Cited by 178 publications

References 53 publications

BREAST-Q Measurement of the Patient Perspective in Oncoplastic Breast Surgery: A Systematic Review

BREAST-Q Measurement of the Patient Perspective in Oncoplastic Breast Surgery: A Systematic Review

Facial palsy: what can the multidisciplinary team do?

Towards a core outcome set for hemorrhoidal disease—a systematic review of outcomes reported in literature

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