A Sleep Habits Questionnaire for Children With Autism Spectrum Disorders

Malow, Beth A.; Crowe, C.; Henderson, Lynnette M.; McGrew, Susan G.; Wang, Lily; Song, Yanna; Stone, Wendy L.

doi:10.1177/0883073808321044

Cited by 79 publications

(62 citation statements)

References 13 publications

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“…For example, the Children's Sleep Habits Questionnaire 272 is designed for children aged 4-12 years, and has been reviewed by Majnemer 29 for use with children with developmental disabilities. The Family Inventory of Sleep Habits for children with ASD 273 focuses on the particular problems of sleep anxiety and bedtime resistance. The Brief Autism Mealtime Behavior Inventory 274 is a tool recently developed specifically to assess eating problems in children with ASD.…”

Section: Subdomains For Which Tools Are Lackingmentioning

confidence: 99%

Systematic review of tools to measure outcomes for young children with autism spectrum disorder

McConachie

Parr

Glod

et al. 2015

Health Technology Assessment

229

261

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BackgroundThe needs of children with autism spectrum disorder (ASD) are complex and this is reflected in the number and diversity of outcomes assessed and measurement tools used to collect evidence about children’s progress. Relevant outcomes include improvement in core ASD impairments, such as communication, social awareness, sensory sensitivities and repetitiveness; skills such as social functioning and play; participation outcomes such as social inclusion; and parent and family impact.ObjectivesTo examine the measurement properties of tools used to measure progress and outcomes in children with ASD up to the age of 6 years. To identify outcome areas regarded as important by people with ASD and parents.MethodsThe MeASURe (Measurement in Autism Spectrum disorder Under Review) research collaboration included ASD experts and review methodologists. We undertook systematic review of tools used in ASD early intervention and observational studies from 1992 to 2013; systematic review, using the COSMIN checklist (Consensus-based Standards for the selection of health Measurement Instruments) of papers addressing the measurement properties of identified tools in children with ASD; and synthesis of evidence and gaps. The review design and process was informed throughout by consultation with stakeholders including parents, young people with ASD, clinicians and researchers.ResultsThe conceptual framework developed for the review was drawn from the International Classification of Functioning, Disability and Health, including the domains ‘Impairments’, ‘Activity Level Indicators’, ‘Participation’, and ‘Family Measures’. In review 1, 10,154 papers were sifted – 3091 by full text – and data extracted from 184; in total, 131 tools were identified, excluding observational coding, study-specific measures and those not in English. In review 2, 2665 papers were sifted and data concerning measurement properties of 57 (43%) tools were extracted from 128 papers. Evidence for the measurement properties of the reviewed tools was combined with information about their accessibility and presentation. Twelve tools were identified as having the strongest supporting evidence, the majority measuring autism characteristics and problem behaviour. The patchy evidence and limited scope of outcomes measured mean these tools do not constitute a ‘recommended battery’ for use. In particular, there is little evidence that the identified tools would be good at detecting change in intervention studies. The obvious gaps in available outcome measurement include well-being and participation outcomes for children, and family quality-of-life outcomes, domains particularly valued by our informants (young people with ASD and parents).ConclusionsThis is the first systematic review of the quality and appropriateness of tools designed to monitor progress and outcomes of young children with ASD. Although it was not possible to recommend fully robust tools at this stage, the review consolidates what is known about the field and will act as a benchmark for future developments. With input from parents and other stakeholders, recommendations are made about priority targets for research.Future workPriorities include development of a tool to measure child quality of life in ASD, and validation of a potential primary outcome tool for trials of early social communication intervention.Study registrationThis study is registered as PROSPERO CRD42012002223.FundingThe National Institute for Health Research Health Technology Assessment programme.

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Section: Subdomains For Which Tools Are Lackingmentioning

confidence: 99%

Systematic review of tools to measure outcomes for young children with autism spectrum disorder

McConachie

Parr

Glod

et al. 2015

Health Technology Assessment

229

261

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“…Insomnia in children with ASD occurs across all cognitive levels, and the prevalence may be as high as 60–86%, which is two to three times greater than typically developing (TD) children [3, 7, 22–27]. Insomnia in children with ASD is one of the primary concerns parents have and one of the major reasons why many families seek medical help [28]. Moreover, insomnia in children with ASD has been found to alter parents' sleep and add tremendous stress to their families' lives [29].…”

Section: What Is Insomnia and What Is The Prevalence Of Insomnia In Cmentioning

confidence: 99%

Sleep in Children with Autism Spectrum Disorder

Souders

Zavodny

Eriksen

et al. 2017

Curr Psychiatry Rep

200

143

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The purposes of this paper are to provide an overview of the state of the science of sleep in children with autism spectrum disorder (ASD), present hypotheses for the high prevalence of insomnia in children with ASD, and present a practice pathway for promoting optimal sleep. Approximately two thirds of children with ASD have chronic insomnia, and to date, the strongest evidence on promoting sleep is for sleep education, environmental changes, behavioral interventions, and exogenous melatonin. The Sleep Committee of the Autism Treatment Network (ATN) developed a practice pathway, based on expert consensus, to capture best practices for screening, identification, and treatment for sleep problems in ASD in 2012. An exemplar case is presented to integrate key constructs of the practice pathway and address arousal and sensory dysregulation in a child with ASD and anxiety disorder. This paper concludes with next steps for dissemination of the practice pathway and future directions for research of sleep problems in ASD.

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“…The Modified Simonds and Parraga Sleep Questionnaire (MSPSQ) is another parent questionnaire tool that has been compared to the Children's Sleep Habits Questionnaire and has more extensive descriptions of sleep disorders which might provide more diagnostic precision [24]. Another sleep assessment option is the Adolescent Sleep Wake Scale [25] which is available for older children, while the Family Inventory of Sleep Habits [26] questions focus on different environmental factors which may be relevant for identifying sleep intervention targets [22].…”

Section: Sleep Disordersmentioning

confidence: 98%

Autism and Medical Comorbidities

Schiff¹,

Asato²

2015

Autism Spectrum Disorders

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Individuals with autism spectrum disorders (ASD) are at an increased risk for medical comorbidities which often remain undetected and negatively impact their developmental progress. These include gastrointestinal disorders, oral health problems, sleep disorders, and epilepsy. Greater awareness and treatment of these comorbidities are essential to improve the quality of life and sometimes ASD symptoms. While inborn errors of metabolism should not typically be considered a comorbidity in ASD, they should not be neglected as a possible etiology of ASD in some very rare situations of syndromic autism with associated features. © 2015 S. Karger AG, BaselAutism spectrum disorders (ASD) are lifelong and are associated with higher rates of medical comorbidities than in the general population. These problems include: gastrointestinal (GI) disturbance [1]; oral health problems [2]; an increased risk of respiratory, food, and skin allergies [3]; sleep disorders [4], and epilepsy [5, 6]. Many medical conditions appear early, sometimes preceding the diagnosis of ASD, and can continue into adulthood, requiring specialized care [7]. Typically, the medical comorbidities should be viewed as accompanying clinical features as opposed to representations of the etiology of ASD. Conversely, in some rare situations, inborn errors of metabolism (IEM) may be the cause of ASD. The relationship between IEM and ASD will be discussed.Despite higher rates of medical care use compared to the general pediatric population [3,8,9], patients and families experience challenges accessing specialized health care [10,11]. The unmet needs tend to be higher in nonmetropolitan areas, among patients with limited or no insurance or a lower family income, and among minority families [11]. The additive impact of medical comorbidities in ASD can be linked to higher financial stressors for families in relation to costs and the time needed to meet

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A Sleep Habits Questionnaire for Children With Autism Spectrum Disorders

Cited by 79 publications

References 13 publications

Systematic review of tools to measure outcomes for young children with autism spectrum disorder

Systematic review of tools to measure outcomes for young children with autism spectrum disorder

Sleep in Children with Autism Spectrum Disorder

Autism and Medical Comorbidities

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