A Scoping Study of Psychosocial Factors in Women Diagnosed With and/or Treated for Pelvic Organ Prolapse

Touza, Kaitlin K.; Rand, Kevin L.; Carpenter, Janet S.; Chen, Chen X.; Heit, Michael

doi:10.1097/spv.0000000000000578

Cited by 10 publications

(9 citation statements)

References 150 publications

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“…The criterion validity was found to be within an acceptable range. These findings are consistent with those of previous studies [ 9 , 13 ], although they used different relative standard as a criterion.…”

Section: Discussionsupporting

confidence: 93%

“…Although mortality is rare, PFDs negatively impact women’s health-related quality of life (HRQoL) with physical, psychological, sexual, and social implications [ 2 , 3 , 6 , 7 ]. The severity of symptoms and their impact on QoL are important parameters in the management and follow-up of women with PFDs [ 8 , 9 ]. Hence, in urogynecology, the use of patient-reported outcomes (PRO) for outcome measures is recommended [ 10 ].…”

Section: Introductionmentioning

confidence: 99%

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Translation, reliability, and validity of Amharic versions of the Pelvic Floor Distress Inventory (PFDI-20) and Pelvic Floor Impact Questionnaire (PFIQ-7)

et al. 2022

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Purpose Pelvic Floor Disorders (PFDs) affects many women and have a significant impact on their quality of life. Pelvic Floor Impact Questionnaire (PFIQ-7) and Pelvic Floor Distress Inventory (PFDI-20) help to assess PFDs; however, both are not culturally translated into the Amharic-language. Hence, we aimed to translate the English versions of short forms of the PFDI-20 and PFIQ-7 into Amharic-language and evaluate their psychometric properties in Amharic-speaking Ethiopian women with symptomatic PFDs. Methods The PFDI-20 and PFIQ-7 were translated into Amharic language using standard procedures. The Amharic versions were completed by 197 patients (response rate 92%) with PFDs from University of Gondar specialized and comprehensive Hospital. Internal consistency and test-retest reliability were examined through Cronbach’s alpha and Intraclass correlation coefficients (ICC). A relative criterion standard, POP-SS-7 score, was correlated with total PFDI-20 and subscale POPDI-6 scores using spearman’s rank order correlation (SCC). Construct validity was evaluated by known group validity using the Mann–Whitney U test. Results Both instruments were successfully translated and adapted with an excellent content validity (> 0.90). The Amharic versions of the PFDI-20 and PFIQ-7 showed excellent internal consistency and test-retest reliability in both summary and subscales (Cronbach’s alpha: 0.92 for PFDI-20 and 0.91 for PFIQ-7; and ICC: 0.97 for PFDI-20 and 0.86 for PFIQ-7). Criterion validity was good for POPDI-6 (SCC = 0.71; p < 0.001). Moreover, construct validity was acceptable, showing significant differences among groups of PFDs in the PFDI-20 and PFIQ-7 scores (Mann–Whitney U Test; p < 0.001). Conclusions The Amharic versions of the PFDI-20 and PFIQ-7 are comprehensible, reliable, valid, and feasible in Ethiopian Amharic-speaking women with PFDs to evaluate symptoms and its impact during research and clinical practice. However, further studies are needed to evaluate the responsiveness.

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Section: Discussionsupporting

confidence: 93%

Section: Introductionmentioning

confidence: 99%

Translation, reliability, and validity of Amharic versions of the Pelvic Floor Distress Inventory (PFDI-20) and Pelvic Floor Impact Questionnaire (PFIQ-7)

et al. 2022

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“…Moreover, there is an established relationship between a more advanced stage POP and postpartum levator ani muscle (LAM) avulsion [6,7]. It is well documented that there is a decades-long delay between childbirth and onset of sPOP, and since women become symptomatic later in life [3,4,8,9] it is not surprising that most of the existing studies on POP focus on postmenopausal women or women shortly before menopause [10]. Bothersome symptoms of POP can be reported as early as in women's 20s, may occur immediately after vaginal birth [11] and may be accompanied by LAM injury [12].…”

Section: Introductionmentioning

confidence: 99%

Online reported women's experiences of symptomatic pelvic organ prolapse after vaginal birth

Mirskaya

Lindgren

Carlsson

2019

Preprint

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Background: Pelvic organ prolapse (POP) is a major public health problem with a relative high lifetime risk of surgery. The main risk factor for developing POP is vaginal birth. Many women become symptomatic later in life and most of the existing research on symptomatic pelvic organ prolapse (sPOP) predominantly concentrates on the effects of the condition on postmenopausal women. However, bothersome symptoms of POP can be reported as early as in women’s 20s and may occur shortly after vaginal birth. Limited studies provide an insight into daily life of fertile women with sPOP. Thus, we aimed to explore fertile women's experiences of symptomatic pelvic organ (sPOP) after vaginal birth. Methods: An inductive, text-driven approach was taken by selecting thread posts from an internet forum written by 33 Swedish fertile women who had experienced sPOP after vaginal birth. Results: The overarching theme “being irreparably damaged” was identified as representing an experience of being disabled by sPOP after vaginal birth. The fertile women experienced that their lives were ruined because of physical and psychological limitations caused by this unexpected, unfamiliar and unexplained condition. Living with sPOP impinged on sexual health, restricted daily and sports activities and affected the women´s ability to fulfill everyday parental duties. This in turn compromised women’s psychological health. In addition, the negligence of healthcare professionals who tended to trivialize and normalize the symptoms led to the belief that there were no sustainable treatments and that women would have to live with bothersome symptoms of POP for rest of their lives. Conclusions: This study found that sPOP had a significant negative impact on fertile women’s lives. The women indicated that they had not had the opportunity to voice their concerns and had not been taken seriously by healthcare professionals. It is of the utmost importance to acknowledge this problem and develop guidelines for prevention and management of sPOP to improve the quality of life for women.

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“…Moreover, there is an established relationship between a more advanced stage POP and postpartum levator ani muscle (LAM) avulsion [6, 7]. It is well documented that there is a decades-long delay between childbirth and onset of sPOP, and since women become symptomatic later in life [3, 4, 8, 9] it is not surprising that most of the existing studies on POP focus on postmenopausal women or women shortly before menopause [10]. Bothersome symptoms of POP can be reported as early as in women’s 20s, may occur immediately after vaginal birth [11] and may be accompanied by LAM injury [12].…”

Section: Introductionmentioning

confidence: 99%

Online reported women’s experiences of symptomatic pelvic organ prolapse after vaginal birth

2019

View full text Add to dashboard Cite

BackgroundPelvic organ prolapse (POP) is a major public health problem with a relative high lifetime risk of surgery. The main risk factor for developing POP is vaginal birth. Many women become symptomatic later in life and most of the existing research on symptomatic pelvic organ prolapse (sPOP) predominantly concentrates on the effects of the condition on postmenopausal women. However bothersome symptoms of POP can be reported as early as in women’s 20s and may occur shortly after vaginal birth. Limited studies provide an insight into daily life of fertile women with sPOP. Thus, we aimed to explore fertile women’s experiences of symptomatic pelvic organ (sPOP) after vaginal birth.MethodsAn inductive, text-driven approach was taken by selecting thread posts from an internet forum written by 33 Swedish fertile women who had experienced sPOP after vaginal birth.ResultsThe overarching theme “being irreparably damaged” was identified as representing an experience of being disabled by sPOP after vaginal birth. The fertile women experienced that their lives were ruined because of physical and psychological limitations caused by this unexpected, unfamiliar and unexplained condition. Living with sPOP impinged on sexual health, restricted daily and sports activities and affected the women’s ability to fulfill everyday parental duties. This in turn compromised women’s psychological health. In addition, the negligence of healthcare professionals who tended to trivialize and normalize the symptoms led to the belief that there were no sustainable treatments and that women would have to live with bothersome symptoms of POP for rest of their lives.ConclusionsThis study found that sPOP had a significant negative impact on fertile women’s lives. The women indicated that they had not had the opportunity to voice their concerns and had not been taken seriously by healthcare professionals. It is of the utmost importance to acknowledge this problem and develop guidelines for prevention and management of sPOP to improve the quality of life for women.

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A Scoping Study of Psychosocial Factors in Women Diagnosed With and/or Treated for Pelvic Organ Prolapse

Cited by 10 publications

References 150 publications

Translation, reliability, and validity of Amharic versions of the Pelvic Floor Distress Inventory (PFDI-20) and Pelvic Floor Impact Questionnaire (PFIQ-7)

Translation, reliability, and validity of Amharic versions of the Pelvic Floor Distress Inventory (PFDI-20) and Pelvic Floor Impact Questionnaire (PFIQ-7)

Online reported women's experiences of symptomatic pelvic organ prolapse after vaginal birth

Online reported women’s experiences of symptomatic pelvic organ prolapse after vaginal birth

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