A Scoping Review of Evidence on the Use and Effectiveness of Decision Aids in Adult Social Care

Baxter, Kate; Mann, Rachel; Birks, Yvonne; Overton, Louise

doi:10.31389/jltc.56

Cited by 3 publications

(3 citation statements)

References 25 publications

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“…Other research could helpfully move from research on experiences and preferences to actual design and testing of support systems to improve navigation. A review of decision-making aids [21] has found a clear gap in research to support social care navigation, despite a plethora of such systems available in healthcare decisions.…”

Section: Discussionmentioning

confidence: 99%

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A Discrete Choice Experiment of Older Self-Funders’ Preferences When Navigating Community Social Care

Jasper,

Wright,

Rogers

et al. 2023

Health & Social Care in the Community

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Most long-term care systems (social care) for older people rely on some means testing, copayment system, private insurance, or other non-governmental funding to supplement state provision. In England, an estimated quarter of homecare delivery is funded privately. For many older people, the absence of state funding for their care is only part of the problem: they are also expected to search for care in a market characterised by complexity, plurality, and imperfect information. Surprisingly, there are few services available to support private funders to navigate the system. This paper examines willingness to pay for care navigation and seeks to classify heterogeneity of preferences for navigation support. A discrete choice experiment (DCE) survey was completed by 182 participants across England in 2020-21. The results of the random parameter logit model used to analyse preferences showed that people valued information about care options (quality, information, and finances), but they also wanted help to “think things through,” as processing information could be challenging. Generally, participants valued what the navigation service provided, more than how the services were organised and delivered. The study also used latent class analysis to identify four groups with similar preferences, with almost half of participants (48%) expressing high willingness to pay for a comprehensive navigation service. The other three classes represented those with preferences focused on a narrower set of attributes: fast access to information (20%), affordable help to “think things through” (18%), and information provided by their local council (14%). The study demonstrates the potential demand and likely take-up of navigation support if made available to people who pay privately for care. Future research needs to examine the barriers to market development for social care navigation services.

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Section: Discussionmentioning

confidence: 99%

“…While information alone may be regarded as necessary, it is unlikely to be sufcient to fully meet the criteria for good decision-making. A review of the skills needed to fnd and plan social care implies an almost inevitability that this could not be done without support [21].…”

Section: Introductionmentioning

confidence: 99%

A Discrete Choice Experiment of Older Self-Funders’ Preferences When Navigating Community Social Care

Jasper,

Wright,

Rogers

et al. 2023

Health & Social Care in the Community

Self Cite

View full text Add to dashboard Cite

show abstract

“…When creating these aids, it is essential to consider 3 critical components, economic costs, health and recovery aspects, and social and environmental support. Despite the increasing availability of technology-based decision-making aids, printed materials in large print, colorful chart cards, or brochures remain the most widely accepted format among patients and their surrogates, especially for more elderly populations [ 25 ].…”

Section: Solution Strategies For This Clinical Scenariomentioning

confidence: 99%

The Challenges in Using eHealth Decision Resources for Surrogate Decision-Making in the Intensive Care Unit

Sun,

Kao

2024

J Med Internet Res

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The mortality rate in intensive care units (ICUs) is notably high, with patients often relying on surrogates for critical medical decisions due to their compromised state. This paper provides a comprehensive overview of eHealth. The challenges of applying eHealth tools, including economic disparities and information inaccuracies are addressed. This study then introduces eHealth literacy and the assessment tools to evaluate users’ capability and literacy levels in using eHealth resources. A clinical scenario involving surrogate decision-making is presented. This simulated case involves a patient with a hemorrhagic stroke who has lost consciousness and requires medical procedures such as tracheostomy. However, due to the medical surrogate’s lack of familiarity with eHealth devices and limited literacy in using eHealth resources, difficulties arise in assisting the patient in making medical decisions. This scenario highlights challenges related to eHealth literacy and solution strategies are proposed. In conclusion, effective ICU decision-making with eHealth tools requires a careful balance between efficiency with inclusivity. Tailoring communication strategies and providing diverse materials are essential for effective eHealth decision resources in the ICU setting. Health professionals should adopt a patient-centered approach to enhance the decision-making experience, particularly for individuals with limited eHealth literacy.

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The Challenges in Using eHealth Decision Resources for Surrogate Decision-Making in the Intensive Care Unit (Preprint)

Sun,

Kao

2023

Preprint

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UNSTRUCTURED The mortality rate in intensive care units (ICUs) is notably high, with patients often relying on surrogates for critical medical decisions due to their compromised state. This paper provides a comprehensive overview of eHealth. The challenges of applying eHealth tools, including economic disparities and information inaccuracies are addressed. This study then introduces eHealth literacy and the assessment tools to evaluate users’ capability and literacy levels in using eHealth resources. A clinical scenario involving surrogate decision-making is presented. This simulated case involves a patient with a hemorrhagic stroke who has lost consciousness and requires medical procedures such as tracheostomy. However, due to the medical surrogate’s lack of familiarity with eHealth devices and limited literacy in using eHealth resources, difficulties arise in assisting the patient in making medical decisions. This scenario highlights challenges related to eHealth literacy and solution strategies are proposed. In conclusion, effective ICU decision-making with eHealth tools requires a careful balance between efficiency with inclusivity. Tailoring communication strategies and providing diverse materials are essential for effective eHealth decision resources in the ICU setting. Health professionals should adopt a patient-centered approach to enhance the decision-making experience, particularly for individuals with limited eHealth literacy.

show abstract

A Scoping Review of Evidence on the Use and Effectiveness of Decision Aids in Adult Social Care

Cited by 3 publications

References 25 publications

A Discrete Choice Experiment of Older Self-Funders’ Preferences When Navigating Community Social Care

A Discrete Choice Experiment of Older Self-Funders’ Preferences When Navigating Community Social Care

The Challenges in Using eHealth Decision Resources for Surrogate Decision-Making in the Intensive Care Unit

The Challenges in Using eHealth Decision Resources for Surrogate Decision-Making in the Intensive Care Unit (Preprint)

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