A school curriculum for Fetal Alcohol Spectrum Disorder: advice from a young adult with FASD

Brenna, Beverley; Burles, Meridith; Holtslander, Lorraine; Bocking, Sarah

doi:10.1080/13603116.2016.1193565

Cited by 9 publications

(5 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Two articles were from a single case study, using Photovoice and interviews with an individual with FASD and his parents to explore his subjective experiences of young adulthood (Brenna et al, 2017 ; Burles et al, 2018 ). He was reported to have significant “resilience and self‐awareness,” evidenced by his adaptability in managing the challenges of living with FASD, and his ability to recognize his own strengths, which supported his self‐advocacy.…”

Section: Resultsmentioning

confidence: 99%

“…When discussing his desire for independence and increased responsibility, the young man underscored the necessity of support, especially from peers. He understood FASD to be only one part of his multifaceted identity, and at times a source of strength and self‐worth (Brenna et al, 2017 ). In the second paper, researchers reported that the young man's strong self‐awareness, positive coping skills, adaptability, recognition of personal strengths, and resilience supported his transition to adulthood (Burles et al, 2018 ).…”

Section: Resultsmentioning

confidence: 99%

“…part of his multifaceted identity, and at times a source of strength and self-worth (Brenna et al, 2017). In the second paper, researchers reported that the young man's strong self-awareness, positive coping skills, adaptability, recognition of personal strengths, and resilience supported his transition to adulthood (Burles et al, 2018).…”

Section: Studies With Adultsmentioning

confidence: 99%

See 2 more Smart Citations

Balancing the story of fetal alcohol spectrum disorder: A narrative review of the literature on strengths

Flannigan

Wrath

Ritter

et al. 2021

Alcoholism Clin & Exp Res

View full text Add to dashboard Cite

For many years, researchers have explored the complex challenges experienced by individuals with fetal alcohol spectrum disorder (FASD). This research has been important for documenting the brain-and body-based impacts of prenatal alcohol exposure and the psychosocial vulnerabilities and environmental adversities frequently associated with FASD. It has also supported advocacy efforts and highlighted the necessity of providing FASD services and supports. However, with the focus on deficits and needs, there is a considerable gap in the literature on the strengths and successes of individuals with FASD. The lack of strengths-based FASD research has likely perpetuated the stress and stigma experienced by individuals with FASD and their families. Thus, there is a critical need to shift the direction of the field. Here we provide a narrative review of the literature on strengths in FASD. Our goals are to: (1) understand the state of strengths-based research related to individuals with FASD across the lifespan, and (2) describe positive characteristics, talents, and abilities of individuals with FASD that may be cultivated to promote their fulfillment and wellbeing. We identified a total of 19 studies, most of which were conducted to explore the lived experiences of adults with FASD. This preliminary but critical body of evidence highlights the intrinsic strengths of individuals with FASD, including strong selfawareness, receptiveness to support, capacity for human connection, perseverance through challenges, and hope for the future.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Studies With Adultsmentioning

confidence: 99%

See 1 more Smart Citation

Balancing the story of fetal alcohol spectrum disorder: A narrative review of the literature on strengths

Flannigan

Wrath

Ritter

et al. 2021

Alcoholism Clin & Exp Res

View full text Add to dashboard Cite

show abstract

“…Centring activities around adolescents' strengths was another effective strategy to manage anxiety and encourage participation in activities that adolescents might otherwise have avoided. Although few studies have explored the strengths of children with FASD, previous research found that activities providing enjoyment or feelings of success enabled children with FASD to overcome challenges participating in activities, 25,27,28 whereas it was more difficult to engage in tasks that were not meaningful. 21 As with many typically developing adolescents, the second superordinate theme, 'importance of a unique identity', illustrated participants' desire to be appreciated as individuals.…”

Section: Discussionmentioning

confidence: 99%

Lived experiences of adolescents with fetal alcohol spectrum disorder

Skorka

Copley

McBryde

et al. 2022

Develop Med Child Neuro

View full text Add to dashboard Cite

Aim To explore the lived experiences of adolescents with fetal alcohol spectrum disorder (FASD) to understand: the ways in which their challenges influence daily functioning; and the personal assets and external resources that facilitate participation. Method Semi‐structured interviews were conducted with four adolescents (one identified as non‐binary, one male, and two female) with FASD aged 13 to 15 years. A photo elicitation approach facilitated participation, whereby adolescents first took photographs of their daily activities and environments. Photographs were subsequently used to generate discussion during the interviews. Data analysis involved using interpretative phenomenological analysis to generate themes. Results Two superordinate themes and three subthemes relating to participants' lived experiences emerged from the interviews: (1) ‘anxiety challenges participation’ (subthemes [i] ‘need for external support’; [ii] ‘the power of positive relationships’; and [iii] ‘talents and interests facilitate participation’) and (2) ‘importance of a unique identity’. Interpretation Findings illustrated the barriers adolescents experienced regarding their daily functioning and independence. Additionally, incorporating strengths into daily activities appeared to reduce anxiety and improve participation, and adolescents desired for their unique characteristics to be recognized and appreciated. To support adolescents with FASD, service providers should consider incorporating strengths‐based approaches and an explicit focus on facilitating the development of positive self‐identities. What this paper adds Anxiety often prevented adolescents' independent participation in social activities, requiring caregiver assistance. Strengths (e.g. talents, positive relationships) facilitated adolescents' participation and reduced their anxiety. Clinicians and researchers should consider strengths‐based approaches to interventions targeting participation. Interventions for adolescents with fetal alcohol spectrum disorder could focus on developing a positive self‐identity.

show abstract

“…Estimates of the prevalence rate of FASD in Canada range from approximately 2% to 3% of the overall population, with some communities experiencing rates of FASD as high as one in five births. [15][16][17] FASD impacts individuals and families from all socioeconomic and ethnic backgrounds. 17 Thus, individuals with FASD form a diverse population with many areas of strengths and needs, and are often unique in their presentation of, and experiences related to, FASD.…”

Section: Evolving Intervention Approaches In Fasdmentioning

confidence: 99%

Towards Healthy Outcomes for Individuals with FASD

Joly

Harding

Pei

2022

Journal of Fetal Alcohol Spectrum Disorder

View full text Add to dashboard Cite

Background and objectiveIndividuals with Fetal Alcohol Spectrum Disorder (FASD) may experience a range of behavioral, cognitive, and physiological difficulties that can result from prenatal alcohol exposure. Intervention approaches for individuals with FASD are required to respond to evolving strengths and needs throughout their lifespan. Material and methodsIn response to these evolving unique needs, best practices were developed by integrating current research findings with the experiences of individuals with FASD and their caregivers. The “Towards Healthy Outcomes” approach has been developed to provide an evidence-informed framework to support intervention for individuals with FASD throughout their lifespan. ResultsThis framework was developed based on core philosophies that create opportunities for individualized intervention support, including development throughout the lifespan, impact of interacting systems, and a strengths-based approach. These underlying philosophies and core beliefs are actioned throughout the lifespan around the following 12 domains: (1) physical health; (2) attachment; (3) family cohesion; (4) social functioning; (5) mental health and regulation; (6) education; (7) identity development; (8) community engagement; (9) adaptive skills; (10) housing; (11) employment; and (12) parenting skills. To establish its potential use, each of these domains is considered broadly within the context of FASD field, including the new ideas put forward by the studies included in this issue. ConclusionThe “Towards Healthy Outcomes” framework is an intervention approach that facilitates proactive and evidence-informed approaches to foster the development of individuals with FASD. It provides developmental considerations that are specific to the 12 domains and reflect the whole person. Furthermore, the “Towards Healthy Outcomes” framework allows for the integration of research with the lived experiences of caregivers and individuals with FASD that bridges existing research gaps.

show abstract

A school curriculum for Fetal Alcohol Spectrum Disorder: advice from a young adult with FASD

Cited by 9 publications

References 28 publications

Balancing the story of fetal alcohol spectrum disorder: A narrative review of the literature on strengths

Balancing the story of fetal alcohol spectrum disorder: A narrative review of the literature on strengths

Lived experiences of adolescents with fetal alcohol spectrum disorder

Towards Healthy Outcomes for Individuals with FASD

Contact Info

Product

Resources

About