A Review of Web Portal Use by Oncology Patients

Coughlin, Steven S.; Caplan, Lee S.; Young, Lufei

doi:10.29245/2578-2967/2018/6.1154

Cited by 23 publications

(17 citation statements)

References 17 publications

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“…Also surprising is that time since cancer diagnosis was not associated with satisfaction using this communication modality to communicate with oncology clinicians. A recent study found that patient portals are commonly used by patients with an existing cancer diagnosis (i.e., younger, white, and higher socioeconomic status) to review test results [ 15 ]. Efforts to further segment patients with cancer according to their point on the care continuum, beyond simply date of diagnosis, will be important to understand the nuances of cancer care and secure message use.…”

Section: Discussionmentioning

confidence: 99%

Cancer patients’ satisfaction with telehealth during the COVID-19 pandemic

et al. 2022

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Objective To examine factors associated with cancer patients’ satisfaction using telehealth during COVID-19, including video conferencing platforms and secure messaging systems. Method Patients with cancer participated in a cross-sectional, web-based survey was conducted with patients with cancer. The survey included questions about satisfaction with video-conferencing and secure messaging platforms to interact with clinicians during the COVID-19 pandemic. Logistic regression analyses were conducted to examine predictors of satisfaction for each telehealth platform. Results Participants generally reported positive satisfaction with each telehealth platform. Both platforms were commonly used to review medical results and discuss symptoms or treatment. Participants identifying as a man were most satisfied with their video-conferencing session, especially if they had a comfortable place to sit. Patients were more satisfied with secure messaging because they could ask a question without scheduling an appointment. Discussion When strategically used together, video-conferencing platforms and secure messaging may increase patient satisfaction in cancer care during the remainder of the pandemic and beyond. Attention must be paid to optimizing factors that promote satisfaction for each telehealth platform.

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Section: Discussionmentioning

confidence: 99%

Cancer patients’ satisfaction with telehealth during the COVID-19 pandemic

et al. 2022

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“…Our analysis is adjusted for gender (male, female), age (<55 years, 55 to 64 years, 65 to 74 years, 75 years and older), race/ethnicity (non-Hispanic White, non-Hispanic Black, Hispanic, non-Hispanic Asian/other), income level (<$35,000, $35,000-$99,999, ≥$100,000), education level (less than high school, high school graduate, some college, college graduate or more), and health insurance status (private, Medicare, Medicaid, or dual coverage). Previous research has shown that these variables have an impact on access and use of patient portals [ 20 , 46 , 47 ]. In this analysis, we also accounted for time since diagnosis of cancer (less than 1 year, 2 to 5 years, 6 to 10 years, ≥11 years) as it can also impact a patient’s information-seeking needs [ 48 ].…”

Section: Methodsmentioning

confidence: 99%

Association Between Patient Portal Use and Perceived Patient-Centered Communication Among Adults With Cancer: Cross-sectional Survey Study

Zaidi¹,

Amante²,

Anderson³

et al. 2022

JMIR Cancer

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Background Patient-centered communication (PCC) plays a vital role in effective cancer management and care. Patient portals are increasingly available to patients and hold potential as a valuable tool to facilitate PCC. However, whether more frequent use of patient portals is associated with increased perceived PCC and which mechanisms might mediate this relationship have not been fully studied. Objective The goal of this study was to investigate the association between the frequency of access of patient portals and perceived PCC in patients diagnosed with cancer. We further sought to examine whether this association was mediated by patients’ self-efficacy in health information–seeking. Methods We used data from the Health Information National Trend Survey 5 (HINTS 5) cycle 3 (2019) and cycle 4 (2020). This analysis includes 1222 individuals who self-reported having a current or past diagnosis of cancer. Perceived PCC was measured with a 7-item HINTS 5–derived scale and classified as low, medium, or high. Patient portal use was measured by a single item assessing the frequency of use. Self-efficacy about health information–seeking was assessed with a 1-item measure assessing confidence in obtaining health information. We used adjusted multinomial logistic regression models to estimate relative risk ratios (RRRs)/effect sizes of the association between patient portal use and perceived PCC. Mediation by health information self-efficacy was investigated using the Baron and Kenny and Karlson-Holm-Breen methods. Results A total of 54.5% of the sample reported that they had not accessed their patient portals in the past 12 months, 12.6% accessed it 1 to 2 times, 24.8% accessed it 3 to 9 times, and 8.2% accessed it 10 or more times. Overall, the frequency of accessing the patient portal was marginally associated (P=.06) with perceived PCC in an adjusted multinominal logistic regression model. Patients who accessed their patient portal 10 or more times in the previous 12 months were almost 4 times more likely (RRR 3.8, 95% CI 1.6-9.0) to report high perceived PCC. In mediation analysis, the association between patient portal use and perceived PCC was attenuated adjusting for health information–seeking self-efficacy, but those with the most frequent patient portal use (10 or more times in the previous 12 months) were still almost 2.5 times more likely to report high perceived PCC (RRR 2.4, 95% CI 1.1-5.6) compared to those with no portal use. Conclusions Increased frequency of patient portal use was associated with higher PCC, and an individual’s health information–seeking self-efficacy partially mediated this association. These findings emphasize the importance of encouraging patients and providers to use patient portals to assist in patient-centeredness of cancer care. Interventions to promote the adoption and use of patient portals could incorporate strategies to improve health information self-efficacy.

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“…The Canadian Cancer Society [ 13 ] predicts that approximately 1 in 2 Canadians will be diagnosed with cancer in their lifetime, and about 1 in 4 will die of the disease. With the steady year-on-year increase in cancer diagnoses, online patient portals are becoming more desirable to augment the coordination of care for oncology patients [ 14 ]. Cancer treatment and the cancer diagnosis, in and of itself, result in a wide range of self-management challenges, such as monitoring side effects and scheduling numerous medical appointments.…”

Section: Introductionmentioning

confidence: 99%

“…Cancer treatment and the cancer diagnosis, in and of itself, result in a wide range of self-management challenges, such as monitoring side effects and scheduling numerous medical appointments. Oncology patients have a keen interest in portals, as they require comprehensive health information, have blood work done regularly, and often are, or are expected to be, active participants in managing their condition [ 14 , 15 ]. They report that using portals allows them to feel more in control of their situation, be better prepared for medical appointments, and provides them with the opportunity to advocate for their needs [ 16 ].…”

Section: Introductionmentioning

confidence: 99%

Oncology Patients’ Experiences With Novel Electronic Patient Portals to Support Care and Treatment: Qualitative Study With Early Users and Nonusers of Portals in Alberta, Canada

Santos¹,

Caine²,

Robson³

et al. 2021

JMIR Cancer

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Background With the current proliferation of clinical information technologies internationally, patient portals are increasingly being adopted in health care. Research, conducted mostly in the United States, shows that oncology patients have a keen interest in portals to gain access to and track comprehensive personal health information. In Canada, patient portals are relatively new and research into their use and effects is currently emerging. There is a need to understand oncology patients’ experiences of using eHealth tools and to ground these experiences in local sociopolitical contexts of technology implementation, while seeking to devise strategies to enhance portal benefits. Objective The purpose of this study was to explore the experiences of oncology patients and their family caregivers when using electronic patient portals to support their health care needs. We focused on how Alberta’s unique, 2-portal context shapes experiences of early portal adopters and nonadopters, in anticipation of a province-wide rollout of a clinical information system in oncology facilities. Methods This qualitative descriptive study employed individual semistructured interviews and demographic surveys with 11 participants. Interviews were audio-recorded and transcribed verbatim. Data were analyzed thematically. The study was approved by the University of Alberta Human Research Ethics Board. Results Participants currently living with nonactive cancer discussed an online patient portal as one among many tools (including the internet, phone, videoconferencing, print-out reports) available to make sense of their diagnosis and treatment, maintain connections with health care providers, and engage with information. In the Fall of 2020, most participants had access to 1 of 2 of Alberta’s patient portals and identified ways in which this portal was supportive (or not) of their ongoing health care needs. Four major themes, reflecting the participants’ broader concerns within which the portal use was occurring, were generated from the data: (1) experiencing doubt and the desire for transparency; (2) seeking to become an informed and active member of the health care team; (3) encountering complexity; and (4) emphasizing the importance of the patient–provider relationship. Conclusions Although people diagnosed with cancer and their family caregivers considered an online patient portal as beneficial, they identified several areas that limit how portals support their oncology care. Providers of health care portals are invited to recognize these limitations and work toward addressing them.

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A Review of Web Portal Use by Oncology Patients

Cited by 23 publications

References 17 publications

Cancer patients’ satisfaction with telehealth during the COVID-19 pandemic

Cancer patients’ satisfaction with telehealth during the COVID-19 pandemic

Association Between Patient Portal Use and Perceived Patient-Centered Communication Among Adults With Cancer: Cross-sectional Survey Study

Oncology Patients’ Experiences With Novel Electronic Patient Portals to Support Care and Treatment: Qualitative Study With Early Users and Nonusers of Portals in Alberta, Canada

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