A review of the biopsychosocial aspects of caregiving for aging family members

Colvin, Alex D.; Bullock, Angela N.

doi:10.1080/10522158.2016.1214657

Cited by 8 publications

(9 citation statements)

References 74 publications

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“… 9 , 25 Thus, the length of time spent on care is not the only important predictor of the overall burden on ICs. 8 , 26 There is also the time lost for themselves, the lack of privacy and the development of a new identity as a caregiver. 27 The enormous impact the CP had on the lives of the IC found in this study suggests the concept of ‘we‐disease’ can be applied to the described experiences.…”

Section: Discussionmentioning

confidence: 99%

“… 5 , 6 , 7 The physical limitations experienced by people with CP produce a greater need for care and assistance, most of which is provided by an informal caregiver (IC), that is, an unpaid family member or friend who provides assistance with everyday activities. 8 In this vein, the IC makes an important contribution to the formal health system. The mean length of CP mentioned above, suggests that the ICs have to accompany their relative for a prolonged period of time.…”

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

“…19 These women find themselves in a situation of caring for elderly parents, having dependent children and remaining active in the labour market. 8 Consequently, women may experience losses of identity, privacy and time for themselves and are at greater risk of poorer health than their male counterparts. 20 Taking into account that CP prevalence is already significant and is expected to increase in coming years, 4 leading to an increase in the number of ICs for individuals living with CP, and that previous studies have found some specificities related to the characteristics of CP, this study aimed to explore the experiences of ICs of people with CP to better understand and respond to their needs.…”

Section: Introductionmentioning

confidence: 99%

“…The mean duration of CP in Spain is 10 years, 5 with the majority of the sufferers reporting moderate or severe pain 5–7 . The physical limitations experienced by people with CP produce a greater need for care and assistance, most of which is provided by an informal caregiver (IC), that is, an unpaid family member or friend who provides assistance with everyday activities 8 . In this vein, the IC makes an important contribution to the formal health system.…”

Section: Introductionmentioning

confidence: 99%

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Becoming a secondary actor of one's own life: A qualitative study of the experiences of informal caregivers in the care of people with chronic pain

Sola

Failde

Estalella

et al. 2022

Health Expectations

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Introduction The physical limitations experienced by people with chronic pain (CP) produce a greater need for care and assistance, most of which is provided by an informal caregiver (IC). Despite the key role ICs play in the everyday lives of individuals living with CP, knowledge about their experiences and needs is limited. We aimed to address this limitation by exploring the experiences of IC of people with CP. Methods This is a qualitative descriptive study using semistructured interviews. Participants were 12 ICs purposively chosen from the Unit of Pain at the University Hospital in Cádiz. Individual interviews were recorded, transcribed verbatim and analysed following thematic analysis. Results We developed one overarching theme ‘Becoming a secondary actor of one's own life’ and three themes: 1. Key elements that shape a caregiver's experiences; 2. It's the hand that life dealt me; 3. The burden of being a caregiver and coping strategies. Conclusions This study's findings highlight how the CP impacts IC lives. Being an IC for a relative with CP became the most important role in the IC's life, to the point of casting a shadow over their own needs. Besides, participants felt not having other options but to keep going with that role. Yet, the context was essential in shaping the experiences as caregivers and the burden derived from caregiving. In this line, differences related to gender roles were found in the narratives of participant women and men. Patient or Public Contribution Participants were purposively chosen from the Unit of Pain at the University Hospital ‘Puerta del Mar’ who attended the consultation accompanying their relatives. All the eligible participants were approached by the clinician. After this initial approach by the clinician, one of the researchers met the potential participant and they went to a quieter place in a clinical setting for the interview, before which the participant was shown a letter with more comprehensive information about the study and its aim. The participants were left alone to read and think carefully before giving their written informed consent. Participation was voluntary and the subjects received no financial contribution for their time.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Becoming a secondary actor of one's own life: A qualitative study of the experiences of informal caregivers in the care of people with chronic pain

Sola

Failde

Estalella

et al. 2022

Health Expectations

View full text Add to dashboard Cite

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‘Looking forward’: An actionable framework for proactive health and well‐being behaviours in Australian midlife women

Kopanidis,

Reid

2023

Health Prom J of Aust

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Issue AddressedThe health and well‐being of midlife women are not well‐researched. This study uses an actionable framework to demonstrate the influence of biosocial, psychological and cognitive factors on proactive health and well‐being behaviours (PHWB) of midlife women, including setting and evaluating their well‐being goals.MethodsQuantitative cross‐sectional data from Australian middle‐aged women (N = 904) aged 40–65 residing in Australia was used. Multinomial logistic regression examined associations with three PHWB outcomes (low, medium and high) and biosocial, psychological and cognitive factors.ResultsProactive health behaviours are influenced by a positive attitude towards ageing, a stronger sense of stoicism and self‐control, and a clearer life purpose. Compared to a high PHWB group, low proactiveness was associated with poor biosocial influences, fewer personal relations and less perceived behavioural control, but a higher level of self‐acceptance.ConclusionFindings demonstrate how significant biosocial, psychological and cognitive determinants may empower midlife women to be proactive and to set and achieve a broader set of physical, mental, relationship and financial health and well‐being goals for positive health outcomes and healthy ageing.So What?The actionable framework provides directions for public health agencies to develop health and well‐being communication strategies and health promotion initiatives targeting women at both early and later midlife. The findings point to the importance of understanding and fostering proactiveness in the context of midlife women's health and well‐being.

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Caregiving in long-term care before and during the COVID-19 pandemic: a scoping review

Daari,

Finnegan,

Jaiswal

et al. 2024

Eur Geriatr Med

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A review of the biopsychosocial aspects of caregiving for aging family members

Cited by 8 publications

References 74 publications

Becoming a secondary actor of one's own life: A qualitative study of the experiences of informal caregivers in the care of people with chronic pain

Becoming a secondary actor of one's own life: A qualitative study of the experiences of informal caregivers in the care of people with chronic pain

‘Looking forward’: An actionable framework for proactive health and well‐being behaviours in Australian midlife women

Caregiving in long-term care before and during the COVID-19 pandemic: a scoping review

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