A review of psychosocial aspects of motor neurone disease

Balancing between autonomy and support: Coping strategies by patients with amyotrophic lateral sclerosis

“…A large number of studies underline the importance of social support for the quality of life of ALS patients [17,18,4]: the longitudinal data emerging from our work might help us to understand how the perception of receiving proper support can be important -especially when symptoms and physical impairment worsen -in maintaining proactive behaviours and constructive attitudes. Such a finding emphasises the relevance of evaluating the availability of specific sources of support, as well as the quality of the relationships within the family and social networks.…”

Depression and QOL in patients with ALS: how do self-ratings and ratings by relatives differ?

“…Furthermore, in our view, differences in prevalence numbers for depression in the existing literature are particularly caused by use of different diagnostic instruments (see [26,27]). With respect to QoL, it is conceivable that a reduced QoL is apparent in ALS patients when the focus lies on health-related QoL (also see [28]).…”

Emotional Lability in MND: Relationship to cognition and psychopathology and impact on caregivers

“…Estimated prevalence rates for depression or mild depressive-symptomatology has appeared low, between 0-44% in MND populations [18][19][20][21]. In recent studies depression has appeared to be relatively more common (prevalence rates up to 50%), as were other forms of psychological distress, and was not associated with illness severity and functional status [22]. Estimated prevalence rates for anxiety have ranged 11-30% [23][24][25].…”