A review of caregiver costs included in cost-of-illness studies

Mattingly, Jill; Fernandez, Valeria Diaz; Seo, Dominique; Castillo, Andrea I Melgar

doi:10.1080/14737167.2022.2080056

Cited by 4 publications

(3 citation statements)

References 72 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Nevertheless, medical spillover costs are rarely reported. A review of 51 cost-of-illness studies (COIs) did not document any measurement of healthcare costs for individuals other than the patients [110]. The consideration of medical spillover costs in economic evaluations is also rare.…”

Section: Medical Costsmentioning

confidence: 99%

“…Transportation costs are included only occasionally in studies quantifying the burden of disease or COIs [157,173]. In a systematic review of COIs, Mattingly et al [110] reported that only 5 of 51 studies included caregiver transportation costs. Likewise, reviews of economic evaluations of patient interventions showed that transportation costs incurred by others are infrequently included.…”

Section: Transportation Costsmentioning

confidence: 99%

See 1 more Smart Citation

On spillovers in economic evaluations: definition, mapping review and research agenda

Mendoza-Jiménez,

van Exel,

Brouwer

2024

Eur J Health Econ

View full text Add to dashboard Cite

An important issue in economic evaluations is determining whether all relevant impacts are considered, given the perspective chosen for the analysis. Acknowledging that patients are not isolated individuals has important implications in this context. Increasingly, the term “spillovers” is used to label consequences of health interventions on others. However, a clear definition of spillovers is lacking, and as a result, the scope of the concept remains unclear. In this study, we aim to clarify the concept of spillovers by proposing a definition applicable in health economic evaluations. To illustrate the implications of this definition, we highlight the diversity of potential spillovers through an expanded impact inventory and conduct a mapping review that outlines the evidence base for the different types of spillovers. In the context of economic evaluations of health interventions, we define spillovers as all impacts from an intervention on all parties or entities other than the users of the intervention under evaluation. This definition encompasses a broader range of potential costs and effects, beyond informal caregivers and family members. The expanded impact inventory enables a systematic approach to identifying broader impacts of health interventions. The mapping review shows that the relevance of different types of spillovers is context-specific. Some spillovers are regularly included in economic evaluations, although not always recognised as such, while others are not. A consistent use of the term “spillovers”, improved measurement of these costs and effects, and increased transparency in reporting them are still necessary. To that end, we propose a research agenda.

show abstract

Section: Medical Costsmentioning

confidence: 99%

Section: Transportation Costsmentioning

confidence: 99%

On spillovers in economic evaluations: definition, mapping review and research agenda

Mendoza-Jiménez,

van Exel,

Brouwer

2024

Eur J Health Econ

View full text Add to dashboard Cite

show abstract

“…We also strongly encourage researchers against using the terms sex and gender interchangeably, as this common mistake can generate confusion and even lead to incorrect interpretations and recommendations. 44 , 259 Lastly, unlike others, 18 we did not quantify this burden within our review and instead focused on the methods used by others to quantify this burden. Nonetheless and in addition to our observations, we provide readers with our raw structured datasets (refer to Supplementary Tables 1 – 4 in Appendix 3 ) to aid them in identifying past studies in a wide range of clinical areas and geographical locations as well as to help plan future studies aimed at assessing this burden within caregivers of child and adolescent patients.…”

Section: Limitationsmentioning

confidence: 99%

Methods used to account for caregivers’ sex and gender within studies examining the financial burden of caregivers of children and adolescents : Results from a scoping review

Guertin,

Gilbert-Ouimet,

Dugas

et al. 2024

CEOR

View full text Add to dashboard Cite

Background Interest in the financial burden of informal caregivers has been growing. Unfortunately, it remains unclear which method(s) should be used when quantifying this burden. Purpose We conducted a scoping review aimed at identifying which methods have been used to conduct such work and quantified their performance. We were also interested in examining how sex and gender considerations were considered within selected studies. Data Sources Using a standardized approach, we identified studies published between 2012 and 2022 that aimed to document the financial burden of caregivers to child and adolescent patients. Our search strategy was applied to the MEDLINE, Embase, CINHAL, and Academic Search Premier databases. Study Selection Manuscript selection was performed by pairs of reviewers. Data Extraction Data extraction was performed by one reviewer with a second reviewer performing quality control. Results were reported using a narrative approach. Data Synthesis We identified 9801 unique citations, of which 200 were included in our review. Selected studies covered various disease area (eg, infection/parasitic diseases [n = 31, 16%]) and included quantitative (n = 180, 90%), qualitative (n = 4, 2%) and mixed study designs (n = 16, 8%). Most studies (n = 182, 91%) used questionnaires/surveys, either alone or in combination with other methods, to assess caregivers’ financial burden. Less than half (n = 93, 47%) of studies reported on caregivers’ sex and none reported on their gender. Conclusion We conducted an unrestricted review of published studies examining caregiver’s financial burden which allowed us to identify general methodological trends observed in this literature. We believe this work may help improve future studies focusing on this important issue.

show abstract

The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands

Elayan,

Angelini,

Buskens

et al. 2024

Eur J Health Econ

View full text Add to dashboard Cite

Faced with an unprecedented demand for long-term care, European health care systems are moving towards mixed care models, where the welfare state and informal caregivers share care responsibilities. While informal care is often viewed as a means of alleviating pressure on public care, it comes with significant economic costs for caregivers, their employers, and society at large. This study uses nationally representative data to estimate the total direct (informal care time and out-of-pocket costs) and indirect (productivity) economic costs of informal care in the Netherlands in 2019. Informal care time costs are estimated using the opportunity cost and the proxy good methods. Indirect costs are estimated using the human capital and friction cost approaches. Our results reveal the considerable annual societal cost of informal care in the Netherlands, ranging between €17.5 billion and €30.1 billion, depending on the valuation approach. These costs are equivalent to 2.15% and 3.71% of Dutch GDP in 2019, comparable to the public expenditure on long-term care in that year. Female caregivers account for slightly more than half (53%–57%) of the total costs. Around 57%–88% of these costs are in the form of informal care time. The main driver of indirect costs is the temporary cessation of work, which comprises 12%–17% of the total costs. Findings corroborate that substantial resources, yet thus far largely disregarded, are spent on informal care even in a country with a relatively generous public long-term care system.

show abstract

A review of caregiver costs included in cost-of-illness studies

Cited by 4 publications

References 72 publications

On spillovers in economic evaluations: definition, mapping review and research agenda

On spillovers in economic evaluations: definition, mapping review and research agenda

Methods used to account for caregivers’ sex and gender within studies examining the financial burden of caregivers of children and adolescents : Results from a scoping review

The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands

Contact Info

Product

Resources

About