A randomised controlled trial to test the feasibility of online mindfulness programs for people with multiple sclerosis

Dunne, Jennifer; Chih, HuiJun; Begley, Andrea; Daly, Alison; Gerlach, Regina; Schütze, Robert; Castell, Emily; Byrne, Jean; Black, Lucinda J

doi:10.1016/j.msard.2020.102728

Cited by 20 publications

(55 citation statements)

References 36 publications

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“…At narrow screening, 25 studies were excluded due to not reporting any qualitative data, whilst one study that did report qualitative data was also excluded as it did not meet predefined quality criteria, with no unequivocal or credible findings [29]. Finally, six studies were deemed eligible and selected for inclusion in this study [30][31][32][33][34][35]. Figure 1 presents a PRISMA flowchart detailing our search process.…”

Section: Resultsmentioning

confidence: 99%

“…Another study used content analysis to assess participant entries to daily home practice diaries, weekly reflective journals and post-intervention questionnaires, questions focusing on recruitment, practicality, acceptability, and integration of mindfulness practices into daily life; data coded deductively thereafter [30].…”

Section: Study Analysis Methodsmentioning

confidence: 99%

“…All six studies were part of mixed-method analyses, five associated with randomized controlled trials (RCTs) [36,37], one a non-randomized controlled trial [38]. Three studies took place in the UK [33][34][35], two in Australia [30,31], and one in the United States [32]. Two papers were derived from the same research group [33,34], analyzing data from different stakeholders, one focused on MBI acceptability [34], the other on perceived barriers and facilitators to implementation [33].…”

Section: Study Characteristicsmentioning

confidence: 99%

“…Three studies reported detailed participant demographics [30,31,34]. The other studies referred the reader to linked quantitative studies where such data were available in relation to the quantitative analysis but was of limited relevance as sample sizes varied between quantitative and qualitative arms of the respective studies.…”

Section: Participant Characteristicsmentioning

confidence: 99%

“…Where reported, most participants were female [30,31,34], one study reporting on female participants only, by default [32].…”

Section: Participant Characteristicsmentioning

confidence: 99%

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Mindfulness-based interventions for people with multiple sclerosis: a systematic review and meta-aggregation of qualitative research studies

Simpson

Wasilewski

et al. 2021

Disability and Rehabilitation

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Purpose: Mindfulness-based interventions (MBIs) are effective treatments for stress, anxiety, and depression in PwMS. However, low adherence and high attrition may limit effectiveness. Qualitative research can provide important insights into MBI acceptability, accessibility, and implementation. This systematic review and meta-aggregation evaluated qualitative research findings on the use of MBIs for PwMS. Methods: Systematic searches were undertaken in six major electronic databases. Studies using qualitative or mixed methods were included. Two reviewers screened, data extracted, and critically appraised studies. Meta-aggregation was performed following the Joanna Briggs Institute approach, extracting findings, developing categories, and synthesizing findings. Results: Six eligible papers, including 136 PwMS were included in meta-aggregation. 136 findings were extracted, grouped into 17 categories, with four synthesized findings: (1) "accessing mindfulness," (2) "a sense of belonging," (3) "experiencing mindfulness," and ( 4) "making mindfulness more relevant and sustainable for PwMS." Conclusions: MBIs for PwMS need to take into consideration disability which can limit accessibility. Online MBIs (synchronous and asynchronous) appear acceptable alternatives to traditional face-to-face courses. However, PwMS benefit from shared (mindful) experiencing and highlight MBI instructors as crucial in helping them understand and practice mindfulness. Involving PwMS in design, delivery, and iterative refinement would make MBIs more relevant to those taking part. ä IMPLICATIONS FOR REHABILITATION 1. Both face-to-face and online Mindfulness-based interventions (MBIs) appear acceptable to PwMS and, ideally, people should be offered a choice in training modality. 2. PwMS derive benefit from undertaking MBIs with their peers, where a sense of camaraderie and belonging develop through shared (mindful) experiences. 3. Instructors delivering MBIs for PwMS should be knowledgeable about the condition; participants describe how the instructor has a key role in helping them practice mindfulness effectively in the context of unpleasant experiences associated with MS. 4. MBIs tailored for PwMS should include a pre-course orientation session, clearly articulate how mindfulness practices can help with MS, provide well-organized course materials in large font size, and deliver individual mindfulness practices flexibly depending on participant need.

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Section: Resultsmentioning

confidence: 99%

Section: Study Analysis Methodsmentioning

confidence: 99%

Section: Study Characteristicsmentioning

confidence: 99%

Section: Participant Characteristicsmentioning

confidence: 99%

“…Where reported, most participants were female [30,31,34], one study reporting on female participants only, by default [32].…”

Section: Participant Characteristicsmentioning

confidence: 99%

See 3 more Smart Citations

Mindfulness-based interventions for people with multiple sclerosis: a systematic review and meta-aggregation of qualitative research studies

Simpson

Wasilewski

et al. 2021

Disability and Rehabilitation

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A systematic review and meta-analysis exploring the efficacy of mindfulness-based interventions on quality of life in people with multiple sclerosis

et al. 2022

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Background Quality of life (QoL) is commonly impaired among people with multiple sclerosis (PwMS). The aim of this study was to evaluate via meta-analysis the efficacy of Mindfulness-based interventions (MBIs) for improving QoL in PwMS. Methods Eligible randomized controlled trials (RCTs) were identified via searching six major electronic databases (MEDLINE, EMBASE, CINAHL, Cochrane Central Register of Controlled Trials, AMED, and PsycINFO) in April 2022. The primary outcome was QoL. Study quality was determined using the Cochrane Collaboration risk of bias tool. Meta-analysis using a random effects model was undertaken. Effect sizes are reported as Standardized Mean Difference (SMD). Prospero ID: 139835. Results From a total of 1312 individual studies, 14 RCTs were eligible for inclusion in the meta-analysis, total participant n = 937. Most studies included PwMS who remained ambulatory. Cognitively impaired PwMS were largely excluded. Comorbidities were inconsistently reported. Most MBIs were delivered face-to face in group format, but five were online. Eight studies (n = 8) measured MS-specific QoL. In meta-analysis, overall effect size (SMD) for any QoL measure (n = 14) was 0.40 (0.18–0.61), p = 0.0003, I2 = 52%. SMD for MS-specific QoL measures (n = 8) was 0.39 (0.21–0.57), p < 0.0001, I2 = 0%. MBI effect was largest on subscale measures of mental QoL (n = 8), SMD 0.70 (0.33–1.06), p = 0.0002, I2 = 63%. Adverse events were infrequently reported. Conclusions MBIs effectively improve QoL in PwMS. The greatest benefits are on mental health-related QoL. However, more research is needed to characterize optimal formatting, mechanisms of action, and effects in PwMS with more diverse social, educational, and clinical backgrounds.

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Experiences of people with multiple sclerosis and clinicians in using cognitive behavioural therapies for hidden symptoms: a systematic review and meta-aggregation

Feng,

Posa,

Sureshkumar

et al. 2024

J Neurol

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A randomised controlled trial to test the feasibility of online mindfulness programs for people with multiple sclerosis

Cited by 20 publications

References 36 publications

Mindfulness-based interventions for people with multiple sclerosis: a systematic review and meta-aggregation of qualitative research studies

Mindfulness-based interventions for people with multiple sclerosis: a systematic review and meta-aggregation of qualitative research studies

A systematic review and meta-analysis exploring the efficacy of mindfulness-based interventions on quality of life in people with multiple sclerosis

Experiences of people with multiple sclerosis and clinicians in using cognitive behavioural therapies for hidden symptoms: a systematic review and meta-aggregation

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