A qualitative systematic review of the experiences of sharing music for people living with dementia and their family care partners: the thread of connection

McMahon, Kate; Clark, Imogen; Stensæth, Karette; Wosch, Thomas; Miller, Helen Odell; Bukowska, Anna; Baker, Felicity A.

doi:10.1080/17533015.2022.2128381

Cited by 7 publications

(16 citation statements)

References 67 publications

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“…To assess the quality of these findings, I completed a CASP assessment (Critical Appraisal Skills Programme, 2018) for each included article, and a GRADE-CERQual assessment for each analytical theme and sub-theme (Lewin et al, 2018). A summary of these is provided in Appendix D, and the full results are published alongside the study’s results (McMahon et al, 2022). The GRADE-CERQual assessments found moderate-high confidence in this study’s findings based on methodology, coherence, adequacy and relevance (Lewin et al, 2018; McMahon et al, 2022).…”

Section: Quality and Accountabilitymentioning

confidence: 99%

“…The study described in this paper was a qualitative systematic review and thematic synthesis exploring the research question: How do people living with dementia and their family care partners experience shared musical activities? The rationale and findings of this study are published elsewhere (McMahon et al, 2022). The study described was conducted in the context of my doctoral studies as part of a multinational randomised control trial (Baker et al, 2019).…”

Section: The Example Studymentioning

confidence: 99%

“…A summary of these is provided in Appendix D, and the full results are published alongside the study’s results (McMahon et al, 2022). The GRADE-CERQual assessments found moderate-high confidence in this study’s findings based on methodology, coherence, adequacy and relevance (Lewin et al, 2018; McMahon et al, 2022). In reporting the findings of this systematic review, I used the PRISMA 2020 checklist (published in McMahon et al (2022)) and the ENTREQ reporting guidelines (Tong et al, 2012).…”

Section: Quality and Accountabilitymentioning

confidence: 99%

“…The following results summary is based on the methodology, coherence, adequacy and relevance of this study’s main findings (Lewin et al, 2018). See McMahon et al (2022) for the full results.…”

Section: Table A1mentioning

confidence: 99%

“…To maintain independence through screening, I assessed 100% of articles, and Authors 2 and 7 shared the role of the second reviewer. This process is outlined in full in McMahon et al (2022).

Figure 1.PRISMA flow diagram (adapted from Page et al (2021)). …”

Section: Search and Screeningmentioning

confidence: 99%

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Exploring Shared Musical Experiences in Dementia Care: A Worked Example of a Qualitative Systematic Review and Thematic Synthesis

McMahon

Clark

Stensæth

et al. 2022

International Journal of Qualitative Methods

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Qualitative systematic reviews, or qualitative evidence syntheses (QES), are increasingly used in health settings to guide the development of practice and policy. Thematic synthesis is one of the most well-developed approaches used for QES, however there are limited worked examples describing how to apply the steps of analysis in the literature. This paper describes the processes and decisions undertaken in a qualitative systematic review and thematic synthesis from the perspective of a novice researcher. The described review aimed to explore the shared musical experiences of people living with dementia and their family care partners across a range of settings. We found that shared musical activities fostered experiences of connection and wellbeing for people living with dementia and their family care partners. This was demonstrated with moderate-high confidence through six themes, and our findings informed the development of the Contextual Connection Model of Health Musicking. In presenting a worked example of our review, this paper introduces a systematic approach to coding and discusses the complexities of developing and reporting on analytical themes. We identify the need for a specific thematic synthesis reporting tool, and the need to embed reflexive practices into QES tools more broadly.

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Section: Quality and Accountabilitymentioning

confidence: 99%

Section: The Example Studymentioning

confidence: 99%

Section: Quality and Accountabilitymentioning

confidence: 99%

Section: Table A1mentioning

confidence: 99%

“…To maintain independence through screening, I assessed 100% of articles, and Authors 2 and 7 shared the role of the second reviewer. This process is outlined in full in McMahon et al (2022).

Figure 1.PRISMA flow diagram (adapted from Page et al (2021)). …”

Section: Search and Screeningmentioning

confidence: 99%

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Exploring Shared Musical Experiences in Dementia Care: A Worked Example of a Qualitative Systematic Review and Thematic Synthesis

McMahon

Clark

Stensæth

et al. 2022

International Journal of Qualitative Methods

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Family Caregiver Experiences of Using a Mobile App for Music-based Training to Support Dementia Care

Vidas,

Thompson,

Kelly

et al. 2024

Proceedings of the CHI Conference on Human Factors in Computing Systems

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The experiences of people living with dementia and their care partners participating in an online therapeutic songwriting program

Clark,

Christopher,

Stretton-Smith

et al. 2023

Dementia

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Background and Aim Despite the impact of dementia on close care relationships, accessible therapeutic services for people living with dementia and their care partners remain scarce. Further, there is an increasing demand for online services, highlighting the need for ongoing telehealth research. This study aimed to explore the experiences of people living with dementia and their informal and formal care partners following participation in a 10-week online therapeutic songwriting program. Methods The songwriting program included four duo and six group sessions facilitated by a music therapist. Post-program semi-structured interviews were analysed using thematic analysis. Findings Nine people with dementia and six care partners (nine duos) participated in the program. Five duos were in spousal relationships and four people with dementia participated with a formal care partner. Participants attended an average of four duo sessions and three group sessions. Six people with dementia and five care partners participated in post-program interviews. Four themes were developed: (1) No one else does this; (2) It’s all about us as people; (3) After the sessions we’d come out buzzing; and (4) The journey was as important as the product. Conclusions Participants highlighted songwriting as a unique opportunity to connect with music, experience welcomed challenges, and spend ‘real time’ together. The program drew on participants’ lived experience and promoted connection with others, resulting in feelings of enjoyment, enhanced mood, and achievement. Participants valued both the songwriting process and song product, emphasising the importance of sensitive and skilful facilitation. Our findings suggest that these distinct benefits were not available through other support services. Further, online songwriting is a viable option for people living with dementia and their care partners where in-person sessions are not available or accessible.

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A qualitative systematic review of the experiences of sharing music for people living with dementia and their family care partners: the thread of connection

Cited by 7 publications

References 67 publications

Exploring Shared Musical Experiences in Dementia Care: A Worked Example of a Qualitative Systematic Review and Thematic Synthesis

Exploring Shared Musical Experiences in Dementia Care: A Worked Example of a Qualitative Systematic Review and Thematic Synthesis

Family Caregiver Experiences of Using a Mobile App for Music-based Training to Support Dementia Care

The experiences of people living with dementia and their care partners participating in an online therapeutic songwriting program

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