A qualitative study on individual experiences of chronic hepatitis B patients

Ezbarami, Zahra Taheri; Hassani, Parkhide; Tafreshi, Mansoureh Zagheri; Majd, Hamid Alavi

doi:10.1002/nop2.100

Cited by 28 publications

(34 citation statements)

References 34 publications

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“…Some studies have indicated that patients refused screenings and follow-up because of the fear of unfavourable results and social stigma (Ezbarami et al, 2017;Yang, 2013), but the current study did not produce similar results. Instead, results emphasised that work- Furthermore, if patients perceive that the health care provided is not helpful to them, they are more likely to neglect opportunities to link with the self-management programme of hepatitis B.…”

Section: Discussioncontrasting

confidence: 82%

“…Chronic hepatitis B may develop into severe liver disease. Patients may refuse screenings and follow-ups because they fear unfavourable results and negative judgement from other people (Ezbarami, Hassani, Tafreshi, & Majd, 2017;Yang, 2013). In the disease self-management process, individual awareness, managerial skills and executive abilities are required to solve the physiological, psychological and social problems caused by chronic hepatitis B (Kong et al, 2018;Yang, 2013).…”

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confidence: 99%

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Environmental factors affecting self‐management of chronic hepatitis B from the patients’ perspective

Lin

Lee²,

Yang

et al. 2019

Journal of Clinical Nursing

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Aims and objectives To explore factors affecting self‐management experiences of patients with chronic hepatitis B within their social and cultural environments. Background Many cases of hepatitis B are not detected until they are in end‐stage liver disease. Despite an increasing trend of indicating a lack of health awareness as the reason, studies have rarely referred to the personal, social and cultural environmental constraints from patients' perspectives. Design A descriptive qualitative study. Methods Forty‐seven adults diagnosed with chronic hepatitis B were interviewed in a private area of a hospital clinic in Taiwan in 2018. Four open‐ended questions relating to care self‐management included the following: disease detection; disease control; preventive care; and perceptions of screening and follow‐ups. Data were examined using content analysis. This study also adhered to the consolidated COREQ guidelines. Results Five main themes emerged: personal experiences, awareness of occupational health, the availability of conventional treatment, cultural beliefs about health care and family roles. Findings of note were that some participants became aware that they had never known the difference between follow‐up for hepatitis B and regular adult/labourer health checks due to a lack of information within their living environment. Many participants added alternative treatments to their self‐management strategies and others frequently ignored follow‐up appointments because of different cultural health beliefs. Conclusions Patients’ disease self‐management perceptions are driven by dynamic influences suggesting that development of policies integrating personal, family, social and cultural environmental factors could enhance individual screening and subsequent health behaviours of patients with chronic hepatitis B. Relevance to practice Adding person‐centred case management of hepatitis B could enhance patients’ adherence to follow‐up. Attention should be given to increasing provider awareness of the influence of their own attitude and communication on patients’ participation in self‐management.

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Section: Discussioncontrasting

confidence: 82%

mentioning

confidence: 99%

Environmental factors affecting self‐management of chronic hepatitis B from the patients’ perspective

Lin

Lee²,

Yang

et al. 2019

Journal of Clinical Nursing

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“…All except two of these 40 , 41 clearly described data collection procedure and the research context. Analysis of data may be less robust in four studies 41 , 42 , 55 , 56 since there was no description of how many researchers analysed the results and how differences in extracted themes and codes were resolved between researchers. Two studies did not provide details of ethics approval 40 , 42 ; three studies did not provide a rationale for using the selected study methodology 40 , 43 , 60 ; seven studies did not report in detail on their study limitations 29 , 42 , 43 , 53 , 55 , 56 , 60 .…”

Section: Resultsmentioning

confidence: 99%

A blind spot? Confronting the stigma of hepatitis B virus (HBV) infection - A systematic review

Mokaya¹,

McNaughton²,

Burbridge³

et al. 2018

Wellcome Open Res

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Background: Stigma, poverty, and lack of knowledge present barriers to the diagnosis and treatment of chronic infection, especially in resource-limited settings. Chronic Hepatitis B virus (HBV) infection is frequently asymptomatic, but accounts for a substantial long-term burden of morbidity and mortality. In order to improve the success of diagnostic, treatment and preventive strategies, it is important to recognise, investigate and tackle stigma. We set out to assimilate evidence for the nature and impact of stigma associated with HBV infection, and to suggest ways to tackle this challenge. Methods: We carried out a literature search in PubMed using the search terms ‘hepatitis B’, ‘stigma’ to identify relevant papers published between 2007 and 2017 (inclusive), with a particular focus on Africa. Results: We identified a total of 32 articles, of which only two studies were conducted in Africa. Lack of knowledge of HBV was consistently identified, and in some settings there was no local word to describe HBV infection. There were misconceptions about HBV infection, transmission and treatment. Healthcare workers provided inaccurate information to individuals diagnosed with HBV, and poor understanding resulted in lack of preventive measures. Stigma negatively impacted on help-seeking, screening, disclosure, prevention of transmission, and adherence to treatment, and had potential negative impacts on mental health, wellbeing, employment and relationships. Conclusion: Stigma is a potentially major barrier to the successful implementation of preventive, diagnostic and treatment strategies for HBV infection, and yet we highlight a ‘blind spot’, representing a lack of data and limited recognition of this challenge. There is a need for more research in this area, to identify and evaluate interventions that can be used effectively to tackle stigma, and to inform collaborative efforts between patients, clinical services, policy makers, traditional healers, religious leaders, charity organisations and support groups.

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“…Similarly, in other illness experience studies, alcohol reduction and fatty food avoidance were regarded as a burden by patients with CHB. 50 67 Taking drinking as an example, drinking is a normal part of work life and served to improve social relationships in many cultures. 68 A study showed that drinking with colleagues after work has a positive impact on fostering harmony among colleagues and on deciding who will be in charge of group collaborations.…”

Section: Discussionmentioning

confidence: 99%

“…As other studies have shown, positive framing and a spirit of dedication are essential for having healthier behaviour and a better mood. 50 78 Nevertheless, few studies have addressed the effects of specific competencies, including effective problem-solving skills and social skills. In our study, individuals with high problem-solving skills and social skills can buffer behaviour-based conflicts.…”

Section: Discussionmentioning

confidence: 99%

Work–health–personal life conflicts in naive patients with chronic hepatitis B receiving initial treatment in China: a qualitative study

et al. 2020

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ObjectivesPeople with chronic hepatitis B (CHB) perform sick roles, work roles and personal roles simultaneously. At times, role conflicts arise because of failure to meet the expectations of different roles. Role conflicts may increase dissatisfaction in work and family and impair their physical and mental health. This study aimed to explore the perceptions of role conflicts of treatment-naive patients with CHB in work, personal and sick roles, together with ameliorating factors in the Chinese cultural context.DesignA qualitative descriptive study. Semistructured interviews were used to collect the experience of work–health–personal life conflicts (WHPLCs), and a brief questionnaire was used to collect demographic and clinical information. SPSS V.21.0 was used for descriptive analysis and Dedoose (V.7.5.9) was used to code and analyse interview transcripts. This study selected six cities with different socioeconomic levels in Zhejiang Province, China. Then, researchers chose one tertiary hospital from each city as the study site, so a total of six tertiary hospitals were involved.ParticipantsWe recruited 32 patients with CHB (59.38% male) who had just started antiviral therapy for no more than three months. Participants were within the age range of 19-57 years, and the average age was 36.03 (SD=9.56) years.ResultsParticipants noted that having CHB influenced their daily life and intersected with work and personal roles, therefore causing role conflicts. Role conflicts focused on three types: time-based conflicts, strain-based conflicts and behaviour-based conflicts. The contextual factors contributing to role conflicts were identified, including personal characteristics, financial strain, traditional social roles and work environment.ConclusionsThese findings enhance our understanding of the WHPLCs experience of treatment-naive patients with CHB in China. Our findings suggest that multidimensional role conflicts should be taken into account in the intervention design and psychological counselling to improve role balance and well-being among patients with CHB.

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A qualitative study on individual experiences of chronic hepatitis B patients

Cited by 28 publications

References 34 publications

Environmental factors affecting self‐management of chronic hepatitis B from the patients’ perspective

Environmental factors affecting self‐management of chronic hepatitis B from the patients’ perspective

A blind spot? Confronting the stigma of hepatitis B virus (HBV) infection - A systematic review

Work–health–personal life conflicts in naive patients with chronic hepatitis B receiving initial treatment in China: a qualitative study

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