A qualitative study of the emotional and spiritual needs of Hispanic families in hospice

Núñez, Alicia; Holland, Jason M.; Beckman, Lisa; Kirkendall, Abbie; Luna, Nora

doi:10.1017/s1478951517000190

Cited by 7 publications

(15 citation statements)

References 29 publications

(35 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…For example, a recent qualitative study of Hispanic families in hospice revealed a strong desire among patients and caregivers for education to understand the dying process and medical options. 8 Despite this desire from patients, providers often report reluctance to discuss end-of-life issues. Explanations for this reluctance often include a focus on providing life-sustaining treatment, a lack of confidence with prognoses, lack of time, and concerns about distrust from patients.…”

Section: Introductionmentioning

confidence: 99%

Improving End-of-Life Care for Diverse Populations: Communication, Competency, and System Supports

McCleskey

Cain

2019

Am J Hosp Palliat Care

View full text Add to dashboard Cite

Background: While disparities in end-of-life care have been well documented, explanations for the persistence of disparities are less clear. This study sought to examine diverse perceptions of end-of-life care, especially regarding how medical professionals can better serve all populations. Objective: To investigate similarities and differences in end-of-life care preferences, across racial and ethnic groups. Design: This work consists of a qualitative study utilizing in-depth focus group discussions. Setting/Subjects: Six community-based focus groups were conducted with a total of 39 participants. Two groups were composed of African American participants; two had Latino participants; and two groups had white participants. Results: Analysis produced three major themes: (1) Clear, comprehensive, and culturally relevant provider/patient communication regarding serious illness; (2) Provider characteristics & competency; and (3) Health system supports and barriers. While all groups had individuals who expressed a strong preference for direct communication, individuals varied within groups. All groups discussed concerns that the costs of care are high and that financial considerations are given more importance than high quality care. Groups diverged in their focus on provider characteristics and feelings of marginalization. African American and Latino groups emphasized a desire to match characteristics with providers, and African American groups discussed that their marginalization in the healthcare system requires hyper-vigilance to receive high-quality care. Conclusions: Improvements in care would come from acknowledging diversity within groups, provider demonstration of comfort and competence, more effective care coordination, and recruitment of providers who share similar characteristics with the communities they serve.

show abstract

Section: Introductionmentioning

confidence: 99%

Improving End-of-Life Care for Diverse Populations: Communication, Competency, and System Supports

McCleskey

Cain

2019

Am J Hosp Palliat Care

View full text Add to dashboard Cite

show abstract

“…AIDS patients in South Africa commented that their experience with hospice staff was superior their interaction with hospital staff (Makhele & Mulaudzi, 2012). Across cultures, participants liked when staff were friendly and approachable, conversed with patients and family members, knew the names of their family members, and engaged in social appropriate physical contact such as hand-shaking and hugging (Bray & Goodyear-Smith, 2013; Kataoka-Yahiro et al., 2016; Nuñez et al., 2017; Slater et al., 2015). The Maori appreciated the ability to contact their hospice staff after hours, which prevented them from having to go to the emergency room when they had questions or problems with symptom control (Slater et al., 2015).…”

Section: Resultsmentioning

confidence: 99%

“…Religious beliefs played an important role in end-of-life care, impacting perceptions of hospice and decision-making. African American and Hispanic patients strongly associated enrollment in hospice with a lack of faith in God (Dillon & Basu, 2016; Noh, 2014; Nuñez et al., 2017; Thienprayoon et al., 2016). Some African American families chose to reframe hospice as accommodating God’s will when religious leaders provided an endorsement (Dillon & Basu, 2016; Kidd et al., 2018; Noh, 2014).…”

Section: Resultsmentioning

confidence: 99%

“…Non-western cultural groups, when defined as those peoples from Africa, Asia, Australia, Latin America, and the Middle East, experience particular disparity compared to patients from Western cultural backgrounds, including those from Western Europe and the United States. Those from non-Western and minority cultural backgrounds use hospice less frequently, and when they do utilize hospice services, they report lower satisfaction (Dembinsky, 2014; Dillon & Basu, 2016; Frey et al., 2013; Noh, 2014; Nuñez, Holland, Beckman, Kirkendall, & Luna, 2017). This disparity is likely the result of a number of barriers to end-of-life care including poor health literacy, decreased financial means, and the lack of awareness of end-of-life services (Noh, 2014; Nuñez et al., 2017).…”

mentioning

confidence: 99%

“…Those from non-Western and minority cultural backgrounds use hospice less frequently, and when they do utilize hospice services, they report lower satisfaction (Dembinsky, 2014; Dillon & Basu, 2016; Frey et al., 2013; Noh, 2014; Nuñez, Holland, Beckman, Kirkendall, & Luna, 2017). This disparity is likely the result of a number of barriers to end-of-life care including poor health literacy, decreased financial means, and the lack of awareness of end-of-life services (Noh, 2014; Nuñez et al., 2017).…”

mentioning

confidence: 99%

See 2 more Smart Citations

Cross-Cultural Experiences of Hospice and Palliative Care Services: A Thematic Analysis

Herbstsomer

Stahl

2020

Omega (Westport)

View full text Add to dashboard Cite

Significant disparity exists among non-Western and minority individuals in hospice and palliative care services. A cross-cultural approach that addresses the needs of these patients would decrease this disparity. This study reviews the literature on the experiences of patients from non-Western and minority cultural backgrounds in hospice and palliative care services to inform clinical practice by Western providers. The PubMed database was searched for qualitative studies on patient and family member experiences of end-of-life services among minority or non-Western cultural groups. Eighteen articles met eligibility criteria. The major themes identified include the following: communication and the flow of information, perceptions of hospice and palliative care, and compatibility with cultural beliefs. This review demonstrates similar themes across many non-Western and minority cultures when interacting with hospice and palliative care services. These findings emphasize the importance of a cross-cultural approach in a palliative care and hospice setting.

show abstract

Grief and Bereavement in the Latino/a Community: A Literature Synthesis and Directions for Future Research

et al. 2022

View full text Add to dashboard Cite

Introduction: Bereavement and grief are social phenomena influenced by a multitude of cultural factors. Prior studies of bereavement adjustment have primarily focused on bereaved survivors who identify racially as white; knowledge of the experience of grief and bereavement among racial/ethnic and other minority groups, particularly among Latino/a groups, in the United States is limited. Objective: The purpose of this review is to synthesize the literature documenting the bereavement experiences of the Latino/a community, evaluate the strength of the current evidence, and provide recommendations to guide future research. Method: A narrative review of research on grief and bereavement in the Latino/a community published between 1990 and 2021. Two authors used a thematic, deductive approach to categorize emergent prevalent themes from the literature and used The Grading of Recommendations Assessment, Development, and Evaluation (GRADE) and The Oxford Center for Evidence-Based Medicine—Evidence Quality Rating Scale (OCEBM) approaches to evaluate the strength of the qualitative and quantitative reports reviewed. Results: Searches revealed 26 reports that were categorized into six themes: cultural values, mourning rituals, immigration, spirituality, disparities related to the COVID-19 pandemic, and the effects of COVID-19 on Latino/a communities. Our evaluation concludes that the evidence in this area is weak, with limited methodologically rigorous research examining the influence of culture on bereavement among Latino/a groups. Conclusion: Research is needed to identify Latino/a groups' mental health, cultural, social, and family needs and how fulfillment of mourning rituals and other cultural factors may promote or impede bereavement adjustment. Investigation into factors that may protect bereaved survivors against adverse mental health outcomes is also needed. A better understanding of Latino/a grief and bereavement is a step toward the development of culturally competent interventions designed to promote the mental health and psychosocial adjustment of Latino/a mourners.

show abstract

A qualitative study of the emotional and spiritual needs of Hispanic families in hospice

Abstract: Our results provide insight into the specific emotional and spiritual needs of Hispanic families receiving hospice services. Our findings highlight that cultural values play an important role in the hospice care experiences of Hispanic families.

Cited by 7 publications

References 29 publications

Improving End-of-Life Care for Diverse Populations: Communication, Competency, and System Supports

Improving End-of-Life Care for Diverse Populations: Communication, Competency, and System Supports

Cross-Cultural Experiences of Hospice and Palliative Care Services: A Thematic Analysis

Grief and Bereavement in the Latino/a Community: A Literature Synthesis and Directions for Future Research

Contact Info

Product

Resources

About