A Qualitative Study of the Values, Needs, and Preferences of Patients Regarding Stroke Care: The ValueCare Study

Bally, Esmee LS; Cheng, Demi; Grieken, Amy van; Dam-Nolen, Dianne H.K. van; Macchione, Stefania; Sanz, Mireia Ferri; Carroll, Anne-Marie; Roozenbeek, Bob; Dippel, Diederik W.J.; Raat, Hein

doi:10.5334/ijic.6997

Cited by 2 publications

(2 citation statements)

References 40 publications

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“…A study by Lines et al [33] mentioned that according to the experience of home-based care recipients, one of the home-based care patient's needs is to receive education from health workers according to the condition of the patient and their family members. This study supported another research which concluded that stroke patients indicated a need for tailored health information, psychosocial services, pro-active follow-up care and improved coordination of care [34]. Health worker visits are one way to reduce family burdens and increase family coping to adapt to their current living conditions.…”

Section: Balance Between Family Burden and Copingsupporting

confidence: 81%

Unveiling the patient-centered approach: exploring the needs of Javanese stroke patients in home health services

Chayati,

Mikami,

Setyopranoto

et al. 2024

IJPHS

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Home-based care can be effective, efficient, safe, and affordable, if this care is performed using a patient-centered approach. Patient-centered care prioritizes the patient’s needs and preferences. The issue of patient-centered care remains the focus of various parties. This study aimed to explore the expectations of patients who have experienced a stroke, their family caregivers as recipients of home-based care services and healthcare workers as home-based care providers. This study used a qualitative explorative model. Semi-structured interviews were conducted with 19 participants, in addition to 4 focus group discussions. Data was analyzed using a content analysis approach with open code 13 software and the results were presented in COREQ systematics for qualitative studies. There were four main themes present in the results: physical well-being, self-actualization, psychological condition and balance between family burden and coping. Physical limitations were highlighted as the most burden some for the majority of the participants. At the time of the study, the majority of the patients, their family and health workers were diligently working towards to achieving the best outcome regarding physical well-being. Physical well-being is a fundamental need. Reaching this goal, could lead to better self-actualization, better physiological condition and improving the burden on families. This study may be useful as preliminary data to compile a home-based care construct indicators for stroke patients.

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Section: Balance Between Family Burden and Copingsupporting

confidence: 81%

Unveiling the patient-centered approach: exploring the needs of Javanese stroke patients in home health services

Chayati,

Mikami,

Setyopranoto

et al. 2024

IJPHS

View full text Add to dashboard Cite

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“…For example, tailoring data collection to meet the needs of individuals with stroke is necessary because individuals with stroke have different needs (e.g., being mindful of participants' function when assigning physical tasks) [54,129,130]. Also, if individualized and tailored approaches to stroke care are common in clinical practice (e.g., [137][138][139][140]), these approaches should be adopted for research and data collection [141]. Researchers will need to allocate sufficient time (e.g., meeting with individuals before data collection to understand how to engage them in data collection meaningfully) and resources (e.g., accessible written communication) to tailor data collection activities to meet the needs of individuals with stroke [26,43,65].…”

Section: Discussionmentioning

confidence: 99%

Co-design for stroke intervention development: Results of a scoping review

Singh,

Benn,

Fung

et al. 2024

PLoS ONE

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Background Co-design methodology seeks to actively engage end-users in developing interventions. It is increasingly used to design stroke interventions; however, limited guidance exists, particularly with/for individuals with stroke who have diverse cognitive, physical and functional abilities. Thus, we describe 1) the extent of existing research that has used co-design for stroke intervention development and 2) how co-design has been used to develop stroke interventions among studies that explicitly used co-design, including the rationale, types of co-designed stroke interventions, participants involved, research methodologies/approaches, methods of incorporating end-users in the research, co-design limitations, challenges and potential strategies reported by researchers. Materials and methods A scoping review informed by Joanna Briggs Institute and Arksey & O’Malley methodology was conducted by searching nine databases on December 21, 2022, to locate English-language literature that used co-design to develop a stroke intervention. Additional data sources were identified through a hand search. Data sources were de-duplicated, and two research team members reviewed their titles, abstracts and full text to ensure they met the inclusion criteria. Data relating to the research objectives were extracted, analyzed, and reported numerically and descriptively. Results Data sources used co-design for stroke intervention development with (n = 89) and without (n = 139) explicitly using the term ‘co-design.’ Among studies explicitly using co-design, it was commonly used to understand end-user needs and generate new ideas. Many co-designed interventions were technology-based (65%), and 48% were for physical rehabilitation or activity-based. Co-design was commonly conducted with multiple participants (82%; e.g., individuals with stroke, family members/caregivers and clinicians) and used various methods to engage end-users, including focus groups and workshops. Limitations, challenges and potential strategies for recruitment, participant-engagement, contextual and logistical and ethics of co-designed interventions were described. Conclusions Given the increasing popularity of co-design as a methodology for developing stroke interventions internationally, these findings can inform future co-designed studies.

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A Qualitative Study of the Values, Needs, and Preferences of Patients Regarding Stroke Care: The ValueCare Study

Cited by 2 publications

References 40 publications

Unveiling the patient-centered approach: exploring the needs of Javanese stroke patients in home health services

Unveiling the patient-centered approach: exploring the needs of Javanese stroke patients in home health services

Co-design for stroke intervention development: Results of a scoping review

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