A Qualitative Study of the Experiences of Children With Cancer and How They Perceive Their Problems During Hospitalization in Indonesia

Abstract

Children with cancer will find it challenging to participate in social activities, especially outdoor ones. This can lead to poor interpersonal skills, loneliness, and low self-esteem. Children who are diagnosed with cancer, particularly a terminal form, have a variety of requirements, including the need to communicate and discuss, as well as the need for social support to aid in coping. Thus, the purpose of this study was to explore the experiences of children with cancer and how they perceive their problems during hospitalization in Indonesia. The research used qualitative exploratory techniques with patients receiving treatment in the Dr. Sardjito Hospital’s Children’s Health Installation in Yogyakarta. Purposive sampling was used for recruitment. The picture codes approach with photovoice was applied for data collection. The data were evaluated conceptually, and emerging themes were substantiated by statements from participant interviews. Three themes emerged: painful medical procedures that traumatize youngsters, indoor facilities that provide comfort for children, and playmates similar to siblings. Developing the necessary support programs for these children involves meticulous planning and preparation, which must begin even before children return to school and involve teachers, health care providers, and family members.
 Keywords: cancer, children, problems, hospitalization, qualitative study