A qualitative study of pain and related symptoms experienced by people with Ehlers-Danlos syndromes
Jane R. Schubart,
Susan E. Mills,
Clair A. Francomano
et al.
Abstract:IntroductionIndividuals with Ehlers-Danlos syndromes (EDS) often have complex and multi-faceted symptoms across the lifespan. Pain and the related symptoms of fatigue and sleep disorders are common. The objective of this qualitative study was to understand how participants manage their pain and related symptoms.MethodsThe design was a qualitative thematic content analysis. Twenty-eight interviews were conducted to collect data from individuals who were participants in a prior quantitative longitudinal study. A… Show more
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