A qualitative study of living with the burden from heart failure treatment: Exploring the patient capacity for self‐care

Nordfonn, Oda Karin; Morken, Ingvild Margreta; Husebø, Anne Marie Lunde

doi:10.1002/nop2.455

Cited by 13 publications

(13 citation statements)

References 39 publications

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“…An important finding from the current study for healthcare professionals to heed is that when using self-care tools for home monitoring, our HF patients emphasized that they do not want to read about or be reminded about HF. This may be a way of coping in everyday life when living with HF [53], but it also highlights for healthcare professionals the need to listen to the concerns of their HF patients and individualize their care in person or remotely.…”

Section: Discussionmentioning

confidence: 99%

Tools to Support Self-Care Monitoring at Home: Perspectives of Patients with Heart Failure

Aamodt

Strömberg

Hellesø

et al. 2020

IJERPH

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Self-care monitoring at home can be a challenge for patients with heart failure (HF). Tools that leverage information and communication technology (ICT), comprise medical devices, or have written material may support their efforts at home. The aim of this study was to describe HF patients’ experiences and their prioritization of tools that support, or could support, self-care monitoring at home. A descriptive qualitative design employing semi-structured interviews was used with HF patients living at home and attending an HF outpatient clinic in Norway. We used a deductive analysis approach, using the concept of self-care monitoring with ICT tools, paper-based tools, medical devices, and tools to consult with healthcare professionals (HCPs) as the categorization matrix. Nineteen HF patients with a mean age of 64 years participated. ICT tools are used by individual participants to identify changes in their HF symptoms, but are not available by healthcare services. Paper-based tools, medical devices, and face-to-face consultation with healthcare professionals are traditional tools that are available and used by individual participants. HF patients use traditional and ICT tools to support recognizing, identifying, and responding to HF symptoms at home, suggesting that they could be used if they are available and supplemented by in-person consultation with HCPs.

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Section: Discussionmentioning

confidence: 99%

Tools to Support Self-Care Monitoring at Home: Perspectives of Patients with Heart Failure

Aamodt

Strömberg

Hellesø

et al. 2020

IJERPH

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“…argued that self-care counseling aimed at improving immigrants’ well-being must consider their diverse circumstances [ 17 ]. Patients’ personal characteristics and coping strategies, as well as the emotional and informational support they received from nurses and relatives, affect their self-care strategies [ 18 , 19 ]. A meta-synthesis of 19 qualitative studies on HF patients found that it was essential to consider patients’ individual perceptions of HF to successfully facilitate their development of self-management strategies [ 20 ].…”

Section: Introductionmentioning

confidence: 99%

A qualitative study of nurses’ experiences of self-care counseling in migrant patients with heart failure

Patel

Szkinc-Olsson

Liddawi

2021

International Journal of Nursing Sciences

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Objectives This study aims to enhance researchers’ and nurses’ understanding of how to best support migrant patients with heart failure in self-care management. Previous research on self-care in heart failure patients has highlighted its importance, particularly among migrant populations. Nurses play an important role in informing and engaging patients with chronic conditions like heart failure to support their active participation in self-care. However, nurses’ experiences of providing self-care counseling to migrant populations with heart failure have not been studied. Methods A qualitative study was conducted. Nurses working with migrant patients with HF ( n = 13) from different types of facility in Western Sweden were interviewed between October and December 2020. Data were collected using semi-structured interviews and analyzed using inductive thematic analysis. Results The main theme that emerged from the interviews was the difficulty for nurses “ to find balance” in self-care counseling . The nurses during self-care counseling had: “ to accept challenges , ” “to use creative strategies , ” faced “problems related to health literacy , ” and “ to work according to their (the nurses’) obligations.” It was evident that nurses faced several challenges in counseling migrants in self-care, including language and cultural barriers, time resource constraints, low levels of health literacy, and experienced disharmony between the law and their professional norms. They perceived building caring relationships with their patients to be crucial to fostering health-promoting self-care processes. Conclusions To increase self-care adherence, nurses must become more sensitive to cultural differences and adapt self-care counseling to patients’ health literacy. The findings of this research support and challenge nurses in providing the best counsel to migrant patients with heart failure living in Sweden’s multi-ethnic society. Policymakers in the health care organization should act to facilitate mutual cultural understanding between all involved partners for patient-safe self-care counseling.

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“…In CHF patients in Norway, Nordfonn et al 35 observed moderate correlations between HRQoL scores (MLHFQ total score) and the BoT dimensions (role/social activity limitations and physical/mental fatigue), which are comparable with our findings. In our work, we examined this further by looking at the MLHFQ sub-score, which showed a strong association between emotional sub-score of MLHFQ and the impact of self-care (PETS impact index), further adding to Nordfonn et al 14 conclusions that psychological distress adds to BoT and impairs HRQoL.…”

Section: Discussionmentioning

confidence: 95%

“…BoT specific to CHF has been linked to multiple medications and disjointed healthcare services 12,13 . Emotional burden and an individual's capacity have been highlighted as factors that increase BoT in CHF 14 . Physical symptoms are thought to contribute to emotional burden 15 .…”

Section: Introductionmentioning

confidence: 99%

SYMptoms in chronic heart failure imPACT on burden of treatment (SYMPACT): a cross‐sectional survey

et al. 2022

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AimsThis study aimed to describe patient-reported symptoms and burden of treatment (BoT) experienced by patients with chronic heart failure (CHF). BoT describes the illness workload, individual capacity to perform that work, and resultant impact on the individual. Overwhelming BoT is related to poor quality of life and worse clinical outcomes. This research is the first to explore symptoms and BoT in people with CHF, in the UK. Methods and resultsThis is a cross-sectional questionnaire survey of CHF patients. Participants completed the Heart Failure Symptom Survey (HFSS; max score 10) and the Minnesota Living with Heart Failure Questionnaire (MLHFQ; max scores: physical 40, emotional 25, and total 105), which measured symptoms. BoT was measured with the Patient Experience with Treatment and Self-management (PETS; max score 100) questionnaires. Participant characteristics and questionnaire results were summarized using descriptive statistics. Relationships between symptoms and BoT, summarized by the workload and impact indices, were explored using Spearman's and Pearson's correlation coefficients together with scatter plots. The survey was completed by 333 participants, mean age of 71 (±13) years old. The majority (89%) were recruited from secondary care NHS trusts, and 25% were female. All types of heart failure were represented. Mean symptom scores were as follows: HFSS burden score: 2.4 (±2.1), and MLHFQ scores: physical score 20 (±12.4), emotional score 9.9 (±8.1), and total score 41.3 (±26.3). The highest mean PETS domain scores were exercise [51.3 (±24.7)], diet [40.3 (±22.7)], difficulty with healthcare services [39.9 (±21.3)], and physical and mental fatigue [36.0 (±25.7)]. Pairwise correlations were observed between HFSS scores and MLHFQ physical and emotional sub-scores with PETS workload and impact indices. Positive correlations were weak to moderate (0.326-0.487) between workload index and symptoms, and moderate to strong between impact index and symptoms (0.553-0.725). The P value was 0.006, adjusted by Bonferroni's correction. Conclusions Symptoms are associated with BoT in CHF patients. Although symptom burden was low, CHF patients reported higher levels of burden around self-care activities of exercise, diet, healthcare interaction, as well as physical and mental fatigue due to engagement with self-care regimens. Observed higher levels of burden were in key self-care areas for CHF and suggest areas where service delivery and support of CHF patients may be improved to reduce BoT. Clinicians could individualize their consultations by focusing on troublesome symptoms, as well as alleviating illness workload, which may better enable patients to live well with CHF.

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A qualitative study of living with the burden from heart failure treatment: Exploring the patient capacity for self‐care

Cited by 13 publications

References 39 publications

Tools to Support Self-Care Monitoring at Home: Perspectives of Patients with Heart Failure

Tools to Support Self-Care Monitoring at Home: Perspectives of Patients with Heart Failure

A qualitative study of nurses’ experiences of self-care counseling in migrant patients with heart failure

SYMptoms in chronic heart failure imPACT on burden of treatment (SYMPACT): a cross‐sectional survey

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