A Qualitative Study of Autism Policy in Canada: Seeking Consensus on Children’s Services

Shepherd, C.; Waddell, Charlotte

doi:10.1007/s10803-015-2502-x

Cited by 49 publications

(50 citation statements)

References 25 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…And even within this context of overall low priority receipt, our data affirms that the service system as a whole is relatively more aligned with the priority needs of young children with ASD [Gerhardt & Lainer, ]. This age related pattern will likely change with the increasing recognition of ASD needs across the life course [Pellicano, Dinsmore, & Charman, ; Shepherd & Waddell, ].…”

Section: Discussionsupporting

confidence: 63%

Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder

Lai

Weiss

2017

Autism Research

View full text Add to dashboard Cite

Individuals with Autism Spectrum Disorder (ASD) have a range of health, community, and social support needs across the lifespan that create age‐specific challenges in navigating service sectors. In this study, we set out to identify the priority needs of individuals with ASD across the lifespan, and the factors that predict receiving priority services. Participants included 3,317 individuals with ASD from a Canada‐wide online caregiver survey, stratified into five age groups (preschool, elementary school age, adolescence, emerging adulthood, adulthood). Priority receipt was calculated as a ratio of current services that corresponded to individualized priority need. Age‐stratified Poisson regression analyses were used to identify the sociodemographic, clinical and systemic predictors of priority receipt. Results indicate that the distribution of priority need varied by age, except for social skills programming, which was a high across all groups. The number of high and moderate priority needs diversified with age. Overall, 30% of individuals had none of their priority needs met and priority receipt decreased with age. Systemic factors were most consistently related to priority receipt across the lifespan. Understanding patterns and correlates of priority needs and use that currently exist in different age groups can inform policies to improve service access. Autism Res 2017, 10: 1436–1447. © 2017 International Society for Autism Research, Wiley Periodicals, Inc.

show abstract

Section: Discussionsupporting

confidence: 63%

Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder

Lai

Weiss

2017

Autism Research

View full text Add to dashboard Cite

show abstract

“…As a result, they may struggle to navigate through new systems of service for children, especially those with more complex developmental difficulties, such as ASD (Shepherd and Waddell 2015). There are also a host of variables that can impact the ability of immigrant families to access supports for their children and for themselves.…”

mentioning

confidence: 99%

Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada

Khanlou

Haque

Mustafa

et al. 2017

Int J Ment Health Addiction

View full text Add to dashboard Cite

Equal access for autism services remains suboptimal for diverse groups. In Canada, little is known about the barriers immigrant mothers face accessing services and support for their children with developmental disabilities. In this qualitative study, 21 immigrant mothers of children with Autism, from a diverse ethno cultural background, were interviewed in Toronto, Canada. We apply House’s (1981) four domains of social support to analyze findings. Structural support challenges, such as delays in diagnosis, fragmented and dispersed services were common, followed by instrumental challenges due to loss of social ties and stigma. Lack of expected support from partners, and negative perceptions of services, were identified as emotional and perceptive challenges. Focused attention is required to address inequalities within the context of current access pathways for autism.

show abstract

“…In general, policy systems for ASD in developed countries are well established [9], [10], [11], [12]. For instance, in the United States, all 50 states have guidelines for standards of education, training and practice for different types of services and professionals [13], [14], [15].…”

Section: Literature Reviewmentioning

confidence: 99%

Characteristics of Agencies Providing Support Services for Children with Autism Spectrum Disorders in Vietnam

Tran

Weiss

2019

IJSSH

View full text Add to dashboard Cite

As in virtually all countries, in Vietnam there has been a general trend towards apparent increased rates of Autism Spectrum Disorder (ASD). To address the needs of families and children with ASD, many agencies providing support services have been opened throughout Vietnam over the last two decades. Although agencies in general appear to strive to provide good quality service, the actual quality of operations is unknown. The present article collected and analyzed secondary data from 68 agencies across Vietnam from different information sources, using the nine criteria published by Tran, Weiss, and Pham (in press) [1] and Nguyen, Hoang, Nguyen, Pham, and Tran (2017) [2] to evaluate agency quality. Results of this review suggest that a significant number of centers do not have appropriate legal status, are not following basic ethical standards, are using non-evidence based intervention methods, and are unclear in regards to the intervention procedures or intervention plans they use. Although the current study has a number of limitations, it provides important initial information regarding the current status of ASD services in Vietnam.

show abstract

A Qualitative Study of Autism Policy in Canada: Seeking Consensus on Children’s Services

Cited by 49 publications

References 25 publications

Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder

Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder

Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada

Characteristics of Agencies Providing Support Services for Children with Autism Spectrum Disorders in Vietnam

Contact Info

Product

Resources

About