“…Given that a key aspect of genetics healthcare is to support and encourage family communication, it is expected that genetic health professionals will have these discussions with parents (McCarthy Veach, Bartels, & Leroy, ; Mendes, Paneque, Sousa, Clarke, & Sequeiros, ). However, there can be professional uncertainty about what disclosure advice to give parents, and concerns about the ethics of sharing genetic information with affected or at‐risk children and young people (BMA ; Eisler et al, ; Ulph, Leong, Glazebrook, & Townsend, ). Furthermore, there is little specific guidance about how professionals should support parents with such disclosure decisions (Forrest et al, ; Werner‐Lin, Merrill, & Brandt, ).…”