A qualitative exploration of the fear of recurrence among Taiwanese breast cancer survivors

Abstract

Objective Fear of cancer recurrence (FCR) is the most commonly reported problem and unmet need among breast cancer survivors. The aim of this qualitative study was to explore the experience of recurrence fears among Taiwanese breast cancer survivors. Methods Three focus groups were included in this study. A purposive sampling technique was used to recruit 11 recurrence‐free women at least 20 years of age from southern Taiwan who were diagnosed with breast cancer within the previous 2 years. Data were analysed and interpreted using content analysis. Results Three themes reflecting the experience of FCR were extracted from the transcript analyses: “Trapped in insecurity,” “Suffering in silence,” and “Pretending as if nothing happened.” Participants endured a complex set of circumstances akin to silently walking the survival tightrope. Breast cancer survivors were still insecure and suffering, rather than celebrating survival, after the completion of treatment. Fear of cancer recurrence silently dominated their lives. Conclusions An avoidance mindset and an unspoken FCR leave survivors insecure, resulting in a silent survival journey. These difficult thoughts and feelings that may impact the reconstruction of post‐cancer life should be acknowledged. The development of appropriate survivorship care programs and emotional resilience regarding recurrence is needed for Taiwanese breast cancer survivors.

Threat to survival, the main concern of breast cancer survivors: A qualitative content analysis

“…Fear of recurrence was the first subcategory of the threatening of progressive disease and the most significant psychological stress factor among breast cancer survivors. Fear of recurrence of the disease was the primary concern of breast cancer survivors in the majority of studies (38,39). Despite advances in therapy and longer patient survival, breast cancer survivors and their family worry a recurrence of the illness, and this fear can cause suffering for years after discharge.…”

The Role of Early Maladaptive Schemas on Coping Styles and Fear of Recurrence in Women With Breast Cancer: A Cross-Sectional Study

“…Accordingly, when faced with unrelenting cancer diagnosis standards, the person is over-vigilant to the physical symptoms and effectiveness of treatment and falls into the trap of a cycle of obsessive thoughts and rumination. To cope with his/her fears and obsessive thoughts, the person turns to undergo frequent unnecessary examinations and screenings which in the long run reinforces the anxiety and FCR [28,29]. Besides, the limitations that cancer treatment impose could be an obstacle to achieving the unrelenting standards set.…”

Psychosocial experiences of breast cancer survivors: a meta-review

“…Limitations and stigmatisation meant some survivors isolated themselves or felt unable to fully participate in social life, consequently reducing the social support available to them [Reviews: [21,113]; Papers: [44,48,72,74,90,103]]. Some survivors, especially older survivors, reported not wanting to burden those around them [Reviews: [25,28]; Paper: [90]]. Many also felt misunderstood by others (including family, community and co-workers) as they struggled with ongoing challenges from their diagnosis and treatment.…”

“…It's a disappointment [Review: [37]] We feel lost, really. There is a lot of information missing-information about knowing what to do, where to call [Paper: [60]] Survivors also noted a need for relevant information, empathy and support from health services, otherwise they felt dismissed, unsupported and alone [Reviews: [36,37]; Papers: [40,46,51,68,72,82,84,85,90,91,97,105]]. I wished that my pain at home was followed up much more [Review: [37]]…”