A qualitative exploration into the long-term perspectives of patients receiving critical care diaries across the United Kingdom

O’Gara, Geraldine; Pattison, Natalie

doi:10.1016/j.iccn.2016.04.006

Cited by 20 publications

(32 citation statements)

References 23 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Figure 1 outlines the flowchart of the search, with respective reasons for study exclusion. Of the seventeen, two were "Grounded Theory" (12,13), one was "Focus Group" (14), eight were "Descriptive/Narrative" (15)(16)(17)(18)(19)(20)(21)(22), three were "Phenomenologic-hermeneutic" (23)(24)(25), one had an "empirical qualitative" design (26), and two had "Mixed-methods" design (27,28). Characteristics of included studies are summarized in Table 1, and the structure of the diaries used in studies is presented in Table S1 (http://links.lww.com/CCM/G281).…”

Section: Resultsmentioning

confidence: 99%

Exploring Patients’ Perceptions on ICU Diaries: A Systematic Review and Qualitative Data Synthesis

Barreto

Luz

Lopes

et al. 2021

Critical Care Medicine

View full text Add to dashboard Cite

OBJECTIVES: This study aims to summarize the current qualitative evidence on patients’ experiences of reading the ICU diaries. DATA SOURCES: We searched the online databases PubMed, Ovid, EMBASE, and EBSCO host from inception to July 2020. STUDY SELECTION: All studies that presented any qualitative findings regarding patients’ experiences of reading an ICU diary were included. DATA EXTRACTION: Study design, location, publication year, data collection method, and mode, all qualitative themes identified and reported, and participant quotations, when appropriate. We also extracted data regarding the diary structure, when available. A thematic synthesis approach was used to analyze and synthesize qualitative data. DATA SYNTHESIS: Seventeen studies were analyzed. Most patients reported positive experiences with the ICU diary, such as understanding what they survived during critical illness, better understanding the process of recovery, gaining coherence of nightmares and delusional memories, realizing the importance of the presence of family and loved ones during ICU stay, and humanizing healthcare professionals that helped them survive critical illness. Patients also reported which components of the diary were important for their recovery, such as the presence of photographs and reading the diary with a healthcare professional, allowing the improvement of the concept of the ICU diary. Conclusion: This qualitative synthesis shows that patients recommend having an ICU diary, enlightening benefits such as better coping with the slow recovery from critical illness, strengthening family ties, and humanizing the ICU staff. It also identifies characteristics of the diary valued by the patients, in order to standardize the ICU diary according to their perspectives, and allowing future comparability between randomized controlled trials.

show abstract

Section: Resultsmentioning

confidence: 99%

Exploring Patients’ Perceptions on ICU Diaries: A Systematic Review and Qualitative Data Synthesis

Barreto

Luz

Lopes

et al. 2021

Critical Care Medicine

View full text Add to dashboard Cite

show abstract

“…Discordant findings in published studies may be explained by the fact that every patient admitted to the ICU and their relatives are different, both from a clinical and personal standpoint. We know that patients appreciate ICU diaries, but they acknowledge that they need support when they receive it 29 . Reading an ICU diary for the first time could be a stressful experience for patients as they may realize the agonies suffered by themselves and by their families with the risk of adverse effects from diaries.…”

Section: Discussionmentioning

confidence: 99%

The Effect of Intensive Care Unit Diaries on Posttraumatic Stress Disorder, Anxiety, and Depression

Gazzato

Scquizzato

Imbrìaco

et al. 2022

Dimens Crit Care Nurs

View full text Add to dashboard Cite

Introduction: Patients discharged from the intensive care unit (ICU) suffer from long-term symptoms affecting the physical, psychological, and cognitive well-being and cannot understand memories and dreams. Intensive care unit diaries describe daily events about the patient and may allow them to reconstruct their experience.Objective: We conducted a systematic review and meta-analysis of randomized controlled trials (RCTs) to investigate the effects of ICU diaries on posttraumatic stress disorder (PTSD), depression, and anxiety. Methods: Five electronic databases were searched up to May 6, 2022. We included RCTs comparing patients admitted to the ICU who received a diary to those who did not receive a diary. The primary outcome was the rate of PTSD. Secondary outcomes were rates of depression and anxiety.Results: We included 7 RCTs. Patients who received a diary during the ICU admission had reduced rate of PTSD (78/432 [18%] vs 106/422 [25%]; risk ratio [RR], 0.73; 95% confidence interval [CI], 0.57-0.94; P = .02; I 2 = 0%; trial sequential analysis-adjusted CI, 0.55-0.97) when compared with patients who did not receive a diary. We found a non-statistically significant difference toward a

show abstract

“…Established strategies in critical care such as a named nurse, enabling family presence on ward rounds and flexible visiting hours, 32,53 the use of patient/family diaries 32,54 and family cascading of information appear to be simple solutions that are underutilized. This may be because of unit culture or lack of team coordination, and a toolkit may offer some solution to these issues.…”

Section: Discussionmentioning

confidence: 99%

Chronic illness and critical care—A qualitative exploration of family experience and need

O’Gara

Wiseman

Doyle

et al. 2022

Nursing in Critical Care

Self Cite

View full text Add to dashboard Cite

Background People with chronic illnesses such as cancer and cardiovascular disease are living longer and often require the support of critical care services. Current health care provision means patients may be discharged home once clinically stable despite still having high care demands including social, emotional, or physical needs. Families are often required to assume caregiving roles. Research into family burden using quantitative methods has increased awareness, however, little qualitative work exists and the development of support interventions for families is required. Aims To explore the experience and needs of family members of people with an existing chronic illness who are admitted to the Critical Care Unit (CCU), and to identify the desired components of a family support intervention in the form of a resource toolkit. Study design A qualitative exploration of family experience and need, and content development for a resource toolkit using focus group methodology. Two focus groups and one face‐to‐face interview were conducted involving nine adult (≥18 years) family members of adult patients with chronic illness admitted to critical care in the preceding 9 months across two specialist hospitals in the UK. These were digitally recorded, transcribed, and thematically analysed. Results Four themes were identified: importance of communication, need for support, trauma of chronic illness, and having to provide “Do‐it‐Yourself” care. The immense responsibility of families to provide care throughout the illness trajectory is highlighted. Understandable information is essential for a family support toolkit. Conclusion Family members often view a critical care episode broadly from diagnosis through to recovery/rehabilitation. Basic communication training skills within critical care should be ensured, alongside coordination of simple solutions. The potential traumatic impact on families should be highlighted early within the pathway, and positive aspects used to harness essential family support. A simple and coordinated approach to a toolkit is preferred. Relevance to clinical practice This study highlights that a critical care experience may impact broadly beyond CCU, and the importance of informing patients and families of this potential experience, prior to or on admission, to aid preparation. Further highlighted is the need for contemporaneous and accurate information from clinicians involved in care. Families report a better experience when there is good collaboration across critical care services and admitting clinical teams. Early involvement of families in overall discharge planning is essential to allow patients and families to adjust and plan for recovery.

show abstract

A qualitative exploration into the long-term perspectives of patients receiving critical care diaries across the United Kingdom

Cited by 20 publications

References 23 publications

Exploring Patients’ Perceptions on ICU Diaries: A Systematic Review and Qualitative Data Synthesis

Exploring Patients’ Perceptions on ICU Diaries: A Systematic Review and Qualitative Data Synthesis

The Effect of Intensive Care Unit Diaries on Posttraumatic Stress Disorder, Anxiety, and Depression

Chronic illness and critical care—A qualitative exploration of family experience and need

Contact Info

Product

Resources

About