A qualitative evaluation of caregivers’ experiences, understanding and outcomes following diagnosis of FASD

Experiences of living with fetal alcohol spectrum disorders: a systematic review and synthesis of qualitative data

“…In the study by Chamberlain et al, 17 an adoptive mother argues: 'Without the behaviours, he was a very persevering, clever little boy. Parents brought up that having a diagnosis also means that the child can be labelled by the society in a judgemental way.…”

“…However, receiving a diagnosis for their child also meant a great relief for the parents because it gave them an explanation for their child's behaviour. One adoptive mum in the study by Chamberlain et al explained 17 : 'It was my lack of qualifications. Parents explained that a diagnosis is needed to receive support and to be able to address proper interventions for their child.…”

“…Only one of the included studies investigated the experiences of an intervention aimed for parents raising children 15 Salmon, 16 Chamberlain et al, 17 Watson et al, 19 Gardner, 25 Granitsas, 26 Whitehurst 31 Parents experience that their children show various combinations of cognitive and physical disabilities…”

“…The reasons for rating down are moderate concerns regarding methodological limitations and minor concerns regarding adequacy of data Sanders and Buck, 15 Chamberlain et al, 17 Ryan and Ferguson, 21 Granitsas, 26 Michaud and Temple 28 Parents express positive feelings such as joy, pride, and devotion to their children (in spite of all difficulties) The reasons for rating down are moderate concerns regarding methodological limitations and minor concerns regarding adequacy of data Sanders and Buck, 15 Chamberlain et al, 17 Ryan and Ferguson, 21 Granitsas, 26 Michaud and Temple 28 Parents express positive feelings such as joy, pride, and devotion to their children (in spite of all difficulties)…”

“…The reasons for rating down are moderate concerns with regard to methodological limitations Sanders and Buck, 15 Chamberlain et al, 17 Mukherjee et al, 18 Watson et al, 19 Gardner, 25 Granitsas, 26 Michaud and Temple 28 Parents express concern for their child's future and their own ability for a successful lifelong parenting The reasons for rating down are moderate concerns with regard to methodological limitations Sanders and Buck, 15 Chamberlain et al, 17 Mukherjee et al, 18 Watson et al, 19 Gardner, 25 Granitsas, 26 Michaud and Temple 28 Parents express concern for their child's future and their own ability for a successful lifelong parenting…”