A Psycho-Educational Intervention for Family Caregivers of Patients Receiving Palliative Care: A Randomized Controlled Trial

Hudson, Peter; Aranda, Sanchia; Hayman-White, Karla

doi:10.1016/j.jpainsymman.2005.04.006

Cited by 164 publications

(275 citation statements)

References 57 publications

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“…The follow-up measures were conducted eight weeks after randomisation; this was sufficient time to observe the effects of the intervention and is consistent with other pain education studies [71,72]. However, we do not know whether the positive results we observed are likely to be sustained beyond that time frame.…”

Section: Strengths and Limitationssupporting

confidence: 64%

An Educational Intervention to Reduce Pain and Improve Pain Management for Malawian People Living With HIV/AIDS and Their Family Carers: A Randomized Controlled Trial

Nkhoma

Seymour

Arthur

2015

Journal of Pain and Symptom Management

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Section: Strengths and Limitationssupporting

confidence: 64%

An Educational Intervention to Reduce Pain and Improve Pain Management for Malawian People Living With HIV/AIDS and Their Family Carers: A Randomized Controlled Trial

Nkhoma

Seymour

Arthur

2015

Journal of Pain and Symptom Management

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“…32 Indeed, the involvement of family members in care decision making is seen as central to implementing a palliative approach to care. 33 As many of the treatment issues identified in the papers reviewed here relate to late stage dementia and end of life, this is a key concern for practice.…”

Section: Discussionmentioning

confidence: 99%

Family involvement in decision making for people with dementia in residential aged care

Petriwskyj

Gibson

Parker

et al. 2014

International Journal of Evidence-Based Healthcare

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Aim. Ensuring older adults' involvement in their care is accepted as good practice and is vital, particularly for people with dementia, whose care and treatment needs change considerably over the course of the illness. However, involving family members in decision making on people's behalf is still practically difficult for staff and family. The aim of this review was to identify and appraise the existing quantitative evidence about family involvement in decision making for people with dementia living in residential aged care.Methods. This Joanna Briggs Institute (JBI) meta-synthesis assessed studies that investigated involvement of family members in decision making for people with dementia in residential aged care settings. Whilst quantitative and qualitative studies were included in the review, this paper presents the quantitative findings. A comprehensive search of 15 electronic databases was performed. The search was limited to papers published in English, from 1990 to 2013. Twenty six studies were identified as being relevant; ten were quantitative, with one mixed-method study. Two independent reviewers assessed the studies for methodological validity and extracted the data using the JBI Meta Analysis of Statistics Assessment and Review Instrument (JBIMAStARI). The findings were synthesised and presented in narrative form. Conclusions.The results identified patterns within and variables associated with surrogate decision making, which all highlight the complexity and variation regarding family involvement.Attention needs to be paid to supporting family members in decision making in collaboration with staff. Word count: 269Keywords: decision making; dementia; family; residential aged care; systematic review Care Home Minimum Standards make frequent reference to "residents and their representatives" being informed, consulted, and involved in decision making and care planning, among other decisions in the facility. 8,9 In the United States, the Federal Requirements for Long Term Care Facilities 9 commonly makes reference to "the resident or their representative", the "legal representative", or "family member" in regard to information, consent, and care planning. Other countries similarly, both implicitly and explicitly, refer to representatives, including family, being informed and involved in planning and decision making. However, the enactment of these standards is not consistent across contexts.There have also been attempts to develop best practice approaches to involving family members in the care of older people in residential care. In Australia, for example, participation of family members in the care of older people is also highlighted in the Palliative ApproachGuidelines for RAC and Community. 10,11 Further, the recent development of consumer focused documents in Australia which highlight the role of family members and proxy decision makers in contributing to care decisions for planning for end of life with dementia is a good example of the growing policy context which supports the involvemen...

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“…At the 30-day follow-up the intervention group had greater improvement in quality of life and less burden (54). In another randomized controlled trial for caregivers of patient in palliative care, caregivers who participated in a psychoeducational intervention reported a more positive caregiving experience (55). The lessons learned from these studies could be used to design interventions to help caregiver cope with a loved one's suffering.…”

Section: Patient Suffering As a Target For Caregiver Interventionsmentioning

confidence: 99%

Improving Well-Being in Caregivers of Terminally Ill Patients. Making the Case for Patient Suffering as a Focus for Intervention Research

Hebert

Arnold

Schulz

2007

Journal of Pain and Symptom Management

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Family caregivers are integral to the care of patients with physical or mental impairments. Unfortunately, providing this care is often detrimental to the caregivers' health. As a result, in the last decade, there has been a proliferation of interventions designed to improve caregivers' wellbeing. Interventions for caregivers of persons at end-of-life, however, are relatively few in number and are often underdeveloped. They also are typically designed to help reduce the work of caregiving or to help caregivers cope with the physical and emotional demands of providing care. While useful, these interventions generally ignore a primary stressor for family caregivers-a loved one's suffering. Patient suffering, whether physical, psychosocial, or spiritual, has a major impact on family caregivers. However, interventions that focus on the relief of patient suffering as a way to improve caregiver well-being have rarely been tested. It is our view that more research in this area could lead to new and more effective interventions for family caregivers of seriously or terminally ill patients. In support of our view, we will define suffering and review the relationships between patient suffering and caregiver well-being. We will then discuss a conceptual framework for intervention design. Finally, we conclude with a discussion of implications and future directions for intervention research.

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A Psycho-Educational Intervention for Family Caregivers of Patients Receiving Palliative Care: A Randomized Controlled Trial

Cited by 164 publications

References 57 publications

An Educational Intervention to Reduce Pain and Improve Pain Management for Malawian People Living With HIV/AIDS and Their Family Carers: A Randomized Controlled Trial

An Educational Intervention to Reduce Pain and Improve Pain Management for Malawian People Living With HIV/AIDS and Their Family Carers: A Randomized Controlled Trial

Family involvement in decision making for people with dementia in residential aged care

Improving Well-Being in Caregivers of Terminally Ill Patients. Making the Case for Patient Suffering as a Focus for Intervention Research

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