A proposed system for documenting the functional outcome of paediatric laryngotracheal stenosis

Nouraei, S.A.R.; Koury, E.F.; Sandhu, Gurpreet S.

doi:10.1111/j.1749-4486.2011.02298.x

Cited by 4 publications

(5 citation statements)

References 4 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A total of 22 articles describing 14 PROMs were included for data extraction. These PROMs included: the 10‐question swallowing index (31); the Airway‐Dyspnoea‐Voice‐Swallow scale and PROM (32,33); the Behavioral Pediatrics Feeding Assessment Scale (BPFAS) (34,35); the Child and Oral Motor Proficiency Scale (ChOMPS) (36); Children’s Eating Behavior Inventory (CEBI) (37); Feeding and Swallowing Impact Scales (FS‐IS) (38); the Feeding Assessment Scale (39); the Feeding Impact Scales (40); the Four‐Item Measure of Texture Problems (41); the Parent Attribution for Child Eating Scale (42); the Pediatric Assessment Scale for Severe Feeding Problems (43); the Pediatric Eating Assessment Tool (Pedi‐EAT) (44); an unnamed PROM that investigates swallowing disorders in otherwise healthy infants and toddlers (45); and the Sensory Eating Problems (SEP) Scale (46).…”

Section: Resultsmentioning

confidence: 99%

“…The target population for the majority of PROMs included was nonspecific (n = 8, 57%), but some were intended for specific populations, including otherwise healthy children (45), children with medical and/or developmental disabilities (37), those with laryngotracheal stenosis (32,33), CHARGE syndrome (39), tube‐fed children (43), and for children following supraglottoplasty (31) (see Table 1). The included PROMs described either evaluative (ie, documenting or describing the feeding skills observed) or discriminative (ie, comparing outcomes to cut‐scores or age reference values) purposes.…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Patient-Reported Outcome Measures That Describe the Feeding Skills Domain for Pediatric Feeding Disorder: A Clinimetric Review

Marshall

Gosa

Dodrill

2023

Journal of Pediatric Gastroenterology &Amp; Nutrition

View full text Add to dashboard Cite

Objectives: Pediatric feeding disorder (PFD) is defined as "impaired oral intake that is not age-appropriate, and is associated with medical, nutritional, feeding skill, and/or psychosocial dysfunction." Patient-reported outcome measures (PROMs) are tools that complement clinical assessment, but many have limited clinimetric data. This review aimed to assess PROMs that reported on the feeding skills domain for PFD in children. Methods: A search strategy across 4 databases was conducted (July 2022). PROMs were included in the review if they described elements of the feeding skills domain of PFD, had criterion/norm-referenced data and/or a standardized assessment procedure, description, or scoring system available, and were applicable to children ≥6 months. PROMs were mapped to the PFD diagnostic domains and aspects of the International Classification of Function (ICF) model. Quality assessment was completed using the COnsensus-based Standards to the selection of health Measurement Instruments methodology. Results: Overall, 14 PROMs across 22 papers met inclusion criteria. There was variable methodological quality across the tools, with those more recently developed often receiving better scores, particularly where a more rigorous process for tool development and content validity was reported. Most tools captured ICF aspects of impairment (n = 11, eg, biting/chewing) or activity (n = 13, eg, eating a meal), rather than social participation (n = 3, eg, going to a restaurant). Conclusions: Using PROMs with strong content validity, and including some measure of social participation, is recommended as part of an assessment battery for PFD. Consideration of the caregiver/child perspective is an essential component of family-centered care.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Patient-Reported Outcome Measures That Describe the Feeding Skills Domain for Pediatric Feeding Disorder: A Clinimetric Review

Marshall

Gosa

Dodrill

2023

Journal of Pediatric Gastroenterology &Amp; Nutrition

View full text Add to dashboard Cite

show abstract

“…The Cotton‐Myer and McCaffrey grading systems for SGS were applied. Airway–Dyspnoea–Voice–Swallow (ADVS) Scale, and Activity of Daily Living (ADL) Scale (Supplement 1) were for quality of life assessment.…”

Section: Methodsmentioning

confidence: 99%

Effective treatment of post‐intubation subglottic stenosis in children with holmium laser therapy and cryotherapy via flexible bronchoscopy

Jiao

Liu

Lerner

et al. 2019

Pediatric Investigation

View full text Add to dashboard Cite

Importance Post‐intubation subglottic stenosis (SGS) in children can be life threatening. Definitive treatment varies and lacks a universally accepted approach. Objective We performed a prospective study to assess the safety and feasibility of holmium laser combined with cryotherapy delivered via flexible bronchoscopy for the treatment of post‐intubation SGS in children. Methods This study involved all patients with post‐intubation SGS seen at the Interventional Pulmonology Department of Beijing Children's Hospital between July 2014 and December 2016. Holmium laser treatment and cryotherapy was then performed under flexible bronchoscopy, whose parents refused to accept the alternative standard treatment of tracheotomy and balloon dilation under direct laryngoscopy. Results Sixteen patients with post‐intubation SGS were included in this study. Ages ranged from 2 months to 12.25 years old. According to the Cotton‐Myer grading system, three cases were Grade II, 12 cases were Grade III, and one case was Grade IV. According to the McCaffrey system, eight cases were Stage 1, two cases were Stage 2, and six cases were Stage 3. The average number of procedures was 4.88. Fifteen of the 16 patients achieved clinical cure. One patient achieved clinical improvement. The average treatment course duration was 55.31 days. No severe complications were seen. Post‐treatment clinical symptoms, endoscopic findings and quality of life showed marked improvement. Interpretation Our study supports the conclusion that holmium laser treatment combined with cryotherapy via flexible bronchoscopy appears to be a safe and feasible treatment for post‐intubation SGS in children.

show abstract

“…Normative data suggest that an overall EAT-10 score of 3 or more is abnormal. ADVS assessment was carried out to evaluate a diseasespecific patient-reported outcome measure [19,20]. It is a proven system that portrays the functional outcome of adult and children laryngotracheal stenosis.…”

Section: Quality-of-life Assessmentmentioning

confidence: 99%

Quality of life after transoral CO2 laser posterior cordotomy with or without partial arytenoidectomy for bilateral adductor vocal cord paralysis

Filauro

Vallin

Marcenaro

et al. 2021

Eur Arch Otorhinolaryngol

View full text Add to dashboard Cite

Objectives Bilateral adductor vocal cord paralysis (BAVCP) is a rare and challenging condition whose main consequence is reduction of airway patency at the glottic level, often causing respiratory distress, while vocal function tends to remain almost normal. We investigated the effect of transoral glottal widening on quality of life and decannulation rates in patients affected by BAVCP. Methods We retrospectively evaluated patients affected by BAVCP and treated by transoral CO2 posterior cordotomy with or without medial partial arytenoidectomy (PC ± MPA) at two referral centers. The primary outcome was change in quality of life, evaluated pre- and post-operatively by the ADVS, VHI-30, and EAT-10 questionnaires. Secondary outcomes were the need for retreatments and, for patients with tracheotomy, the time to decannulation. Results Thirty-three patients met selection criteria. The etiology was post-surgical in 27 cases (81.8%), idiopathic in 4 (12.1%), a trauma-related in 1 (6.0%), and to other causes in 1 (3.0%). In 22 cases (66.7%), PC was combined with MPA. A significant improvement in responses for the ADVS (p < .0001) and EAT-10 (p < .0001) was observed, whereas the VHI-30 score did not change significantly post-operatively. All nine patients with a tracheostomy were successfully decannulated within 18 months after the surgical procedure. Conclusions For patients affected by BAVCP, PC ± MPA by transoral CO2 laser microsurgery is a safe, customizable and minimally invasive treatment that can guarantee an affordable balance between quality of life in terms of phonation and swallowing and acceptable airway patency.

show abstract

A proposed system for documenting the functional outcome of paediatric laryngotracheal stenosis

Cited by 4 publications

References 4 publications

Patient-Reported Outcome Measures That Describe the Feeding Skills Domain for Pediatric Feeding Disorder: A Clinimetric Review

Patient-Reported Outcome Measures That Describe the Feeding Skills Domain for Pediatric Feeding Disorder: A Clinimetric Review

Effective treatment of post‐intubation subglottic stenosis in children with holmium laser therapy and cryotherapy via flexible bronchoscopy

Quality of life after transoral CO2 laser posterior cordotomy with or without partial arytenoidectomy for bilateral adductor vocal cord paralysis

Contact Info

Product

Resources

About