A proposed global framework for pediatric cancer communication research

Abstract

The authors introduce a functional communication framework that can be used for global pediatric cancer research.

Exploring the experiences of healthcare professionals in South Africa and Uganda around communicating with children about life-threatening conditions: a workshop-based qualitative study to inform the adaptation of communication frameworks for use in these settings

“…Healthcare professionals should recognise how in some cases, stigma may influence family-centred care within a family and their community; the importance of this is also emphasised by a recently proposed global framework for paediatric cancer communication research. 27 …”

“…Establishing a family’s cultural, spiritual and religious understanding about using other (traditional) treatment methods alongside Western medicine could help promote a mutually respectful relationship between the clinician and the family. Healthcare professionals should recognise how in some cases, stigma may influence family-centred care within a family and their community; the importance of this is also emphasised by a recently proposed global framework for paediatric cancer communication research 27…”

PENS approach for breaking bad news in the oncology outpatient setting: a real-world report

“…However, the pattern of care and the patient profile is heterogeneous in different countries and even within the same country. Hence, it is essential to adapt the protocols and develop locally suitable protocols for the common problems faced in daily clinical practice [11,12,21,43,44]. PENS, an abbreviated approach to BBN, is one such protocol specially designed for use in the Indian OP setting.…”

“…The Indian family system is collectivistic, with primarily joint families, compared to the individualistic approach from the West [5]. Cancer patients differ in their outlook and preference regarding receiving information about their illness, requiring distinct communication models in different parts of the world [6][7][8][9][10][11][12]. The ethical principles of medicine and patient autonomy require the patient to know the diagnosis and play a role in the decision-making [13].…”

Current Status of Pediatric Oncology Nursing in Africa: Perspective of African nurses of the International Society of Pediatric Oncology (SIOP Africa)

“…Good communication skills during cancer care and treatment are an important aspect of nursing children and adolescents with cancer and their families; the nurses believed this was also their strong point. For example, Graetz et al found that "nurses, rather than psychosocial providers, provide most of the counselling and are available to clarify information discussed by the physician" (p. 4) in Uganda 18 .…”